So last night I wrote this on Facebook to my friends and family: Please don’t describe yourself as “so OCD” if you don’t actually have it and make it seem like less of a struggle than it genuinely is for people who do. OCD for me means my mind is always loud and running at a fast speed. OCD means insomnia and nights with 3-4 hours sleep. OCD means if I don’t want to be late in the morning I need to give myself 3 hours to get ready. OCD means everything around me has to be perfect or I can’t concentrate. OCD means carrying out the simplest task can cause a massive amount of stress. OCD means relief when I arrive at work because I have finally gotten myself out of the house, no matter how long it took! I get to work and my stress levels surprisingly reduce because one of the toughest parts of my day is over! And it’s a heap of other things I deal with! OCD is something most people don’t see. I laugh about it when I can but it sucks 🙄 people understanding it better helps ❤️ I’m just sick of people using it as a phrase and making it sound like no big deal!

OCD is so much more than just being 'neat' or 'organized'—it’s relentless, exhausting, and often deeply misunderstood. The intrusive thoughts, the compulsions, the anxiety—it can feel like a never-ending cycle that others just don’t seem to get. Many of us have had experiences where even therapists didn’t fully grasp the depth of our struggles. I myself faced difficulty being misdiagnosed and my talk therapist not understanding the full extent of what I was going through until I found NOCD. So many prior therapists wrote off my symptoms as general anxiety, not realizing it was actually OCD all along. If you could sit down with a therapist who truly wanted to understand, what do you wish they knew about OCD?

OCD isn’t just about compulsions—it’s a mental battle that can be completely exhausting. The anxiety, doubt, and pressure to "get it right" can feel unbearable, especially when others don’t understand what’s happening beneath the surface. What’s the hardest part about living with OCD that others don’t see?

I never heard about people with OCD who have messy living conditions. Maybe this is why it took so long to accept my diagnosis. Although I really dont like how OCD is percieved at by the majority of people, I feel like Im weird or something because I dont fit into that stereotype. I understand that a lot of people with OCD have this issue, but why do I feel so different? If anybody else has/had this belief, what helps with feeling more comfortable? Everytime my mom points out my room, and how its messy- Its like I feel so lazy and useless. So then I often plan out everything I was going to do, step by step, always having a reasoning behind everything, because logic always comforts me. When I start tidying up my room, I go full out (Sheets, Laundry, Clorox, Candles, Vaccuming, Then I start going through the guinea pigs cage to rearranging all of their stuff) Yet always somewhere after doing a few things, I start feeling disgusting and almost shameful of myself. 99% of the time I end up laying on my floor sobbing, noting every little thing about my room. How my furiniture doesnt match, how i would rather have solid floor like hardwood or vinyl instead of the carpet, usually things i cant change… and then barely anything gets done in my room. I start to have a meltdown and often dont take care of myself even more afterwards. A piece of me feels like my thoughts are just me being a spoiled brat and wanting everything i dont have- meanwhile others dont even have a roof over their head. The other piece of me is just tired, just emotionally exaughsted. Please comment any thoughts or recomendations to maybe improve motovation and attitude towards doing long tasks.