How do you decide with whom/when/how much you share about your OCD? I haven't shared with one of my friends, as she has had less-than-supportive responses when I've shared other medical/mental health things with her. She recently made some comments about OCD (you know the ones - "I love to plan and organize. I'm so OCD."). When reading her texts I was seething, as those sorts of comments are so diminishing and hurtful. I know that she doesn't mean harm by these things, so part of me wants to tell her how I've been battling OCD (the real kind, not the kind that likes to color coordinate socks) for the past year. I want to explain why "I'm so OCD" makes me so freaking angry. But if I do this, I take the risk of her not supporting me in the way I would expect. I take the risk of her thinking "What's the big deal. We're all a little OCD." Is it worth it, or do I just go on and try to ignore those comments? What experiences (positive and negative) have you all had when sharing about your OCD with others?

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

I have been in ERP therapy for my OCD for nearly a year now. Before my diagnosis and doing ERP, I really didn't drive a car for five years and rarely left the house. Now I drive to work, coffee and other outings. Most of the people close in my life don’t really know about my OCD. They do see me doing lots of things I haven't done in the past. I don't really know if I should explain about why this progress happened. I hope they don't think I was just being lazy up until then. They will talk about how someone is “so OCD” because they keep their room clean and really enjoy things neat. Anytime I hear this, I just think that if they hear about my diagnosis of OCD and what it entails they will think I’m crazy. I feel very conflicted about how to go about this, so advice is welcome.

I am very new to this app and to accepting that I likely have OCD. I am not diagnosed yet, but I have suspected that I have it for years now. I think ignoring it/feeding the reassurance loop led to my first really bad panic attack a few days ago that put me in the hospital and essentially forced me to stop hiding my struggle from my loved ones. I had another one last night, and out of habit I’m already hiding my feelings from my loved ones. I’m having thoughts that I know are OCD but they’re very hard to get past because they feel so logical? Some examples: -I shouldn’t tell anyone because it wasn’t as bad as the one that hospitalized me -my loved ones are already tired of hearing me talking about it and I feel bad burdening them -I just had the last one and if I tell people about this one I’ll look like I’m attention seeking -I don’t want people to ask what the trigger was so I shouldn’t bring it up if I don’t want to have to answer that question I’m naming them here not for reassurance, but to help myself hopefully label these things as OCD per usual trying to keep me from getting help. The hardest part of this journey so far has been accepting that there are so many things that feel like normal, rational thoughts and feelings that having been hurting me and feeding a vicious cycle for years on end. It feels unreal because these things have become such subtle integrated parts of my life and my routine, and telling myself those things are harmful just feels wrong. It’s like what I have considered my “gut feeling” for years isn’t actually my intuition looking out for me, but is an overactive fear response that has been isolating me from everything and I’ve never questioned it because the isolation, the reassurance, feels good and like the right thing to do. How do I push past these thoughts and be honest with my loved ones about my struggling? How do I rewire my brain to stop the reassurance seeking and compulsions when it’s the only thing that’s made me feel better all these years?