For the sake of honesty: My therapist said I don’t actually have OCD. He says basically I have perfection/control issues, and am so afraid of making a mistakes that I ritualize to keep from doing something wrong. I thought that if I *didn’t* strictly meet DSM criteria, it meant there was nothing wrong with me, and that I had to do/avoid all the things my mind told me to. To make it more confusing, my sister who was diagnosed with OCD thinks I have it, and a different therapist who has OCD herself thinks I have it. That said, I’ve come to view it more like a spectrum, and a maladaptive coping mechanism. But, I wanted to throw this out there, because I felt a little dishonest, and wondered if maybe y’all would rather I not be in this community. That said, I know what it’s like to check locks, stoves, ovens, faucets, lights, garages multiple times, to ruminate to make sure I haven’t made a mistake, to worry if I don’t wash my hands enough I will make other people dirty or defiled or dead, etc. I use the principles of ERP (well, try to) and find them helpful. Thanks for reading.

I was diagnosed with OCD around the age of 6, subtype- contamination primarily. It calmed down as I got older and I assumed it had gone away, but also didn’t realize it can show up in other ways, and it still had been effecting me which I know now. I’m not 31 and I’ve been in therapy for a year and it’s helped a lot, although I sometimes get thoughts that what if some of the stuff I’m dealing with isn’t ocd and I’m exaggerating. I feel like thoughts will feel sticky and I’ll do certain compulsions but then the thought eventually vanishes if I do it a few times which makes me think maybe it’s not OCD since other people/friends I know would probably do the exact same thing. Not sure if I’m making sense, but I guess my question is if that thought comes up with anyone else? Just being unsure if something you’re doing actually is ocd or not.

Hello, I’m new to this app. I’ve always had an anxious brain, and I’ve had coping mechanisms for as long as I can remember. When I was a kid, from as early as I could spell, until I was probably early teens, I would constantly write words in my head along to the beat of music. It’s such a vivid memory because I never stopped doing it. The word had to perfectly match up to the lyric and I loved that it kept my brain busy. I grew out of that, but felt like good context. My anxiety increased drastically around ages 17-19, and I began therapy. I was diagnosed with generalized anxiety and panic disorder, due to having a panic attack nearly every day at that time. I overcame that as well, and now the panic attacks are every now and then, but the anxiety is constant, and some recent symptoms have led me to believe I might have some form of OCD. Maybe not. I’m trying to understand myself and get better so I joined this app to make sense of things. Lately I’ve been having really intense intrusive thoughts. I’m really embarassed and they make me feel like a bad person. Thoughts pop in my head seemingly out of nowhere. It will be an image of me harming myself or someone else in a really bad way. (Trigger warning) for example the other day I couldn’t shake the image of me putting a knife through my own forehead, although it’s not something I want to do. Or I’ll imagine someone killing me. I imagine my loved ones dying often. The thoughts feel so out of my control it’s insane. I hate them. Another persistent issue that isn’t as new is replaying social scenarios. I’m a hairstylist so this one is difficult since I meet a bunch of new people every day. I obsess over how I act and if people like me. I will impulsively say things all the time and they will haunt me for weeks. I question even my closest friends and family who show their love. I find myself so angry and numb and like I have so much built up emotion and a busy mind always. While doing my job I spiral really badly if any little thing goes wrong and it’s embarassing. I know there’s more but I can’t think of it now. I just want to feel better and like I’m not constantly battling my mind.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.