“What if I don’t have OCD at all, and I’m just in denial?” Read this: https://ocdla.com/doubt-denial-ocd-5342 An excerpt: “Many people are under the misguided belief that all thoughts have important underlying meanings. Those who struggle with the thought, “What if I am in denial and don’t really have OCD at all?” might believe that this thought represents some underlying truth trying to break through from their unconscious. But the truth is that the vast majority of our thoughts are not intrinsically important. The human brain generates an endless stream of thoughts, including some that are deeply bizarre and unnerving. Does it mean anything that I just considered sticking a banana up my nose? Some would have you believe that this represents some inner urge, or has some secret meaning that needs to be ferreted out. We would posit that this thought, like so many of its brethren, is merely an odd byproduct of being a human being with a functioning brain. Some people with OCD worry that accepting their diagnosis is somehow a “cop out”. This is particularly noteworthy as, in order for this to be true, an individual would have to mimic an extensive set of OCD symptoms of which they were previously unaware. Similarly, many people with OCD fret, “What if ‘deep down’ I know that this is my reality and I’m refusing to accept it?” We wonder where this “deep down” place is located, and would argue that it does not exist. One either knows something or does not.”

I'll start by saying, I have not been clinically diagnosed, as I do not have the funds to see therapists or psychiatrists in my current situation. Once I'm in a better spot, I very much intend to. That to say; after months and months of having issues with anxiety, specifically health related, my partner was the one that mentioned OCD. I did have some somewhat OCD related behaviors in my youth, though those likely could be explained by potentially undiagnosed ASD (as my mother is on the spectrum as well as a sibling, both diagnosed.) But I never considered OCD taking form in a health sense. I posted earlier about how I've had 4 days of pretty minimal anxiety and intrusive thoughts, and it has led me to doubt the OCD label I've been working at treating? I don't want to be the person that identifies themselves with a disorder they don't have, which is why I hesitate to self diagnose with OCD or ASD or anything else. At the same time, I've read that a lot of even clinically diagnosed people with OCD doubt their diagnosis. It makes me wonder if I will always have this doubt, and if that means it is worth it or not to get tested? I know that if I do, they can actually do ERP (whereas I've been self taught and self guided so far) so that would be worth it...

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.

The subject of OCD matters to the sufferer because it feels like confirmation that they are fundamentally unlovable and unwanted—as if even existence itself doesn’t want them. They feel like an error, carrying a deep sense of guilt and shame, as if they were inherently wrong. They suffer from low self-esteem and a deep internalized shame, because long ago, they were fragmented and learned a pattern of fundamental distrust—especially self-distrust. But the real trouble doesn’t come from the content of the most vile or taboo thoughts. It comes from the fact that the sufferer lacks self-love. That’s why, when you begin to walk the road to recovery, you’re taught unconditional self-acceptance—because that’s what all sufferers of OCD have in common: if you aren’t 100% sure, if there isn’t absolute certainty, the doubt will continue to attack you and your core values. It will make you doubt everything—even your own aversion to the thoughts. You have to relearn how to trust yourself—not because you accept that you might become a murderer someday—but because you enter a deep state of acceptance about who you truly are. It’s not about becoming a monster at all. It’s about making peace with what lies at the root of the fear. Making peace with the guilt. With the shame. Making peace with yourself and the person you fear you might be. Because that fear is not rooted in reality. It’s not rooted in any true desire to act. It’s rooted in your identity—specifically, in what might threaten it. That’s what confirms the belief that you are fundamentally wrong. And OCD fuels that belief by using intrusive taboo thoughts to attack your very sense of self. But then I wonder: let’s say, for example, someone fears being or becoming a sexually dangerous person—how could that person practice unconditional self-acceptance? I would never accept myself if I were to harm anyone—the thought alone makes me want to cry. I know it’s not about whether or not someone acts on the thought. It’s about the core fear underneath it. So how do you accept yourself when the thoughts—and the feelings around them—feel so completely unacceptable ?