How do you decide with whom/when/how much you share about your OCD? I haven't shared with one of my friends, as she has had less-than-supportive responses when I've shared other medical/mental health things with her. She recently made some comments about OCD (you know the ones - "I love to plan and organize. I'm so OCD."). When reading her texts I was seething, as those sorts of comments are so diminishing and hurtful. I know that she doesn't mean harm by these things, so part of me wants to tell her how I've been battling OCD (the real kind, not the kind that likes to color coordinate socks) for the past year. I want to explain why "I'm so OCD" makes me so freaking angry. But if I do this, I take the risk of her not supporting me in the way I would expect. I take the risk of her thinking "What's the big deal. We're all a little OCD." Is it worth it, or do I just go on and try to ignore those comments? What experiences (positive and negative) have you all had when sharing about your OCD with others?

Has anyone experienced their reputation affected or misunderstood because of a societally taboo OCD theme? Others catching wind of your obsessions and misinterpreting it, assuming the worst? I’m intentionally keeping it vague because I don’t want my specific situation to get reassured, but it’s been a real tough pill to swallow knowing that people close to me (and anyone else they might talk to) think of me differently. I’m unwilling to share about my OCD because I feel pretty confident it will be taken as an excuse or denial, and feels compulsive and reassurance seeking. Let me know if anyone here has experienced anything like it, how they handled it, exposures you did.

My mom will sit and listen to me for quite a while, but she interrupts a lot and gets angry/upset. While I appreciate her passion, it's often stressful. Every time I come to her, if I even *mention* OCD, she gets frustrated and says, "Everyone deals with these issues, you know. It doesn't mean it's OCD." And I repeat, "I'm not saying my issues are unique — I'm saying the way I respond to them is a problem." But she just shakes her head and says, "Okay, I need to get back to my day." Full context, I'm an adult, and I live with my boyfriend, but I'm staying at my mom's for the next month. After living away from home for years, I went back to living with her during the pandemic, and I only recently left to live with him. Honestly, I think living with her for so long in my adulthood really messed with me and made me feel like a teenager all over again. I feel like my mental growth is stunted, and that's part of why my OCD is so bad lately. Not blaming, just noticing. She doesn't seem to understand how relieving the OCD diagnosis has been for me, because it explains so so so many things I've struggled with for years, and it's exciting to have more resources that can help me. But I think she sees it as me finding an excuse to *not* work on myself, which is just untrue. I'm not going to let OCD hold me back or use it as an excuse, but I'm also not going to pretend it's not a problem when I know it is — I was even diagnosed through NOCD. The whole point being to fix it, not use it as a crutch. When I have an issue, it's unbearable. Any issue, big or small, feels just the same. I feel a sinking feeling, my mind races, my heart beats out of my chest. I end up running to my support systems, crying, ruminating for days on end. Then, months later, the same exact issue can feel like nothing anymore, because it's no longer an obsession. I'm sure everyone deals with issues in a similar way, but I *know* there is something specific and debilitating going on with me. This is reassurance seeking, but in the face of being told I'm making a big deal out of nothing, can someone diagnosed with OCD tell me if they relate to the specific intensity of these feelings??

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.