OCD is often highly misunderstood and stigmatized, and people often spend years—even decades—before learning that they have the condition. When people finally figure out that what they struggle with has a name, it can give them a completely fresh perspective. So how do people actually end up finding out that they have OCD? Here are some of the most common ways that people share with us: Searching their thoughts online. It’s very common for people to learn about OCD by Googling some of the thoughts or behaviors they’ve experienced. This can involve anything from looking for reassurance (“Is it normal to check on my baby every hour at night?”) to searching for information about OCD specifically (“Do I have OCD?”). Word of mouth. Other people’s experiences can be powerful and illuminating. It’s not uncommon for people to recognize their own OCD symptoms by speaking with a family member who also struggles with the condition, a coworker who received ERP therapy in the past, or a friend who shares their own intrusive thoughts. Social media. It’s probably not surprising to hear that social media has allowed many people to learn about others with similar experiences. Whether it’s from a personal story on TikTok or someone setting the record straight in the comments of a misinformed Facebook post, social media makes a wide range of information about OCD accessible. Podcasts, TV, and movies. Many popular podcasts about mental health or even related topics like parenting can give people access to information about OCD. And while many depictions of OCD in TV shows and movies are inaccurate or rely on stereotypes, they can lead people to recognize real OCD symptoms in their own lives. Mental healthcare providers or doctors. While it’s not uncommon, people find out that they have OCD from clinical sources less often than you’d think. When they do, it can come after years of confusion, misdiagnosis, and seeing several different providers in a search for answers. How did you first learn that you might have OCD? Reply with your own story below.

Trying not to seek reassurance, but rather connect the dots on my OCD and possible reasons as to why I am the way I am. I have severe OCD (or at least I hope I do) mainly surrounding POCD. I've had symptoms of OCD the majority of my life but this theme has come up more recently. When I was a kid, and i'm talking 6-7, I was first exposed to some really gross adult content online. It was introduced to me by a friend of mine around the same age of me. I saw some really disgusting things that a 6-7 year old should definitely not see. This was not a one time occurrence, as I had been exposed to taboo topics online years to come after that, such as the same friend introducing me to Omegle... And i'm sure you can imagine how that went, theres a lot of genuinely disgusting human beings on there. Coming back to the reason for making this post; is it possible to early exposure to this content could be one of the reasons I struggle with POCD? It genuinely scares me to death because you hear that real p*dos dealt with simular situations when they were kids, so thats kind of making me feel that this could be more than OCD, and I could be a genuinely bad person. My POCD feels so real, that at times i'm fully convinced its not OCD. Sometimes I can't even distinguish the feelings of attraction between a younger person and an older person, except for the feeling of anxiety and fear. Its really hard to explain without going into detail, but it just feels so real. Some feedback on this would be great, thank you all.

I get asked about the name NOCD a lot. People might want to know how it’s pronounced, and they’re curious about our story. Every time, I’m excited to share a bit about what the name means—in fact, it’s an opportunity for me to talk about something everyone should know about OCD. First things first: it’s pronounced “No-CD.” And it actually means a couple things, both central to our mission: To restore hope for people with OCD through better awareness and treatment. The first meaning of our name is about awareness: Know OCD. Though we’ve come a long way, not enough people truly know what OCD is or what it’s like. How many times have you heard someone say “Don’t be so OCD about that,” or “I wish I had a little OCD. My car is a mess!” Things like that may seem innocent, but they trivialize the condition and keep most people with OCD—around 8 million in the US alone—from getting the help they need. The second meaning of NOCD is about treatment: No-CD. To go a bit deeper: Say “No” to the compulsive disorder. On one level, this is also related to knowing OCD—noto means “to know” in Latin. This inspired the name NOTO, the operations and technology infrastructure that powers NOCD the way an engine powers a vehicle. But this meaning goes even further. It has to do with how you can manage OCD symptoms—learning to resist compulsions. This is the foundation of exposure and response prevention (ERP) therapy, the most effective, evidence-based form of treatment for OCD. Learning how to resist compulsions with ERP changed my life, and it taught me how important it is to get treatment from a specialty-trained therapist who truly understands how OCD works. I’ll give you an example. When I was 20, my life was going according to plan. I was thriving on the field as a college quarterback, doing well in school, even winning awards—until OCD struck out of nowhere. I started having taboo intrusive thoughts, things that horrified me and went against my core values and beliefs. Desperate for help, I saw several different therapists—but no one diagnosed me with OCD. At one point, I was instructed to snap a rubber band against my wrist whenever I had an intrusive thought. It was supposed to stop the thoughts, but it only made my symptoms worse. Driven into severe depression, I had to put my entire life on pause. Once I started ERP with a therapist who understood OCD, I learned why: you can’t stop intrusive thoughts from occurring. Everyone has them—and the more you try to get rid of them, the worse they get. Anything you do to suppress them is actually a compulsion, whether it’s counting in your head, snapping a rubber band against your wrist, or using substances to drown the thoughts out. To get better, you have to learn to resist compulsions and accept uncertainty. OCD doesn’t get to decide how you live your life. How do you educate the people in your life about OCD? Whether friends, family, or strangers, I’d love to hear how you share your understanding and raise awareness about OCD.

Hi everyone, I’m Cayla. I’m a mom that’s lived with OCD since childhood, but my breaking point came more recently after having my son. I was consumed by terrifying thoughts—What if I hurt him? What if I did something awful without realizing it? I was so afraid of my own mind that I couldn’t be alone with him. The shame and exhaustion were unbearable, and I convinced myself I was broken. In 2024, I finally sought help. ERP therapy at NOCD was one of the hardest things I’ve ever done, but it saved my life. Even now, I have tough days, but I know I don’t have to be ruled by OCD. When my 12 year old daughter began showing signs of OCD, I felt overwhelmed with guilt. I never wanted her to go through what I had, but I knew what to do. I told her that I have OCD too and made sure she knew it wasn’t her fault—and that she wasn’t alone. One of the hardest parts of this journey was trusting someone else with my daughter’s OCD. I knew how vulnerable it feels to share intrusive thoughts, and I wanted her to feel safe. Her NOCD therapist was able to establish trust and genuine empathy from the start, and that relationship gave her the confidence to face ERP head-on. Seeing her build that trust made me certain she was in the right hands. ERP has helped both of us reclaim our lives, and it is beautiful to see my daughter managing her condition and making visible progress. Parenting with OCD while raising a child with OCD isn’t talked about enough, but I know so many parents are struggling with these same challenges. If you have questions about managing OCD while parenting, helping your child through ERP, or breaking cycles of guilt, drop them below—I’d love to share what I’ve learned. I’ll be answering all of the questions I receive in real-time today 4-5pm ET.