When and how did you first discover you may have OCD? I'm beginning to think OCD is one of the most understudied, misunderstood mental health issues ever. I was diagnosed with generalized anxiety disorder about 6 years ago after I started suffering from panic attacks, but only just recently discovered my condition could be much more specific than that. I've been suffering from intrusive thoughts and complusions since I was a teenager with a variety of themes. And honestly this app and amazing community has opened my eyes to it. I'm curious if anyone else has had an experience like mine where they were just thrown into the general diagnosis category of just having anxiety and/or depression and is only just now coming to terms with having OCD? What has been your experience with the therapists on this app? I'm using another popular, pricey app for talk therapy at the moment, but so far 4 therapists have ghosted me on it so my confidence is feeling pretty shot. Has talk therapy and working with a therapist on here been successful for you?

Hello, I’m new to this app. I’ve always had an anxious brain, and I’ve had coping mechanisms for as long as I can remember. When I was a kid, from as early as I could spell, until I was probably early teens, I would constantly write words in my head along to the beat of music. It’s such a vivid memory because I never stopped doing it. The word had to perfectly match up to the lyric and I loved that it kept my brain busy. I grew out of that, but felt like good context. My anxiety increased drastically around ages 17-19, and I began therapy. I was diagnosed with generalized anxiety and panic disorder, due to having a panic attack nearly every day at that time. I overcame that as well, and now the panic attacks are every now and then, but the anxiety is constant, and some recent symptoms have led me to believe I might have some form of OCD. Maybe not. I’m trying to understand myself and get better so I joined this app to make sense of things. Lately I’ve been having really intense intrusive thoughts. I’m really embarassed and they make me feel like a bad person. Thoughts pop in my head seemingly out of nowhere. It will be an image of me harming myself or someone else in a really bad way. (Trigger warning) for example the other day I couldn’t shake the image of me putting a knife through my own forehead, although it’s not something I want to do. Or I’ll imagine someone killing me. I imagine my loved ones dying often. The thoughts feel so out of my control it’s insane. I hate them. Another persistent issue that isn’t as new is replaying social scenarios. I’m a hairstylist so this one is difficult since I meet a bunch of new people every day. I obsess over how I act and if people like me. I will impulsively say things all the time and they will haunt me for weeks. I question even my closest friends and family who show their love. I find myself so angry and numb and like I have so much built up emotion and a busy mind always. While doing my job I spiral really badly if any little thing goes wrong and it’s embarassing. I know there’s more but I can’t think of it now. I just want to feel better and like I’m not constantly battling my mind.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.

I’m kind of frustrated because for YEARS I’ve been trying to express my concerns. For about 6-7 years I’ve been concerned about having OCD. I’m not diagnosed and I want to talk to a professional to confirm whether or not I have it. I have been struggling with several symptoms over many years of my life and it has been absolutely distressing. I’ve expressed my concerns to two doctors. One of them pretended like they didn’t hear me and the other did give me scenarios that I experience. When I said yes to the ones that applied to me, she said “well it’s very normal for people to wash their hands a lot and check door locks” well yeah but what I experience is so much more than that and it’s been absolutely horrendous. I have super bad compulsions and intrusive thoughts, at some point I broke a TV because I felt like I had to throw these little coasters at it for 5 times. And then after those 5 times, the way I threw it didn’t feel right, so I had to do it again and again until it felt right and then it broke :/ The doctor later told me that they can recommend me to professionals but my mom didn’t want me to because of fear that I can get medicated. But I just want to talk to a professional to be able to express my concerns about it. I also feel bad about talking about what I experience because I don’t want people to think that I’m trying to self diagnose myself. I just want to be able to recognize my struggles and try to overcome what I go through. All I want is help. At some point I went to therapy and I had three sessions and then my mom pulled me out. But in those sessions I haven’t talked about my struggles with OCD yet, I was talking about other issues and my therapist was still trying to get to know me. :( Sometimes when I’ve talked to my parents they don’t really try to listen. Sometimes they tell me “well everyone has a little bit of OCD”. Okay, well I’m not talking about everyone, I’m talking about ME. And back when I struggled so much with violent intrusive thoughts, it was also a time where I felt like I HAD to tell my parents about every thought that I had. And my parents were concerned and thought that I was just in general violent. But I’m not violent, I don’t believe these things. And they STILL don’t want to hear me out on my concerns after all of that. I just want to feel validated with what I go through. I am convinced that I struggle with OCD, but I want to be SURE. I don’t want to feel like I’m self diagnosing. I want to KNOW what I’ve been experiencing all these years. I really do like this app because I feel like I finally relate to other people and that I can REALLY talk about my struggles while being understood. Whether or not if I do have it, I feel really understood and I really understand and relate with others. But anyways I hope I can figure this whole thing out one day😓🙏