- Date posted
- 4y
- Date posted
- 4y
Okay this is very eye opening and interesting for me… I had strep for 6 months as a kid very young…. they could not get rid of it and I just kept doing rounds of antibiotics…. Have had pure o diagnosed at 27… but had sense very young… now I believe they may have a link between them.::: Sending your family love and support
- Date posted
- 4y
We work hard on not reassuring. The only reassurance we give is the reality that you are okay and these things are not occuring. The accomodating is hard though because he breaks things and damages items. Never harms anyone unless he has to defend himself. But the compulsions are so exhausting to him. I would strongly recommend getting a full immunoglobulins test. A/E/G/and M. Full blood panel for immunocompromised conditions. Only and I say ONLY to rule out autoimmune markers. If you do have an issue due to strep, getting the treatment for the core issue will help you immensely. The OCD has done it's damage, but can be reversed with brain re-training ERP, +neoplasticity is a beautiful thing), but treating the initial issue will stop flairs. Do you flair with infections, colds, strep, or other viruses?( Keep in mind that our immune system gets strong by battling viruses and bacteria. There are just as many good bacterias as there are bad...perhaps even more good). Flares alone can be a solid marker. If I can help at all I sure will. 🙏♥️
- Date posted
- 4y
I truly hope I have helped in some way. This had to be very difficult for you and hard to understand. Much love in return. If you have any questions, I'm happy to help.
- Date posted
- 4y
I truly had no idea that they had such a link, now googling and looking into it wow if it doesn’t make a whole lot of sense! Am doing better now that I have a diagnosis for this no sense in my brain and start ERP this Friday after my first couple of appointments. Not sure if it was from strep or genetics but after reading I do believe it prob played a large factor and due to the fact I internalized all of it no one would of known to diagnose it. So interesting. Do you know anything on how strep from childhood affects into adult years?!
- Date posted
- 4y
So... Many viruses play a large part in immune system dysfunction. For my son ... He had Rheumatic fever as a toddler. This lays in your bloodstream and can be found when pulling Igg's and Igm... That's present and past illnesses. It's like a log of illnesses doctors can see in your past and present. Rheumatic fever basically collided with strep and caused his immune system to faulter. The result being a multitude of physical and psychiatric manifestations. This literally happened within 24 hours of getting strep. Now. PANDAS is kind of a melting pot of these immune system malfunctions. It's different for each child/person. There are even genetic links and autism spectrum links. For my son it seems to be a filtering issue linked to his liver and kidneys. When he gets strep now? He gets no fever or sore throat, but his OCD is off the charts as well as rages. For him it causes encephalopathy. The future is treatment for the OCD/ERP... Meds that control the OCD, mood, weight, and seizures while we seek markers for his autoimmune core issue.
- Date posted
- 4y
As far as adults. I think it plays bits role out till their system is strengthened. For some that may mean things like IVIG immunoglobulin therapy for instance. Many different treatments. I would say that while getting ERP it is wise to keep your immun system boosted. Especially A, B12/6, D is a big one. Q-10, Zinc, and omega 3's. Pure form. No Walmart synthetic multi,-vitamins. Health food stores not Amazon. ♥️
- Date posted
- 4y
Sorry for my bad typing 🤣
Related posts
- Date posted
- 24w
My husband and I have 3 kids.. ages 13, 7 & 1. Our 13 year old has always been somewhat “different”, even as a toddler. He was very quiet and socially awkward. Not much has changed in that department. He isn’t into sports and has a very hard time finding anything at all that interests him. He doesn’t have many friends as he is still awkward and has a hard time fitting in. He has OCD. Specifically moral OCD. He feels like he has to confess everything to me that he feels isn’t appropriate. Curse words he hears on tv, something off-color that he or his friends said at school, anything sexual he hears on tv or in a joke. He laughingly tells me but he is reading my face to gauge my reaction on the subject every time. We tell him constantly that he doesn’t have to confess to us but, of course, those who know much about OCD know that this is harder than just simply telling them they don’t have to give into their compulsions. He is very anxious and worries about everything. He also has inattentive ADHD so he’s currently on medicine for that but can’t tell if it’s actually helping anything or not. He’s on anxiety meds too that we are trying to assess. Honestly, we have also wondered if he may be on the spectrum but high-functioning. Not sure. We are very worried about his future. He is not maturing and doesn’t care to learn how to better himself since he’s getting older. Anyway, now that I’ve given a little background, my reason for posting is that I wonder if we have created all of this. First of all.. I am a hovering mom. Im very overprotective and have a hard time letting my kids do much because I’m anxious myself. I grew up with a yelling mom and stepdad. Sadly, I have resorted to this trauma behavior much of my son’s life as well. I try my hardest not to lose my temper and yell but, I am very ashamed to say, that I haven’t been able to do a very good job with that. I have been overly critical also. Learned behavior. I will add that we are also a religious family that goes to church and follows the Bible. My husband was raised differently. His parents are very mild mannered and calm. Very sweet with my husband and his sister growing up and they aren’t “yellers”. They live out in the country and are very lax about many rules when my children go out there. Not that they let them do whatever they want but at the same time… they do seem to have a hard time saying no. My sister in law and her family live across the street from my in laws so they’re all out in the country together living their peaceful, carefree life. 🙄 They seem to think that my husband and I have brought all of this on ourselves with how we have so many rules and boundaries. They’re of the mindset that we should be exposing him to movies with curse words and letting him hear innnapropriate things and curse words more. This is how they parent their 10 year old (who is homeschooled so.. in my opinion they don’t have to worry so much about him repeating the curse words at school. We are at a Christian, private school where I also teach so it’s a bigger deal making sure my kids don’t hear those things and repeat). Anyway.. first and foremost, I’m looking for advice on how to reverse the damage from me losing my temper these last 13 years. I swear I am trying my hardest and strive everyday to be a good mom. I want so badly for them to WANT to keep a close relationship with us when they become adults living on their own. But I am so scared I’m ruining them. Does it seem to be the case? Also, do you think we have caused this OCD? Be honest with everything please. I am constantly very worried we are doing this wrong.
- Date posted
- 22w
My little sister is 13 we’ve taken her to a child psychologist and she was diagnosed with OCD and social anxiety and I believe germaphobia. The psychologist said that he can’t properly diagnose her with autism until her anxiety symptoms are treated. But I am very positive that she is also autistic as I am autistic and know the symptoms vary well. She was given a medication at a low dose, I don’t remember what kind, she had been taking it even tho she did not want to for a couple of months. It seemed to be helping her anxiety immensely but I believe she is scared of how the medication changes how she feels and she doesn’t like the taste. So they switched medications and that one was even worse because the taste was too strong she didn’t even try it for more than a day so there’s no way of knowing if that one was better for her or not. These are both liquid medications btw we used juice for her to drink it. Since then she hasn’t taken any medication and she has said that she doesn’t want to. We can’t force her to take the medication as that would obviously be counter productive. But since then her ocd and germaphobia have gotten progressively worse. On top of not wanting medication she doesn’t like the idea of using any coping skills like deep breaths or breathing exercises to calm down and doesn’t like the idea when I talk about ERP or therapy or any kind of treatment that could help. It seems all the ideas either make her uncomfortable or scare her. I fear somewhat that my own ocd compulsions have made her think that this is normal and doesn’t need treatment and I don’t know what to do to help understand that treatment and change isn’t scary. I also fear that I’m not approaching this right and my mom doesn’t understand ocd like I do so I feel like it falls on me to help her through this and help my mom understand what we need to do to help her. I’m sorry this is so long. thank you for reading this. She’s really struggling and it’s affecting my own mental health too and I don’t know what to do. If anyone has any tips or advice please that’s all I’m asking for.
- Date posted
- 16w
Hello, I’m a mother. My son is 17 and he has contamination OCD. We have been trying different ways to support him but he refused to see any therapist. He is struggling with paranoia and intrusive thoughts. Those thoughts make him so angry that he get yelly, throwing and breaking some furniture, and just yesterday he put a hole in the wall. He admitted that these didn’t help him feel any better, in fact it made him feel worse (because he didn’t want to act as such). We are doing our best to support him, talking with him but he refused to talk about those intrusive thoughts and paranoia. What do you suggest me to do? What would be helpful for me to do so he can talk with me more? We desperately want him to get help but he wouldn’t. Thank you in advance!
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