So last night I wrote this on Facebook to my friends and family: Please don’t describe yourself as “so OCD” if you don’t actually have it and make it seem like less of a struggle than it genuinely is for people who do. OCD for me means my mind is always loud and running at a fast speed. OCD means insomnia and nights with 3-4 hours sleep. OCD means if I don’t want to be late in the morning I need to give myself 3 hours to get ready. OCD means everything around me has to be perfect or I can’t concentrate. OCD means carrying out the simplest task can cause a massive amount of stress. OCD means relief when I arrive at work because I have finally gotten myself out of the house, no matter how long it took! I get to work and my stress levels surprisingly reduce because one of the toughest parts of my day is over! And it’s a heap of other things I deal with! OCD is something most people don’t see. I laugh about it when I can but it sucks 🙄 people understanding it better helps ❤️ I’m just sick of people using it as a phrase and making it sound like no big deal!

It’s been 4 years. 4 years since I spiralled into a world controlled by rituals of 4, it started as 2, then 3, then 4 - my safe number. The amount of times I wash my hands after touching something dirty and how many repeats it takes until I feel ‘clean’, the amount of taps I make when closing doors to make sure I don’t ‘die’, the amount of times I rinse cutlery and plates before eating off them, the amount of times I disinfect things. My OCD subtype is contamination and I know 2020 lockdowns and the pandemic caused it to spiral but what started as a small ritual quickly became bigger until I no longer remembered what my life was like without the obsessive thoughts of germs and contamination. Could that person be ill? What if I go outside to the shops and someone makes me sick? You can’t answer the door to get that package from the delivery driver because he might make you sick, oh you can’t put the shopping away without disinfecting it first - what if someone has coughed on it? ‘I’ve got to wear gloves to do that’ I can’t, I can’t, I can’t. For 4 years I’ve lived like this, the ‘I don’t want to touch that’ or ‘I can’t go to this place because I don’t want to get ill and die’ ‘can you go do that for me as I don’t think I can right now’ - I know my OCD is irrational, I know the likelihood of those things actually happening are slim to none and I know my OCD stems from a need of control in my life because for so many years I felt like everything in my life was out of my control. But no matter how much I know of how many books I read, how many mindful practices I do the panic I feel after being ‘exposed’ or before exposing myself to a trigger is horrible. I’ve avoided and avoided and avoided to the point where something small now seems and feels like an impossible mountain to climb. It often feels like there isn’t light at the end of the tunnel on the dark days, when I know there is, it’s just going to take some time. Despite this on the outside to those not in my circle my life is a whole picture perfect painting. I run my own business, have a nice car, a nice house, a happy relationship and the of best friends and I’m so grateful for all those things but the reality is much different - behind closed doors and hidden in the closest is the OCD monster. I’ve decided now, after 4 years it’s time to change. I’m breaking the cycle and starting anew. The irony that 4 is my safe number too and it’s been 4 years since things started to get dark. I’m ready to lose control and find myself again. Why am I writing this? Honestly, I really don’t know. I found this app recently and hope it can be a help for my ERP practices I’ve been practicing on my own and it’s actually the first time I’ve ever openly posted or spoken about my OCD to date. For years I have lived with a huge amount of shame and embarrassment, hiding my issues from everyone - even my closest friends have no idea how much it impacts my day to day. I’ve felt shame as I can’t control my own mind despite knowing the thoughts are irrational and the rituals only provide temporary relief but each day again and again the safety blanket of the rituals wraps me up and takes over. The only person who truly knows how much it affects me is my partner, who has been by my side through it all, he’s burnt out and has seen first hand the impact it has had on me, my life and my happiness. I’ve sheltered him as much as I can, but I’m sure those who are in relationships with OCD can relate to the burnout their partner feels day in day out. So that’s my story, I hope those going through similar can take comfort in this and know they aren’t alone in it all as my OCD has made me feel so incredibly lonely, isolated and empty for 4 years too long. It feels freeing to finally share my monster and I hope I can connect with others who are on a similar journey to me. The biggest thing I want to be able to do again? I want to be able to hug my loved ones without feeling triggered, I want to go outside and enjoy life without worry, I want to live again. This app has made me feel seen for the first time in a long time and reading your stories, your experiences and how you’re coping is comforting, encouraging and makes me feel less alone ❤️ thank you for reading x

I started dealing with OCD when I became fixated on health issues, particularly the fear of contracting a life-threatening disease. If I experienced any kind of medical symptom, no matter how small, that even remotely hinted at something potentially fatal, it would drive me crazy, and I couldn’t stop obsessing over it. Then one day, I started having intrusive thoughts about accidentally hitting someone with my car, and I would end up driving in circles to check if I had. Eventually, I found myself overwhelmed by a flood of new obsessive thoughts and compulsions. One day, while I was at the park, a squirrel came near me, and for some reason, I felt like it attacked me. I Googled it and learned that squirrels could carry rabies, which spiraled me into a deep fear of rabies. I became consumed with the thought I received a bite from a squirrel, raccoon, or bat any time I’m in areas that trigger me. It started off only being inside then transferred to even being in my own home. This made me obsess over every physical sensation in my body, compulsively checking to make sure nothing was wrong. One compulsion that I hated the most would to be putting rubbing alcohol on me to make sure that I had no open wounds. Every day feels like I’m walking around in a fog of anxiety, constantly worrying that I won’t even make it to old age. Sometimes, it gets so overwhelming that I just want it all to end. It stresses me so bad at times to where my brain feels like I’ve been studying all day.

My mom will sit and listen to me for quite a while, but she interrupts a lot and gets angry/upset. While I appreciate her passion, it's often stressful. Every time I come to her, if I even *mention* OCD, she gets frustrated and says, "Everyone deals with these issues, you know. It doesn't mean it's OCD." And I repeat, "I'm not saying my issues are unique — I'm saying the way I respond to them is a problem." But she just shakes her head and says, "Okay, I need to get back to my day." Full context, I'm an adult, and I live with my boyfriend, but I'm staying at my mom's for the next month. After living away from home for years, I went back to living with her during the pandemic, and I only recently left to live with him. Honestly, I think living with her for so long in my adulthood really messed with me and made me feel like a teenager all over again. I feel like my mental growth is stunted, and that's part of why my OCD is so bad lately. Not blaming, just noticing. She doesn't seem to understand how relieving the OCD diagnosis has been for me, because it explains so so so many things I've struggled with for years, and it's exciting to have more resources that can help me. But I think she sees it as me finding an excuse to *not* work on myself, which is just untrue. I'm not going to let OCD hold me back or use it as an excuse, but I'm also not going to pretend it's not a problem when I know it is — I was even diagnosed through NOCD. The whole point being to fix it, not use it as a crutch. When I have an issue, it's unbearable. Any issue, big or small, feels just the same. I feel a sinking feeling, my mind races, my heart beats out of my chest. I end up running to my support systems, crying, ruminating for days on end. Then, months later, the same exact issue can feel like nothing anymore, because it's no longer an obsession. I'm sure everyone deals with issues in a similar way, but I *know* there is something specific and debilitating going on with me. This is reassurance seeking, but in the face of being told I'm making a big deal out of nothing, can someone diagnosed with OCD tell me if they relate to the specific intensity of these feelings??