- Date posted
- 4y
- Date posted
- 4y
Okay this is very eye opening and interesting for me… I had strep for 6 months as a kid very young…. they could not get rid of it and I just kept doing rounds of antibiotics…. Have had pure o diagnosed at 27… but had sense very young… now I believe they may have a link between them.::: Sending your family love and support
- Date posted
- 4y
We work hard on not reassuring. The only reassurance we give is the reality that you are okay and these things are not occuring. The accomodating is hard though because he breaks things and damages items. Never harms anyone unless he has to defend himself. But the compulsions are so exhausting to him. I would strongly recommend getting a full immunoglobulins test. A/E/G/and M. Full blood panel for immunocompromised conditions. Only and I say ONLY to rule out autoimmune markers. If you do have an issue due to strep, getting the treatment for the core issue will help you immensely. The OCD has done it's damage, but can be reversed with brain re-training ERP, +neoplasticity is a beautiful thing), but treating the initial issue will stop flairs. Do you flair with infections, colds, strep, or other viruses?( Keep in mind that our immune system gets strong by battling viruses and bacteria. There are just as many good bacterias as there are bad...perhaps even more good). Flares alone can be a solid marker. If I can help at all I sure will. 🙏♥️
- Date posted
- 4y
I truly hope I have helped in some way. This had to be very difficult for you and hard to understand. Much love in return. If you have any questions, I'm happy to help.
- Date posted
- 4y
I truly had no idea that they had such a link, now googling and looking into it wow if it doesn’t make a whole lot of sense! Am doing better now that I have a diagnosis for this no sense in my brain and start ERP this Friday after my first couple of appointments. Not sure if it was from strep or genetics but after reading I do believe it prob played a large factor and due to the fact I internalized all of it no one would of known to diagnose it. So interesting. Do you know anything on how strep from childhood affects into adult years?!
- Date posted
- 4y
So... Many viruses play a large part in immune system dysfunction. For my son ... He had Rheumatic fever as a toddler. This lays in your bloodstream and can be found when pulling Igg's and Igm... That's present and past illnesses. It's like a log of illnesses doctors can see in your past and present. Rheumatic fever basically collided with strep and caused his immune system to faulter. The result being a multitude of physical and psychiatric manifestations. This literally happened within 24 hours of getting strep. Now. PANDAS is kind of a melting pot of these immune system malfunctions. It's different for each child/person. There are even genetic links and autism spectrum links. For my son it seems to be a filtering issue linked to his liver and kidneys. When he gets strep now? He gets no fever or sore throat, but his OCD is off the charts as well as rages. For him it causes encephalopathy. The future is treatment for the OCD/ERP... Meds that control the OCD, mood, weight, and seizures while we seek markers for his autoimmune core issue.
- Date posted
- 4y
As far as adults. I think it plays bits role out till their system is strengthened. For some that may mean things like IVIG immunoglobulin therapy for instance. Many different treatments. I would say that while getting ERP it is wise to keep your immun system boosted. Especially A, B12/6, D is a big one. Q-10, Zinc, and omega 3's. Pure form. No Walmart synthetic multi,-vitamins. Health food stores not Amazon. ♥️
- Date posted
- 4y
Sorry for my bad typing 🤣
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- Date posted
- 21w
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- 21w
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- Date posted
- 19w
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