So last night I wrote this on Facebook to my friends and family: Please don’t describe yourself as “so OCD” if you don’t actually have it and make it seem like less of a struggle than it genuinely is for people who do. OCD for me means my mind is always loud and running at a fast speed. OCD means insomnia and nights with 3-4 hours sleep. OCD means if I don’t want to be late in the morning I need to give myself 3 hours to get ready. OCD means everything around me has to be perfect or I can’t concentrate. OCD means carrying out the simplest task can cause a massive amount of stress. OCD means relief when I arrive at work because I have finally gotten myself out of the house, no matter how long it took! I get to work and my stress levels surprisingly reduce because one of the toughest parts of my day is over! And it’s a heap of other things I deal with! OCD is something most people don’t see. I laugh about it when I can but it sucks 🙄 people understanding it better helps ❤️ I’m just sick of people using it as a phrase and making it sound like no big deal!

Listen, I totally get it. It’s hard to hear a loved one obsessing over small, insignificant things. My mom tries to be supportive, but she gets so mad when I tell her what’s on my mind, and she just yells at me and says I’m crazy for thinking like this. So, I just sent her this, and I hope it helps: Mom, I know it’s really hard, but when I’m suffering with OCD thoughts, all I need is sympathy. Getting mad at someone for having OCD is like getting mad at someone for having a head injury. Please understand that I can’t help it, or else I would stop it. I need someone to say, “I’m so sorry that’s bothering you this much. It must be so overwhelming. It must be so hard to cope with this.” You could even ask me questions, like “What does it feel like? How much are you thinking about this? What helps you feel better?” I just need someone to validate my experience and sympathize, not tell me that I’m crazy or say my problems aren’t real. I’m aware these thoughts are crazy — that’s why I feel so alone and sad and scared. When you tell me my thoughts are crazy, it makes me feel even more like a freak. Sometimes, I just need someone to hold my hand and tell me I’m not alone.

Lately I’ve seen way too many comments under posts about OCD, especially the harm, POCD, and relationship themes that are incredibly misinformed and honestly harmful. People saying things like “these thoughts are unnatural,”or “you need to go get real help” and encouraging confession ***compulsions*** when they clearly have no understanding of how OCD actually works. Let me be clear: OCD involves distressing and unwanted thoughts, images, or urges. That doesn’t make someone dangerous. It makes them someone with a mental illness who is terrified of their own brain. Saying these people are “unnatural” or implying they’re broken only reinforces shame, and shame is the opposite of what helps anyone heal. If you’re commenting under OCD-related posts on an OCD ***app*** without understanding what intrusive thoughts are, or what compulsions can look like, or **how OCD can attach itself to the things we fear most** then please, stop. You are not helping. You’re reinforcing stigma and pushing people further into silence. OCD is already isolating. We don’t need more people moralizing or projecting trauma theory onto something they haven’t experienced or don’t understand. If you really care, go learn. Read about intrusive thoughts. Learn about ERP therapy. Or maybe just listen. Because some of us are barely hanging on, and comments like those don’t just miss the point, they can do real damage. I’m sorry if I come off too angry, it just really upsets me to see people speak on something they clearly don’t understand. End of rant. Thank you for reading 🤍

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.