Trigger Warning My theme that I struggle with most is that I am developing schizophrenia. I wanted to share this anecdote with everyone in case someone is dealing with family/friends who do not understand what it is like to have OCD. One of the most effective ways for me to manage my OCD is to use humor to deal with it. Often times I will make jokes about it and recently a family member said, “you like having OCD, if you didn’t, you wouldn’t talk about it so much”. What he does not understand is that on the days I am able to laugh at my OCD I am so grateful because on other days all I want to do is lay in bed and worry about having schizophrenia. I didn’t know how to reply to that in the moment, but I want to say to him now is that the reason I make jokes about it is because some days it feels so real and I spend my day: Keeping track of every car in the rear view mirror to make sure that they are actually there and not hallucinations. Plugging my ears with my fingers to make sure that I am not hearing voices. Telling myself that if I have to carry a tray without dropping it to prove I do not have schizophrenia. Going over in my mind overtime I misspeak to try and figure out if it was just a mistake or if it was because I was going crazy and was speaking nonsense. Being very careful while typing because if I make a mistake it might mean I have schizophrenia. Lying in bed until five in the morning reading about schizophrenia. Thinking that if I can’t fall asleep by a certain time it means that my sleep schedule is being affected by schizophrenia. Trying to not look at any buildings where a person with schizophrenia may be treated. Constantly checking my emotions to see if I have them or if I lost them because I might have schizophrenia. Frantically searching for a sound that I heard to make sure it wasn’t a hallucination. Searching for something I may have seen out of the corner of my eye because it might have been a hallucination. Thinking that every time I have an itch it’s actually a tactile hallucination Spending hours thinking about wanting to die if I was diagnosed with schizophrenia. Putting my ear on machinery to make sure that I didn’t think that it was talking to me. Everyday looking up percentages and data and calculating them over and over again to calculate the likelihood that I will develop schizophrenia. Spend my day thinking if I actually am enjoying my activates or if I’m faking it because I actually have schizophrenia. Convincing myself that my food is poisoned because that is what a schizophrenic would think. Going over common schizophrenic delusions and checking to see if I believe them too. I am sure that a lot of people in this group struggle with this theme. Even though a lot of people think that OCD is just washing your hands a lot or organizing, know that I know how you feel and I have gotten through the worst of it.

I find it helpful to distinguish between pure O and OCD because, while I do have some triggers in my environment, they’re not consistent enough to really establish a theme, and most of the time I’m triggering myself with my own thoughts. For years I didn’t think I had OCD anymore because my OCD was so adaptive, and I had no physical compulsions, besides reassurance seeking and avoidance, but the compulsions were so covert that I rarely, if ever, noticed them. It wasn’t until reading about Pure O that I was able to expand my understanding of OCD as a WAY of thinking rather than a strict set of obsessions and compulsions. As I learned about how my OCD had creeped into the way I thought about practically everything, I became envious of those whose OCD was traceable in a specific theme, e.g. contamination (although I know this is an oversimplification, and people with contamination OCD don’t have an easier time with OCD at all), because I felt like OCD was always two steps ahead of me, distorting my thinking about things big and small. Now that I’ve gained some serious ground, I can see OCD in every area of my life through the way it distorts, but it’s still a constant battle, and I have to do mental exposures all the time. It would’ve been helpful though for people to explain that thoughts can also be triggers, because that distinction kept me in the dark for years. I thought “oh, I don’t have OCD, because there’s not a SPECIFIC trigger I can trace all my obsessions back to.” No—my obsessions are also my triggers, and they are also my compulsions, combining into one great maddening combustible mass that becomes so circular that it’s impossible to figure out where it started. I hope that people can understand this and not just think of OCD in its most stereotypical form. I suffered from harm and morality obsessions when I was really young, and I prayed and tapped and did all sorts of things that made it much easier to diagnose back then, but since then, 20 some odd years later, OCD had crept in the back door in a way that was much more difficult to track, and I spent countless hours and money on therapy that made me worse. It’s frustrating to think back on all the lost time, especially KNOWING I had OCD as a child, and that it duped me for so long afterwards in college and young adulthood. I’m more accepting towards it now, but I just really can’t emphasize enough how important it is for people to understand that OCD is not limited by “themes”, and that it uses anything to its advantage. The good thing is that once we realize that, the common denominator of OCD-thinking is easier to recognize in day to day life.

TW rant: suicidal OCD So this has been my major theme for the past year since my onset started. For clarification: I just have suicidal OCD, I’m not actually suicidal Incase there’s confusion about that. Anyways, I am so SICK of hearing about the topic of suicide which seems to be everywhere. You hear a story on the news that some celebrity did it, or other stories that people they knew did it or they themselves attempted it. You hear that people with mental illnesses or those who went through trauma or just being a middle aged white man have higher risks of suicide. On my explore page on Instagram, thanks to the OCD support pages I follow, I get suggested posts about other mental health related things and there’s usually posts about “signs of suicidal people” or whatnot. I’m soooo sick of it. Having suicidal OCD has been extremely hard and scary to have. It seems like anything is a trigger and the unwanted thoughts of it keep popping up (as OCD normally does). A lot of the time it’s aimed toward myself, but a big chunk of it is aimed toward my loved ones, like what if they decided to commit suicide? If I haven’t seen a family member in a little while (they’re chilling in their room or whatever) I get scared they might have killed themselves so I feel the compulsion to check on them, ask if they’re okay and happy etc. But it’s mostly at myself and I hate it so much. I think overall, whether this attack is aimed toward myself or others, it just absolutely terrifies me that anyone could just decided to do it and then just do it? It’s not like fearing a murderer coming to your house or an outside threat, but you’re the threat! And you can’t seem to protect your loved ones from it! I get these fears that I’ll become depressed (I’m not depressed) and eventually desire it or that I’ll spiral from fear and pain and eventually desire it, or that it’ll be like the movie Bird Box where the people in it (after seeing the monster) seemed to go on autopilot and killed themselves. I can’t even see words like “committed” or “attempted” without having my stomach jump. I struggle to get things out of my closet since having an open closet is even a trigger for fear. I just wish suicide never existed, I wish it wasn’t a thing, I wish I’d never think about it, I wish i could move on from this intense fear. (Disclaimer: I’m doing ERP for this and compared to before have been progress, but on my spike days it’s just so frustrating) Thanks for listening 😩

Before I was diagnosed with OCD I was certain I was loosing my mind. I convinced myself that I was schizoprenic or going slipping into pyschosis at any moment. It all started one day at work after having a few drinks the night before and chugging one of the most amazing tasting coffees of my life. I had my first panic attack. The best way I can describe it felt like my soul was leaving my body (I became really, really light headed). It was horrifying. This spiraled out of control with more and more panic attacks. I started having intrusive thoughts/what seemed like an intrusive urge to do ridiculous stuff. For example, I remember being in a spiritual development class one day and I had this intrusive urge/thought to smash all of the beautiful crystals. Something i'd never do obviously but the thought horrified me. Since, my OCD theme has jumped around a bit to so many ridiculous things. I had harm OCD for a while where I would see images in my head of stabbing someone or pouring boiling water on them. As ridiculous and silly as it sounds to an outsider, I can not even began to describe the grief and horror this created in my soul. I then had repetitive intrusive thoughts "schizophrenic" and "demon" over and over again gosh probably thousands of times a day. Again, certain I was crazy. I tried CBT which actually made it worse. I was terrified to speak to anyone about what was TRULY going on with me because I was certain i'd end up bakeracted and as a single parent I knew that couldn't happen. Plus I knew at heart I was not schizophrenic it just spiraled into this massive fear. It plagued my life every day for years until I FINALLY talked to another person that has OCD & send me an article about OCD where I began my research into leading to an eventual diagnosis. My compulsions were more mental acts like searching mental illness on Google for hours, avoiding triggers, and saying internal prayers or asking the universe to give me signs i'm not losing it in addition to nervous movements like fixing my hair or putting my hands near my face. I am still healing from OCD and the terror that its' caused in my past but i've learned to love myself and know that I am worth it (having mental health issues has always made me feel like it's my biggest flaw) and it's so beyond my control & despite my issues, i'm still pretty awesome! WE ARE ALL A LITTLE INSANE ANYHOW ARENT WE? Lol. Seriously, it's been an absolute game changer. I still have intrusive thoughts from time to time that create some anxiety but it's decreased so drastically. Most of the time I don't pay them any mind or it's tolerable. I am so beyond grateful for NOCD and understanding everything I can about OCD. My life will never be the same since that day but its still pretty damn good! I just want to add a couple other symptoms I experienced was dreaded fear I was going to start hallucinating at any moment. I'd question if I was really seeing/hearing things or if I was hallucinating, and constantly checking my mental state. Too happy? OMG I'm manic and that's going to cause pyshcosis. Too sad? Vice versa.. I hope this helps! Do the triggers, accept the uncertainly, accept your fear and get your life back.