My son is 22 as of tomorrow. This OCD for him was caused by a strep infection at age 17. He is a Pandas/Pans kid and has Neuropsychiatric Autoimmune Mimickry. The autoimmune markers being highly elusive and the OCD was so bad two years ago it almost took his life losing so much weight so rapidly. The OCD became the biggest thing to battle. I have spent the last five years learning everything I possibly can to help him battling ignorance with the general public as well as medically. He is scheduled for his first ERP session on the 29th. My question here is what can I do and family members do to reinforce the ERP treatments? He has Pure O and severe harm OCD. There are others in the mix as well. In the past being told not to accomodate him. This is a regular battle and in some cases the damages are far greater than the control aspect of his OCD to make us stop, wait, repeat, go back, remain silent and frozen in place while he submits to compulsions. There is a definite dynamic to the other half of the condition where family and friends are concerned. We have our own suffering and PTSD from it. Something we also need training in. Please advise as to any information on this you may have. 🙏

Okay this is very eye opening and interesting for me… I had strep for 6 months as a kid very young…. they could not get rid of it and I just kept doing rounds of antibiotics…. Have had pure o diagnosed at 27… but had sense very young… now I believe they may have a link between them.::: Sending your family love and support

We work hard on not reassuring. The only reassurance we give is the reality that you are okay and these things are not occuring. The accomodating is hard though because he breaks things and damages items. Never harms anyone unless he has to defend himself. But the compulsions are so exhausting to him. I would strongly recommend getting a full immunoglobulins test. A/E/G/and M. Full blood panel for immunocompromised conditions. Only and I say ONLY to rule out autoimmune markers. If you do have an issue due to strep, getting the treatment for the core issue will help you immensely. The OCD has done it's damage, but can be reversed with brain re-training ERP, +neoplasticity is a beautiful thing), but treating the initial issue will stop flairs. Do you flair with infections, colds, strep, or other viruses?( Keep in mind that our immune system gets strong by battling viruses and bacteria. There are just as many good bacterias as there are bad...perhaps even more good). Flares alone can be a solid marker. If I can help at all I sure will. 🙏♥️

I truly hope I have helped in some way. This had to be very difficult for you and hard to understand. Much love in return. If you have any questions, I'm happy to help.

So... Many viruses play a large part in immune system dysfunction. For my son ... He had Rheumatic fever as a toddler. This lays in your bloodstream and can be found when pulling Igg's and Igm... That's present and past illnesses. It's like a log of illnesses doctors can see in your past and present. Rheumatic fever basically collided with strep and caused his immune system to faulter. The result being a multitude of physical and psychiatric manifestations. This literally happened within 24 hours of getting strep. Now. PANDAS is kind of a melting pot of these immune system malfunctions. It's different for each child/person. There are even genetic links and autism spectrum links. For my son it seems to be a filtering issue linked to his liver and kidneys. When he gets strep now? He gets no fever or sore throat, but his OCD is off the charts as well as rages. For him it causes encephalopathy. The future is treatment for the OCD/ERP... Meds that control the OCD, mood, weight, and seizures while we seek markers for his autoimmune core issue.

As far as adults. I think it plays bits role out till their system is strengthened. For some that may mean things like IVIG immunoglobulin therapy for instance. Many different treatments. I would say that while getting ERP it is wise to keep your immun system boosted. Especially A, B12/6, D is a big one. Q-10, Zinc, and omega 3's. Pure form. No Walmart synthetic multi,-vitamins. Health food stores not Amazon. ♥️

Sorry for my bad typing 🤣