- Username
- BlueGemini
- Date posted
- 3y ago
I was diagnosed 11 years ago at 14 but I’ve done compulsions from earliest memory at 6. I explained to my Peditrician at 14 she said I had ocd and referred me to psychologist and psychiatrist. Took the meds for a week went out my mind and stopped therapy and meds for the following 10 years or so. Mind you I took the meds for a week and had side effects for two years following( high prolactin levels and milk production with no pregnancy or baby) this last year I found a therapist through YouTube (Danielle Thornton) she changed my life and for the first time in 19 years I can say I have experienced little to no anxiety and only getting better by the day.
Thanks for sharing. It's amazing how it can start at such a young age. If I think long and hard, I'm sure I can think of things I did when I was younger that was unusual. But it wasn't until my teen years when it started to affect my life so bad that I dropped out of highschool. I just looked up Danielle Thornton on YouTube and I'm loving her playlists. I'll have to check this out.
@BlueGemini I got the package from her it’s about 1200 I think but I’m on a payment plan and at the point I was in it was worth my life. Put in the work and trust I’ve accomplished more in this past year than I have in the last 24. You just have to put in the work. If I can do it honestly anyone can
Never officially diagnosed but my therapist has mentioned treating my anxiety “like” ocd. I first realized mine postpartum with harm ocd directly related to my firstborn child. Lots of intrusive thoughts and compulsions to avoid such harm. As I’ve learned more about it I’ve come to realize that I’ve suffered ocd tendencies basically my whole life in a variety of themes
I’m sorry to hear that girl. I hope you’re doing better and can continue to recover
I feel this. My husband and I have been on the fence if we want to start a family or not. He's open to it, and I know deep down I'd be a good mom, but I hold myself back. I'm scared to conceive on medication and I feel like I'd be genetically predisposing my baby to develop mental health issues like mine. Leave it to anxiety to be overprotective of a baby I don't even have. 😅 I hope you find some relief soon.
Well I’m a late onset person which really sucked not have to deal with such a hard thing my whole life. I was diagnosed with ocd at age 36 which was may 2020. I had a nightmare about stabbing my spouse and it sent me into a frantic panic attack as I didn’t know what was happening to me. Immediately sought help because I was so afraid it was something I wanted to do since I dreamed it but it wasn’t who I am. Shit has been a heck of a year with all kinds of intrusive thoughts over harm. Can’t believe a condition like this exist but I’m taking it in stride day by day. Been in therapy ever since last May.
Not sure if I had ocd when I was younger but I did have some crazy taboo thoughts from time to time when I was younger and I found out that a great aunt of mine had ocd before they called it ocd.
@Dre83 That sounds so scary and I can imagine how distressing that must've been. I just turned 34 myself so I relate to your late diagnosis. I read somewhere that the human brain doesn't fully develop until age 25 so it doesn't surprise me that late diagnoses happen. But it doesn't make it suck any less.
@BlueGemini Yeah it was and sometimes it’s still scary cause I’ve yet to get them to go away. We just moved from our house cause I thought it would be but I realized I was just trying to run from the problem in hopes I could make it go away. Now I’m afraid that something is in our new house shit is so crazy. Every time my dog barks I feel like she knows something I don’t know. It’s crazy I know
@Dre83 It's not crazy, but I know it feels like it. I just moved into a 102 year old house and am still settling into it. My dog will bark at random stuff and my cat sometimes stares at the wall and I'm always afraid I'm going to discover a ghost or demon in the middle of the night or something. 😅 I have the most terribly overactive imagination mixed with a super Christian upbringing so it's the best blend of insanity.
@BlueGemini Yoooo I feel the same way. I wasn’t brought up Christian but I am a Christian now. This dang brain is cray cray lol
Hi, this is my first time posting here, though I have been looking at the app for support for a while already. I have pretty bad social anxiety which unfortunately extends to even being in forums online as well, so I have been putting off sharing on here. I am in my early 40s and have struggled with OCD in various forms since I was a child. In my mid-teens it exploded into very tormenting Pure O. It is complicated by some comorbidity with other diagnoses — social and generalized anxiety, depression, and CPTSD. The sad thing is that I’ve actually experienced so much harm over the years at the hands of uneducated mental health professionals who didn’t have a clue about OCD or how to work with it, and i feel like I carry this extra burden of shame and trauma from those bad experiences on top of the grueling daily struggle I have with my mental health diagnoses. I am set up to have an initial consultation appointment soon with a therapist who is a psychologist in private practice. They seem kind and very knowledgeable, and so I am very hopeful that we will be a good fit for working together. But I am still haunted by those past bad experiences, and so the whole process of starting with someone new is nerve wracking. Has anyone else had bad experiences with therapists who didn’t understand OCD or who had only a superficial understanding of it? Thanks for reading!
Hi! My name is Mikhail. I have been diagnosed with OCD for a couple years now, and this year I started ERP therapy at NOCD. I first found out about Pure O from downloading NOCD's app and seeing other people post about their experiences with overthinking, fear, and shame. While I had been diagnosed with OCD before, I had never heard about Pure O, where the compulsions manifest themselves more internally. I was at a point in my life where I was isolating myself and afraid of the thoughts I was having all day every day. This eroded away my self-esteem and identity but the skills I learned doing ERP have helped me feel like myself again. I recommend doing ERP to anyone afflicted with OCD, as it has helped me train the mental muscles I needed to get back to my life again. NOCD specialists meet you where you are at and help you get better on your own terms. I have taken the opportunity to be an advocate because once I found out I wasn't alone with Pure OCD, it reignited the faith I had in ever recovering. Learning about other people's experiences and sharing my own has helped me live more authentically. I want to do anything I can to encourage others to recover as well, because I know it is possible and that this condition is manageable. Going through NOCD treatment invoked genuine compassion in me not just for others, but for myself, which is something I never truly felt before. If you have any questions at all, please reach out to me. I feel purpose in connecting with people about OCD and getting better together. Believe me, you are not the only one who has thought that crazy thing and then thought about thinking about it 17 more times until it impacted your behavior!
Hey everyone, my name is Stephen Smith and I’m the Founder and CEO of NOCD. I also have OCD, which is why I founded the platform. Specifically, I have “intrusive thoughts OCD”- relationship-based, sexual, and religious thoughts that made me at one point question many fundamental elements of my character. Although Google searching for answers to my thoughts was my most noticeable compulsion, my compulsions were mainly mental, where I would reassure myself, mentally review past events, pray, and even check my body for different sensations. Since I didn’t suffer with the “standard symptoms”, I ended up getting misdiagnosed 5 times which caused me to get really severe, drop out of school, and become housebound. While housebound, I started searching my thoughts online which led me to realize that I had OCD. Then, when searching for evidence-based OCD treatment, I stumbled upon exposure and response prevention (ERP) therapy. Although ERP is extremely effective (about 80% of people with OCD see a significant reduction in symptoms after going through treatment), there was only one therapist in my area who specialized in it. She had a 7-month waitlist, charged a high amount per session, and didn't accept my insurance - making the care pretty much inaccessible for me. I got lucky though since my mom, who was desperate at the time to see me get better, found money from a family friend to pay for my treatment. She also called the clinician and begged her to get me off the waitlist. If it wasn’t for her, I probably wouldn’t be here today. After doing ERP with the provider for 12 weeks, I ended up getting better- so much to the point where I was able to go back to school, finish up my football career (I was a college quarterback), and eventually complete my degree. Because I managed the OCD fears by accepting the uncertainty behind them (a core principle behind response prevention), the anxiety over time went away, and the thoughts decreased in frequency as well as in severity (since they didn’t really matter to me anymore). After that happened, I ended up returning back to normal pretty much- feeling as good as I did before my severe OCD onset. That’s when I started pondering the question, “If OCD is so treatable with a good ERP therapist, then why isn’t treatment more accessible to people going through the condition?” It’s a question I’m sure many of you are currently asking or have asked before. Now to the good news: There is no more need to ask that question. Now inside the NOCD platform, you can do live, face-to-face therapy sessions with a licensed therapist who specializes in treating OCD using exposure and response prevention (ERP). After signing up, all you need to do is open up your phone or laptop and start the session with the ERP therapist. It’s all video conferencing. It’s the solution that I always wanted when I was going through treatment, so I hope you can find value in it if you are suffering- especially those who are stuck on a very long waitlist or who live hours from care. Anyways- if you have questions about doing ERP therapy with a NOCD telehealth provider or with another therapist feel free to ask them here. I will definitely give you the pros and cons. Much love!
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