How do you decide with whom/when/how much you share about your OCD? I haven't shared with one of my friends, as she has had less-than-supportive responses when I've shared other medical/mental health things with her. She recently made some comments about OCD (you know the ones - "I love to plan and organize. I'm so OCD."). When reading her texts I was seething, as those sorts of comments are so diminishing and hurtful. I know that she doesn't mean harm by these things, so part of me wants to tell her how I've been battling OCD (the real kind, not the kind that likes to color coordinate socks) for the past year. I want to explain why "I'm so OCD" makes me so freaking angry. But if I do this, I take the risk of her not supporting me in the way I would expect. I take the risk of her thinking "What's the big deal. We're all a little OCD." Is it worth it, or do I just go on and try to ignore those comments? What experiences (positive and negative) have you all had when sharing about your OCD with others?

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

I was super recently diagnosed with OCD and nervous to share my diagnosis with my family. I’m a somewhat messy person and don’t have germophobic tendencies, so since I don’t have the stereotypical OCD presentation I was terrified that nobody would believe me. I ended up talking to my mom and making a silly TikTok post about it, which my grandma saw. Not only did they believe and support me–I learned that my grandma has it too! Funny to look back on, but really cool to see that the worst outcome doesn’t always happen. (:

I have been in ERP therapy for my OCD for nearly a year now. Before my diagnosis and doing ERP, I really didn't drive a car for five years and rarely left the house. Now I drive to work, coffee and other outings. Most of the people close in my life don’t really know about my OCD. They do see me doing lots of things I haven't done in the past. I don't really know if I should explain about why this progress happened. I hope they don't think I was just being lazy up until then. They will talk about how someone is “so OCD” because they keep their room clean and really enjoy things neat. Anytime I hear this, I just think that if they hear about my diagnosis of OCD and what it entails they will think I’m crazy. I feel very conflicted about how to go about this, so advice is welcome.