Hi Britt,
I’d really like to share my story. I find doing so therapeutic and hope that it helps you in some small way.
My son was born in Sept 21. Birth didn’t go as planned and at 3 days old, he was hospitalised with jaundice, following a missed home checkup from the hospital. In the 4 months that followed, we had many health scares that warranted a trip to the hosp but, thankfully nothing of major concern and baby was ok.
At 5 months pp, I read an article about a rare health condition. I had a panic attack and from that moment on, I obsessively thought about this, worried my son might have it. I examined my son’s skin for hours on end to the point of seeing things and thinking I’m going crazy. It would be checking every change in birthmark, pigmentation, spot, scar, bruise.. and it evolved to checking his eyes and the hairs on his head! When he cried a lot, I thought it might be the condition. I compared his skin from pictures and even of other people. It has moved on as well to concerns about the health of future children. Anything I see or hear about, health wise, I worry about my loved ones or I getting it. It’s ocd rooted in health anxiety.
When I first had thoughts of self harm, harming my baby, and classical depression symptoms that’s when I knew this was pnd/pna. But I never suspected ocd! Looking back, I realised I did have ocd tendencies (repeating situations in my head, repeated imaginary conversations, obsessing over my own health, rechecking the door/hair straightener/oven, wanting things a particular way). I sought out help and was lucky to get a spot with a psychiatrist a month later. It helped a lot! My doc was kind enough to also get a dermatologist to check out my son for reassurance. Even this only provided temporary relief from the relentlessness that is ocd.
After 4 months of therapy, I was doing better but it was still too big of a burden for me to handle. I switched therapists and the lady I’m seeing now for the past 4 months has been able to correctly diagnose me and thus help me with more appropriate strategies.
I also read books to help understand how my brain is working which helps shift my perspective from the intense fear that what I’m worried about is not actually reality.
So yes, it’s been approximately 8 months and I’m doing much better. I don’t beat myself up when I have flare ups (which occur every other day or so). I can reflect on maybe why I was vulnerable to the flare up and I feel safe to share everything with my husband who learns and is able to help me better the more I discuss it with him.
I went into avoidance for a long time and had mantras and prayers to help me cope through distressing moments. All of this perpetuated my fears. Starting ERP was so uncomfortable because I couldn’t bear to face my fears and the distress it caused. But I’m doing it! It has gotten easier. The voice in my head compelling me to carry out my safety behaviours is actually louder! It yells at me to do it…. Maybe because the anxiety monster knows I’m getting stronger and he needs to really get in my face to get me to cave. Sometimes I do. But that’s ok. Progress isn’t always linear.
Today, my triggers still include changing his clothes and nappy, basically seeing his exposed skin in any way (though I face them) and also reading or watching anything to do with children being ill or having a condition. Anyone being ill really, but children moreso.
I don’t aim to be fully free from this but my goal is simply to be able to manage this and bring it down the lower levels of distress.