- Date posted
- 3y
- Date posted
- 3y
Okay this is very eye opening and interesting for me… I had strep for 6 months as a kid very young…. they could not get rid of it and I just kept doing rounds of antibiotics…. Have had pure o diagnosed at 27… but had sense very young… now I believe they may have a link between them.::: Sending your family love and support
- Date posted
- 3y
We work hard on not reassuring. The only reassurance we give is the reality that you are okay and these things are not occuring. The accomodating is hard though because he breaks things and damages items. Never harms anyone unless he has to defend himself. But the compulsions are so exhausting to him. I would strongly recommend getting a full immunoglobulins test. A/E/G/and M. Full blood panel for immunocompromised conditions. Only and I say ONLY to rule out autoimmune markers. If you do have an issue due to strep, getting the treatment for the core issue will help you immensely. The OCD has done it's damage, but can be reversed with brain re-training ERP, +neoplasticity is a beautiful thing), but treating the initial issue will stop flairs. Do you flair with infections, colds, strep, or other viruses?( Keep in mind that our immune system gets strong by battling viruses and bacteria. There are just as many good bacterias as there are bad...perhaps even more good). Flares alone can be a solid marker. If I can help at all I sure will. 🙏♥️
- Date posted
- 3y
I truly hope I have helped in some way. This had to be very difficult for you and hard to understand. Much love in return. If you have any questions, I'm happy to help.
- Date posted
- 3y
I truly had no idea that they had such a link, now googling and looking into it wow if it doesn’t make a whole lot of sense! Am doing better now that I have a diagnosis for this no sense in my brain and start ERP this Friday after my first couple of appointments. Not sure if it was from strep or genetics but after reading I do believe it prob played a large factor and due to the fact I internalized all of it no one would of known to diagnose it. So interesting. Do you know anything on how strep from childhood affects into adult years?!
- Date posted
- 3y
So... Many viruses play a large part in immune system dysfunction. For my son ... He had Rheumatic fever as a toddler. This lays in your bloodstream and can be found when pulling Igg's and Igm... That's present and past illnesses. It's like a log of illnesses doctors can see in your past and present. Rheumatic fever basically collided with strep and caused his immune system to faulter. The result being a multitude of physical and psychiatric manifestations. This literally happened within 24 hours of getting strep. Now. PANDAS is kind of a melting pot of these immune system malfunctions. It's different for each child/person. There are even genetic links and autism spectrum links. For my son it seems to be a filtering issue linked to his liver and kidneys. When he gets strep now? He gets no fever or sore throat, but his OCD is off the charts as well as rages. For him it causes encephalopathy. The future is treatment for the OCD/ERP... Meds that control the OCD, mood, weight, and seizures while we seek markers for his autoimmune core issue.
- Date posted
- 3y
As far as adults. I think it plays bits role out till their system is strengthened. For some that may mean things like IVIG immunoglobulin therapy for instance. Many different treatments. I would say that while getting ERP it is wise to keep your immun system boosted. Especially A, B12/6, D is a big one. Q-10, Zinc, and omega 3's. Pure form. No Walmart synthetic multi,-vitamins. Health food stores not Amazon. ♥️
- Date posted
- 3y
Sorry for my bad typing 🤣
Related posts
- User type
- OCD Conqueror
- Date posted
- 23w
My struggles with OCD began in childhood, but it wasn’t until after giving birth to my first child at 30 that I finally received a diagnosis. For years, I suffered in silence with intense anxiety, insomnia, and intrusive thoughts, but because my compulsions were mostly mental—constant rumination, reassurance-seeking, and avoidance—I didn’t realize I had OCD. I experienced Pure O, where my mind would latch onto terrifying thoughts, convincing me something was deeply wrong with me. After my son was born, I was consumed by intrusive fears of harming him, even though I loved him more than anything. Seven weeks into postpartum, I hit a breaking point and ended up in the emergency room, where I was finally diagnosed. For the first time, everything made sense. I didn’t discover exposure and response prevention (ERP) until years later when my son developed Germ OCD during COVID. I went through the program myself first, and it completely changed my life. ERP helped me sit with my intrusive thoughts instead of reacting to them, breaking the cycle that had controlled me for so long. Life isn’t perfect, but it’s so much better than before. I can finally be present instead of trapped in my head. Now, I’m working on trusting myself more and handling challenges without fear of “losing control.” As I prepare to help my daughter start therapy, I feel empowered knowing I’m giving my children the support I never had. If you know you have OCD but haven’t started therapy yet, what’s holding you back?
- Date posted
- 19w
Hello i got this app hoping to maybe find some support for my partner i thought about reddit but reddit has become a hateful place and i figured this is a safe place. i love my partner more than anything and he’s been struggling with OCD his whole life he has a hard time talking about it with anyone because it’s too painful he’s stated that it’s gotten worse as he’s gotten older His biggest issue right now is overwhelming thoughts of his actions having tragic outcomes and being unable to stop these obsessive thoughts (such as needing to check out door handle 5 times to make sure it’s locked but still panicking that it’s unlocked) he’s not open to one on one therapy or meds although he loves learning and watching informative videos i fear he’s afraid to confront his OCD or just afraid nothing will help i really wanna help him live a stress free and happy life he deserves it would anyone possibly have any ways to naturally help with OCD or recommend any great individuals that could share techniques on managing OCD or helping your partner with OCD? i would very much appreciate it!
- Date posted
- 15w
Someone I care about has OCD, he often gets worried to answer certain things in fear that he might be wrong or gets anxious in times when certain conversations such as dealing with negative emotions come into play and in the event something goes wrong even though we deal with the issue it takes him a long time to put himself back together. Often times worried about his image, hyper focused on being a good person etc etc. I believe I’m doing my best but as someone who doesn’t struggle with OCD I cant fully comprehend him and i wish to learn more about it, not just read it off of google. Any advice would be appreciate it. -Thank you!
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