Trigger Warning My theme that I struggle with most is that I am developing schizophrenia. I wanted to share this anecdote with everyone in case someone is dealing with family/friends who do not understand what it is like to have OCD. One of the most effective ways for me to manage my OCD is to use humor to deal with it. Often times I will make jokes about it and recently a family member said, “you like having OCD, if you didn’t, you wouldn’t talk about it so much”. What he does not understand is that on the days I am able to laugh at my OCD I am so grateful because on other days all I want to do is lay in bed and worry about having schizophrenia. I didn’t know how to reply to that in the moment, but I want to say to him now is that the reason I make jokes about it is because some days it feels so real and I spend my day: Keeping track of every car in the rear view mirror to make sure that they are actually there and not hallucinations. Plugging my ears with my fingers to make sure that I am not hearing voices. Telling myself that if I have to carry a tray without dropping it to prove I do not have schizophrenia. Going over in my mind overtime I misspeak to try and figure out if it was just a mistake or if it was because I was going crazy and was speaking nonsense. Being very careful while typing because if I make a mistake it might mean I have schizophrenia. Lying in bed until five in the morning reading about schizophrenia. Thinking that if I can’t fall asleep by a certain time it means that my sleep schedule is being affected by schizophrenia. Trying to not look at any buildings where a person with schizophrenia may be treated. Constantly checking my emotions to see if I have them or if I lost them because I might have schizophrenia. Frantically searching for a sound that I heard to make sure it wasn’t a hallucination. Searching for something I may have seen out of the corner of my eye because it might have been a hallucination. Thinking that every time I have an itch it’s actually a tactile hallucination Spending hours thinking about wanting to die if I was diagnosed with schizophrenia. Putting my ear on machinery to make sure that I didn’t think that it was talking to me. Everyday looking up percentages and data and calculating them over and over again to calculate the likelihood that I will develop schizophrenia. Spend my day thinking if I actually am enjoying my activates or if I’m faking it because I actually have schizophrenia. Convincing myself that my food is poisoned because that is what a schizophrenic would think. Going over common schizophrenic delusions and checking to see if I believe them too. I am sure that a lot of people in this group struggle with this theme. Even though a lot of people think that OCD is just washing your hands a lot or organizing, know that I know how you feel and I have gotten through the worst of it.

I was just thinking about how OCD tries to be tricky and switches themes on us!! The amount of times I have said to myself in the past, IF ONLY I HAD THE OLDER THEME I USE TO WORRY ABOUT BECAUSE THIS NEW ONE IS SO MUCH WORSE!!! Has anyone ever experienced this before? Once I started ERP therapy, I began to really start understanding what mental/physical compulsions I was doing to really keep my OCD alive! While I did this, I would also tap into my self-compassion bucket, even when it felt like it was dry at times, because it was SO easy to judge myself for because of the sheer presence of my thoughts. I would also have the most self-compassion for myself for those taboo intrusive thoughts that really felt so strong, ego-dystonic and real!!! My OCD would hop around from theme to theme and just when I thought I figured it out (compulsion) it would hop again and make me discouraged! I noticed for me that once I really understood my compulsions, it didn't matter when the theme switched as I could tackle it at its core. If I was able to stay steadfast and resist compulsions the best I could, I started to notice that my CONFIDENCE increased in the long run! I also noticed that some of the core fears were the same for different OCD subtypes. OCD treatment is hard BUT living with OCD is harder. I have experienced subtypes including Harm OCD, ROCD, Moral Scrupulosity, Sensorimotor, Contamination, Perfectionism/Just Right, Hit and Run, Magical Thinking, Real Event/False Memory. ERP therapy allowed me to really work on stopping these compulsions and switching from theme to theme. I was fed up with what OCD took from me and I needed to do something about it. I talked to an ERP therapist and it was one of the best decisions of my life. If you are struggling, keep pushing and get the help you deserve!! You got this!!!

Struggling with TOCD has probably been the hardest theme I’ve had to deal with so far For reference. I’m a gay male 20yr old Before this theme I was so open with my gender expression, love drag and used to do it for a time. A lot of my friends are trans women and my whole life is queer When this theme hit. It’s like I completely lost who I was. Questioning everything I enjoyed, not participating in anything because it triggered me so heavily. I went through a whole gender journey awhile back and the trans path never spoke to me when I looked into it. I love my physique and my face but now when I look into the mirror i feel like a shell of who I was. I can’t find any sort of pure enjoyment without the accompanying “what if” or “you’re this” intrusive thought I still enjoy how I look. I’ve not looked in the mirror and felt like anything is missing from me or needs to be taken away I just feel like a spectator in my life while this disease tells me I’m not who I know myself to be I affirm myself every day I know who I am and it may change in the future but that’s not important. It’s highly unlikely it will but it may! Giving into the uncertainty has been so hard but it’s worth it! My ocd has really picked up since getting into my first serious relationship I care about my boyfriend with my whole heart but over the course of our relationship my themes have included Health Relationship Irreality Harm I just want to be who I was again before this current theme it feels unbearable to live like this BUT! I’m seeking appropriate treatment and not giving into a majority of compulsions I just wanted to write this to see if anyone can relate and if they do. Know that you will overcome this! I know I will and you will too

These are some of my experiences with some theatrical flare to better depict how it feels. I decided to share this because when I saw this community I suddenly felt less alone in more human. Lovecraftian door Lurker: I don’t know the subtypes so I’ll just be talking about my relationship with OCD. OCD! that lonely woman in the ocean singing your praise's, sure she’ll love you forever! Of course she isn’t a siren planning on dragging you to the depths and tearing you to shreds. OCD! that haunting whisper in the wind calling you to fly! fly! OCD! that Lovecraftian abomination chanting at you from behind a locked door. Banging demanding you bow to it’s will. For me it latches on to my trauma and PTSD circling them like some demented teacup ride. A daily occurance for me is recalling the day I died when I was like 6 i remeber each detail of the day the kids i met the activtes we particapated in, the heat. The height of the slide before i plummeted to my death. This day consumes my life. “Thud thud!” I ask my parents about it often they tell me it never happened i tell them they weren’t there. Each time they lie and say I’ve never told them. My boyfriend whom I’ve been with for three years hears the story offten and often deals with me asking him if he’s seen me ask my parents. “Thud Thud” Each time he says yes and I asked how they responded “like you’ve never told them.” I constantly become afraid that my boyfreind will drown because he can’t swim. “Thud! Thud!” and because he can’t swim that the car will go off the road into some body of water and he will die. ”Thud! Thud!” I feel the water filling my lungs turning them into fire, the fear of reaching out my hands with no aid. “THUD! THUD! And he will die alone too and there’s nothing you can do to stop it! THUD THUD!” I scream that same fire fueling my rage my tears running down my face like gasoline igniting the thought spiral further burning deeper into my self hatred. I scream again banging my hands on my head. Wish and hoping it will shut up the thoughts.“why? Why?! WHY!” Sobbing until I’m nothing but a puddle. . . Ya know a few months ago I was depressed the thoughts became too much, so I wanted to get high. I thought it would make them stop “Thud! Thud!” So I took a gummy it was unpackage, from a friend of a friend so now the word dog, in reference to a person is a permit part of my vocabulary. And I have memories from being in a comma because it turned out to be DMT and my 6 hour trip end up feeling like 6 months of HELL. The ocd thoughts that i usually see, in a flash became so real that i just cried for hour terrified i was stabbing my eyes out dead and this was my purgatory for leaving the church. ”Thud! THUD!” I stopped using my favorite water bottle after that. Before the incident The bottle up against the wall with the straw to the side of the wall because the thought that would repeat in my head would be that because of my clumsiness I would trip and fall onto the straw and it would stab my eye out and kill me. I had this thought often I kept look up what to do if you accidently get something stab/stuck in your eye. “Thud! Thud!”