So I heard one my best friends saying she has OCD. All she did was considered perfectionism and she was organizing peoples stuff on school. I do organize my suff but as a compultion and it is not like it bothers me , I HAVE to, I don’t think she understands. I would be torturing myself instead of organizing ppl stuff, is not like she didn’t want ppl to watch it.I think she wanted attention or smth, but I felt offended about it .

I never heard about people with OCD who have messy living conditions. Maybe this is why it took so long to accept my diagnosis. Although I really dont like how OCD is percieved at by the majority of people, I feel like Im weird or something because I dont fit into that stereotype. I understand that a lot of people with OCD have this issue, but why do I feel so different? If anybody else has/had this belief, what helps with feeling more comfortable? Everytime my mom points out my room, and how its messy- Its like I feel so lazy and useless. So then I often plan out everything I was going to do, step by step, always having a reasoning behind everything, because logic always comforts me. When I start tidying up my room, I go full out (Sheets, Laundry, Clorox, Candles, Vaccuming, Then I start going through the guinea pigs cage to rearranging all of their stuff) Yet always somewhere after doing a few things, I start feeling disgusting and almost shameful of myself. 99% of the time I end up laying on my floor sobbing, noting every little thing about my room. How my furiniture doesnt match, how i would rather have solid floor like hardwood or vinyl instead of the carpet, usually things i cant change… and then barely anything gets done in my room. I start to have a meltdown and often dont take care of myself even more afterwards. A piece of me feels like my thoughts are just me being a spoiled brat and wanting everything i dont have- meanwhile others dont even have a roof over their head. The other piece of me is just tired, just emotionally exaughsted. Please comment any thoughts or recomendations to maybe improve motovation and attitude towards doing long tasks.

When I hear the others might think that they could also have ocd when I tell them I could have it or they want to say they have it after I’ve got diagnosed with, without knowing how I feel it is like why do I always have to have something and then they say they also might have it are they supporting, joking or what?

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.