OCD is often highly misunderstood and stigmatized, and people often spend years—even decades—before learning that they have the condition. When people finally figure out that what they struggle with has a name, it can give them a completely fresh perspective. So how do people actually end up finding out that they have OCD? Here are some of the most common ways that people share with us: Searching their thoughts online. It’s very common for people to learn about OCD by Googling some of the thoughts or behaviors they’ve experienced. This can involve anything from looking for reassurance (“Is it normal to check on my baby every hour at night?”) to searching for information about OCD specifically (“Do I have OCD?”). Word of mouth. Other people’s experiences can be powerful and illuminating. It’s not uncommon for people to recognize their own OCD symptoms by speaking with a family member who also struggles with the condition, a coworker who received ERP therapy in the past, or a friend who shares their own intrusive thoughts. Social media. It’s probably not surprising to hear that social media has allowed many people to learn about others with similar experiences. Whether it’s from a personal story on TikTok or someone setting the record straight in the comments of a misinformed Facebook post, social media makes a wide range of information about OCD accessible. Podcasts, TV, and movies. Many popular podcasts about mental health or even related topics like parenting can give people access to information about OCD. And while many depictions of OCD in TV shows and movies are inaccurate or rely on stereotypes, they can lead people to recognize real OCD symptoms in their own lives. Mental healthcare providers or doctors. While it’s not uncommon, people find out that they have OCD from clinical sources less often than you’d think. When they do, it can come after years of confusion, misdiagnosis, and seeing several different providers in a search for answers. How did you first learn that you might have OCD? Reply with your own story below.

Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?

I get asked about the name NOCD a lot. People might want to know how it’s pronounced, and they’re curious about our story. Every time, I’m excited to share a bit about what the name means—in fact, it’s an opportunity for me to talk about something everyone should know about OCD. First things first: it’s pronounced “No-CD.” And it actually means a couple things, both central to our mission: To restore hope for people with OCD through better awareness and treatment. The first meaning of our name is about awareness: Know OCD. Though we’ve come a long way, not enough people truly know what OCD is or what it’s like. How many times have you heard someone say “Don’t be so OCD about that,” or “I wish I had a little OCD. My car is a mess!” Things like that may seem innocent, but they trivialize the condition and keep most people with OCD—around 8 million in the US alone—from getting the help they need. The second meaning of NOCD is about treatment: No-CD. To go a bit deeper: Say “No” to the compulsive disorder. On one level, this is also related to knowing OCD—noto means “to know” in Latin. This inspired the name NOTO, the operations and technology infrastructure that powers NOCD the way an engine powers a vehicle. But this meaning goes even further. It has to do with how you can manage OCD symptoms—learning to resist compulsions. This is the foundation of exposure and response prevention (ERP) therapy, the most effective, evidence-based form of treatment for OCD. Learning how to resist compulsions with ERP changed my life, and it taught me how important it is to get treatment from a specialty-trained therapist who truly understands how OCD works. I’ll give you an example. When I was 20, my life was going according to plan. I was thriving on the field as a college quarterback, doing well in school, even winning awards—until OCD struck out of nowhere. I started having taboo intrusive thoughts, things that horrified me and went against my core values and beliefs. Desperate for help, I saw several different therapists—but no one diagnosed me with OCD. At one point, I was instructed to snap a rubber band against my wrist whenever I had an intrusive thought. It was supposed to stop the thoughts, but it only made my symptoms worse. Driven into severe depression, I had to put my entire life on pause. Once I started ERP with a therapist who understood OCD, I learned why: you can’t stop intrusive thoughts from occurring. Everyone has them—and the more you try to get rid of them, the worse they get. Anything you do to suppress them is actually a compulsion, whether it’s counting in your head, snapping a rubber band against your wrist, or using substances to drown the thoughts out. To get better, you have to learn to resist compulsions and accept uncertainty. OCD doesn’t get to decide how you live your life. How do you educate the people in your life about OCD? Whether friends, family, or strangers, I’d love to hear how you share your understanding and raise awareness about OCD.

OCD is so much more than just being 'neat' or 'organized'—it’s relentless, exhausting, and often deeply misunderstood. The intrusive thoughts, the compulsions, the anxiety—it can feel like a never-ending cycle that others just don’t seem to get. Many of us have had experiences where even therapists didn’t fully grasp the depth of our struggles. I myself faced difficulty being misdiagnosed and my talk therapist not understanding the full extent of what I was going through until I found NOCD. So many prior therapists wrote off my symptoms as general anxiety, not realizing it was actually OCD all along. If you could sit down with a therapist who truly wanted to understand, what do you wish they knew about OCD?