Has anyone else had trouble telling people about their OCD? I would like to help break the stigma about mental health and be a part of the change. But it is such an exhausting thing to even think about. Not only would it be difficult to tell people (even people I trust), but it would be even more difficult to have to explain to people what OCD really is (not just the stereotypes they have seen on TV). On top of that I keep thinking how do I even begin to explain the subtypes that I have experienced? I suppose I don't have to, but it helps to give some real depth for them to sink their teeth into; to really understand the difference between OCPD and OCD. I keep thinking if I can get through ERP (which I have recently done), then I can certainly share my disorder with others (well I cant be 100% certain...see what I did there?). I know I don't have to tell others about my OCD and I respect people who want to keep it private. I have for years. I just think that I would like to be confident, own it, and help others who are still figuring out about their own mental health struggles. I know many of my family and friends will be surprised to hear that I have OCD. So if you have any suggestions or anecdotes you would be willing to share that would be great. Thanks!

I have this same problem repeatedly where I see things online about faking OCD and people talking about how OCD isn’t just cleaning and it makes me feel like I’m faking it and it’s pretty much its own theme now. I have a handwashing problem and since it’s so heavily stigmatized as faking I never do it when others are watching because then I feel like I’m seeking attention. Pretty much all of my visible compulsions I do are behind closed doors or on my own and I can’t do anything about it because if I try to show somebody then I’m attention seeking and faking. If I try to talk about the fear then I’m also attention seeking because now I’m guilt tripping and seeking sympathy and therefore I shouldn’t tell anyone and I shouldn’t show anyone. I’m essentially hiding an entire mental illness because of this, the only person I’ve ever really told about my issues is my therapist, nobody else feels safe.

Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?