Trigger Warning My theme that I struggle with most is that I am developing schizophrenia. I wanted to share this anecdote with everyone in case someone is dealing with family/friends who do not understand what it is like to have OCD. One of the most effective ways for me to manage my OCD is to use humor to deal with it. Often times I will make jokes about it and recently a family member said, “you like having OCD, if you didn’t, you wouldn’t talk about it so much”. What he does not understand is that on the days I am able to laugh at my OCD I am so grateful because on other days all I want to do is lay in bed and worry about having schizophrenia. I didn’t know how to reply to that in the moment, but I want to say to him now is that the reason I make jokes about it is because some days it feels so real and I spend my day: Keeping track of every car in the rear view mirror to make sure that they are actually there and not hallucinations. Plugging my ears with my fingers to make sure that I am not hearing voices. Telling myself that if I have to carry a tray without dropping it to prove I do not have schizophrenia. Going over in my mind overtime I misspeak to try and figure out if it was just a mistake or if it was because I was going crazy and was speaking nonsense. Being very careful while typing because if I make a mistake it might mean I have schizophrenia. Lying in bed until five in the morning reading about schizophrenia. Thinking that if I can’t fall asleep by a certain time it means that my sleep schedule is being affected by schizophrenia. Trying to not look at any buildings where a person with schizophrenia may be treated. Constantly checking my emotions to see if I have them or if I lost them because I might have schizophrenia. Frantically searching for a sound that I heard to make sure it wasn’t a hallucination. Searching for something I may have seen out of the corner of my eye because it might have been a hallucination. Thinking that every time I have an itch it’s actually a tactile hallucination Spending hours thinking about wanting to die if I was diagnosed with schizophrenia. Putting my ear on machinery to make sure that I didn’t think that it was talking to me. Everyday looking up percentages and data and calculating them over and over again to calculate the likelihood that I will develop schizophrenia. Spend my day thinking if I actually am enjoying my activates or if I’m faking it because I actually have schizophrenia. Convincing myself that my food is poisoned because that is what a schizophrenic would think. Going over common schizophrenic delusions and checking to see if I believe them too. I am sure that a lot of people in this group struggle with this theme. Even though a lot of people think that OCD is just washing your hands a lot or organizing, know that I know how you feel and I have gotten through the worst of it.

I’ve come to a point in my life where I can be very happy. I have a safe environment, a loving community. Yknow I’ve really healed through or moved on from a traumatic past and as I say to my boyfriend from time to time like a broken record: I feel like nowadays the only thing bringing me stress or at times misery is myself. I am a fairly joyful person, when I’m comfortable I’m very goofy and like to sing dance and have fun. I find that I relate to so many amazing people I meet that are the nicest, most fun, elevating individuals, who also struggle with the hardest sometime debilitating things. It truly sucks because when I find those moments of peace I see the power of what an ocd mind could be as a person. We are people who may over analyze, but I myself also always find the good in people. And aye if in a moment I don’t think anything is doomly wrong and if I don’t try to understand it I may parish 😅 then that moment feels like the best one in the world. But on the other side of that when I’m not in a quiet mind moment and I’m left with myself to take control of what life in front of me looks like in or around me. I almost have been crumbling. Like I said at the beginning of this story here, the life around me is not so situationally stressful. And it’s also fairly simple. My boyfriend and I live together in a small cozy trailer with our two cats, he works full time very hard and I work part time where I spend as much time as I can working and then have a few days around the house. We’re saving for a home and are quite content with our lifestyle at the moment with work and being “lazy”, or resting and going out for fun now an then on our time off together. Most times though I do have day or two off during the week by myself, which usually goes one of only two ways. Like I said before I do like to work hard, especially now that I have a part time job that’s fairly easier than others I’ve had in the past. So I work 6-7 hours then drive home, air up my tires and wash my car sometimes because I like doing something after work while I still have energy.Or I go to the store. Come home make food, prolly nap and not really worry about too much because I’ve worked all day. But on my days off. I find myself waking up with a lot of anxiety. I usually fight it off by going back to sleep. But my OCD is heavily circled around shame. Even though I only sleep in till 10-11, 12-1 at the latest. I find myself thinking about how wrong (in nice terms) it is to do that. And the funny thing is the older I get (I’m a 21F). I’m not as pressured by this thought, even though it’s still stressful it literally just feels like a thought I can’t escape from. To put things in simple terms. I truly psycho analyze my actions breath by breath and my intrusive thoughts are critiquing those actions bit by bit. I’ve recently have started medication and it was a tremendous difference in the beginning and it helped me cope with the acceptance and letting go (f it or just care less) of those thoughts. But let’s say I forget to take it, or I wake up one morning by myself all day and I’m super tired or unmotivated. That day will feel truly debilitated. And now I’m definitely to the point where I’m battling that, but also have a thin vale behind that where I now know what is going on. And the thoughts are shameful for “not trying to get better or be better” Because I do Like I write a lot, and it truly is one of the best coping mechanisms for working through intrusive or obsessive compulsions. I could also write all day, and if I don’t listen to that ease of the anxiety from writing. And try to keep going the writing will turn into a compulsion itself I feel like I should not stop or critique it as well. But luckily I’ll hopefully find my place in explaining the cycle of what I do when my brain is very loud about things. The next time it’s too loud:)

I was just thinking about how OCD tries to be tricky and switches themes on us!! The amount of times I have said to myself in the past, IF ONLY I HAD THE OLDER THEME I USE TO WORRY ABOUT BECAUSE THIS NEW ONE IS SO MUCH WORSE!!! Has anyone ever experienced this before? Once I started ERP therapy, I began to really start understanding what mental/physical compulsions I was doing to really keep my OCD alive! While I did this, I would also tap into my self-compassion bucket, even when it felt like it was dry at times, because it was SO easy to judge myself for because of the sheer presence of my thoughts. I would also have the most self-compassion for myself for those taboo intrusive thoughts that really felt so strong, ego-dystonic and real!!! My OCD would hop around from theme to theme and just when I thought I figured it out (compulsion) it would hop again and make me discouraged! I noticed for me that once I really understood my compulsions, it didn't matter when the theme switched as I could tackle it at its core. If I was able to stay steadfast and resist compulsions the best I could, I started to notice that my CONFIDENCE increased in the long run! I also noticed that some of the core fears were the same for different OCD subtypes. OCD treatment is hard BUT living with OCD is harder. I have experienced subtypes including Harm OCD, ROCD, Moral Scrupulosity, Sensorimotor, Contamination, Perfectionism/Just Right, Hit and Run, Magical Thinking, Real Event/False Memory. ERP therapy allowed me to really work on stopping these compulsions and switching from theme to theme. I was fed up with what OCD took from me and I needed to do something about it. I talked to an ERP therapist and it was one of the best decisions of my life. If you are struggling, keep pushing and get the help you deserve!! You got this!!!

Struggling with TOCD has probably been the hardest theme I’ve had to deal with so far For reference. I’m a gay male 20yr old Before this theme I was so open with my gender expression, love drag and used to do it for a time. A lot of my friends are trans women and my whole life is queer When this theme hit. It’s like I completely lost who I was. Questioning everything I enjoyed, not participating in anything because it triggered me so heavily. I went through a whole gender journey awhile back and the trans path never spoke to me when I looked into it. I love my physique and my face but now when I look into the mirror i feel like a shell of who I was. I can’t find any sort of pure enjoyment without the accompanying “what if” or “you’re this” intrusive thought I still enjoy how I look. I’ve not looked in the mirror and felt like anything is missing from me or needs to be taken away I just feel like a spectator in my life while this disease tells me I’m not who I know myself to be I affirm myself every day I know who I am and it may change in the future but that’s not important. It’s highly unlikely it will but it may! Giving into the uncertainty has been so hard but it’s worth it! My ocd has really picked up since getting into my first serious relationship I care about my boyfriend with my whole heart but over the course of our relationship my themes have included Health Relationship Irreality Harm I just want to be who I was again before this current theme it feels unbearable to live like this BUT! I’m seeking appropriate treatment and not giving into a majority of compulsions I just wanted to write this to see if anyone can relate and if they do. Know that you will overcome this! I know I will and you will too