So last night I wrote this on Facebook to my friends and family: Please don’t describe yourself as “so OCD” if you don’t actually have it and make it seem like less of a struggle than it genuinely is for people who do. OCD for me means my mind is always loud and running at a fast speed. OCD means insomnia and nights with 3-4 hours sleep. OCD means if I don’t want to be late in the morning I need to give myself 3 hours to get ready. OCD means everything around me has to be perfect or I can’t concentrate. OCD means carrying out the simplest task can cause a massive amount of stress. OCD means relief when I arrive at work because I have finally gotten myself out of the house, no matter how long it took! I get to work and my stress levels surprisingly reduce because one of the toughest parts of my day is over! And it’s a heap of other things I deal with! OCD is something most people don’t see. I laugh about it when I can but it sucks 🙄 people understanding it better helps ❤️ I’m just sick of people using it as a phrase and making it sound like no big deal!

The more I come here, the more I realize that ocd is a scary, weird, f*ed up illness, so I don’t get how organized people claim to have ocd or think it’s a cute or funny quirk. If they only knew how miserable life can be sometimes when you have to deal with an inner voice who’s constantly trying to ruin everything, and constantly making you feel scared to even wake up in the morning or go to sleep at night..

Trigger Warning My theme that I struggle with most is that I am developing schizophrenia. I wanted to share this anecdote with everyone in case someone is dealing with family/friends who do not understand what it is like to have OCD. One of the most effective ways for me to manage my OCD is to use humor to deal with it. Often times I will make jokes about it and recently a family member said, “you like having OCD, if you didn’t, you wouldn’t talk about it so much”. What he does not understand is that on the days I am able to laugh at my OCD I am so grateful because on other days all I want to do is lay in bed and worry about having schizophrenia. I didn’t know how to reply to that in the moment, but I want to say to him now is that the reason I make jokes about it is because some days it feels so real and I spend my day: Keeping track of every car in the rear view mirror to make sure that they are actually there and not hallucinations. Plugging my ears with my fingers to make sure that I am not hearing voices. Telling myself that if I have to carry a tray without dropping it to prove I do not have schizophrenia. Going over in my mind overtime I misspeak to try and figure out if it was just a mistake or if it was because I was going crazy and was speaking nonsense. Being very careful while typing because if I make a mistake it might mean I have schizophrenia. Lying in bed until five in the morning reading about schizophrenia. Thinking that if I can’t fall asleep by a certain time it means that my sleep schedule is being affected by schizophrenia. Trying to not look at any buildings where a person with schizophrenia may be treated. Constantly checking my emotions to see if I have them or if I lost them because I might have schizophrenia. Frantically searching for a sound that I heard to make sure it wasn’t a hallucination. Searching for something I may have seen out of the corner of my eye because it might have been a hallucination. Thinking that every time I have an itch it’s actually a tactile hallucination Spending hours thinking about wanting to die if I was diagnosed with schizophrenia. Putting my ear on machinery to make sure that I didn’t think that it was talking to me. Everyday looking up percentages and data and calculating them over and over again to calculate the likelihood that I will develop schizophrenia. Spend my day thinking if I actually am enjoying my activates or if I’m faking it because I actually have schizophrenia. Convincing myself that my food is poisoned because that is what a schizophrenic would think. Going over common schizophrenic delusions and checking to see if I believe them too. I am sure that a lot of people in this group struggle with this theme. Even though a lot of people think that OCD is just washing your hands a lot or organizing, know that I know how you feel and I have gotten through the worst of it.

*me preparing to share with loved ones or friends about my mental illness* *taking a deep breath and being brave* me: “So... I wanted to share something deep with you. I have recently been struggling with OCD.” them: “OH MY GOD ME TOO!!!! I hAtE iT wHeN tHiNgS aRe NoT cLeAn!!!!!!!!!”