- Date posted
- 5y ago
- Date posted
- 5y ago
The goal is to not ‘overcome’ uncertainty but to accept it. I practice daily how to recognize when my actions (compulsions) are a Response to thoughts or feelings in and effort to solve something. When I recognize the pattern, I stop the compulsions and tell myself that whatever I’m worried about may or may not happen, but I’m living my life anyway.
- Date posted
- 5y ago
I experience thoughts without anxiety often and I try to resist the urge to define that as having meaning. For example: if I don’t have anxiety when I have the the thought ‘what if I’m a pedophile’ does that mean I’m accepting it!?! I see this as a trap. So I think...maybe it means I’m accepting it, maybe not, there’s no answer so I just leave it without pursuing certainty.
- Date posted
- 5y ago
Chrissie it is so wonderful to see you on here! I watch your videos on YouTube and I admire you so much. I only hope I can be like you one day, and be able to accept the uncertainty and live my life despite these horrible intrusive thoughts of harm. I am in a very dark place at the moment and feeling the lowest I have ever felt. I know exactly what to do to help myself but can't find the strength or motivation and feel absolutely terrified of getting out and facing my fears. Triggering situations that cause my thoughts of harming others bring me crippling anxiety I'm not currently getting any therapy and am on a very long waiting list with NHS (UK) I've been looking into private therapy but can't find someone who can deal with my situation which makes me feel 100 times more depressed and anxious. . It's very hard to feel positive right now. ? I'm at such a low point I don't feel I will ever get out of it especially with no professional help. ? I really admire you and everything that you do.
- Date posted
- 5y ago
I can’t really identify the exact scenario of new intrusive thoughts during a panic attack, but I do know that if I didn’t have anxiety alongside any intrusive thoughts, then they wouldn’t feel intrusive! It’s the anxiety and emotion that attaches to them that makes them feel relevant. Our job is to choose to make them irrelevant and it will in turn reduce the anxiety.
- Date posted
- 5y ago
I’ve learned that I can’t control which compulsions engage in, but I can choose whether or not to engage. When I experience an Intrusive thought and my immediate response is to do a compulsion to alleviate the anxiety or reduce the fear, I have to actively choose to not engage. It doesn’t come naturally to me because this is how my brain is wired. So I accept that reality and practice mindfulness in an effort to recognize when the urge to compulse happens and stop it before I engage.
- Date posted
- 5y ago
I’m sorry you are struggling so badly right now. I know how it feels to feel like all hope is lost. But it is absolutely possible to learn to manage this. Check out ‘Freedom from Obsessive Compulsive disorder’ by Jonathan Grayson while you wait for your therapy appointment. It’s a workbook that can help!
- Date posted
- 5y ago
Yes! I have Intrusive feelings in the form of emotions as well as physical symptoms such as Groinal movement or exacerbated pain in places when I’m worried about health or injury. Sometimes sadness is intrusive too and I worry, if it was ocd, I wouldn’t feel actual sadness?
- Date posted
- 5y ago
To anyone interested, I recommend the book *Overcoming Unwanted Intrusive Thoughts* by Sally M. Winston and Martin N. Seif. It’s helpful not just for Pure-O. I’ve had several different forms of OCD over the past two decades and that book spoke to all of them by speaking to the fundamental issue – intrusive thoughts – and explaining the science behind it. After all, the externalized compulsions of OCD are fundamentally just a (self-defeating) effort to end the intrusive thoughts. It was very powerful and helpful for me.
- Date posted
- 5y ago
As far as becoming numb to the thoughts, I try to look at it as OCD doing whatever and however to keep me stuck. I try to pay attention to whether I’m ruminating or mentally reviewing to find proof or disproof. If so...I can safely bet it’s a compulsion. Remember, there’s no way to ever prove thoughts are real or not, the more you try, the worse they get.
- Date posted
- 5y ago
Tetris:Pure O can do just about anything to keep you stuck in the doubt feeling.
- Date posted
- 5y ago
Chrissie I know you are bombarded with questions and comments lol. But do you think it's possible to practice erp safley without a therapist as so many like myself are left waiting without a therapist and really want to start to help ourselves ? it's just a very scary thing to do.
- Date posted
- 5y ago
Hi Chrissy, I lost my job in march due to OCD/ANXIETY. I took long to do tasks, I would count or stare at certain things for a while. I really want to look back for work in September, but I feel worried my OCD/Anxiety will act up. I need some advice. I thought I was doing ERP correctly, but just last month I realized I wasnt doing erp the right way. I tend to analyze. I try to not pay attention to the thoughts. When my anxiety acts up, ocd tends to act up. I feel overwhelmed and confused. Ocd makes the simplest tasks hard to do. Like brushing my teeth - I tend to count and analyze. Same with doing the dishes. Any advice would be helpful? Thanks.
- Date posted
- 5y ago
How do you learn to overcome uncertainty? Even when my anxiety subsides when resisting compulsions, the fear of all the what ifs usually lead me to feeling uneasy and/or depressed.
- Date posted
- 5y ago
Hi! Pure O is a nickname that was coined by Dr. Steven Phillipson to identify the community of individuals with OCD who have intrusive thoughts and mental rituals. Many of the themes revolve around violent, sexual, blasphemy, scrupulosity, health, relationships, but there’s no limit to what the theme can be!
- Date posted
- 5y ago
I identify compulsions as anything I am doing in an effort to prove or disprove something is real or not. I got wrapped up in ocd with an injury of mine and it took a while to see how badly the ocd was because the injury was real! But I recognized the constant checking and rechecking and avoidance of things that might make it hurt as compulsions and started to eliminate them.
- Date posted
- 5y ago
Check out my website as I do consultations for referrals to ocd experts worldwide. www.chrissiehodges.com. Oh! And Stu from The OCD Stories and my nonprofit OCD Gamechangers will be in the UK hosting an event for ocd on October 12th! My first European visit!
- Date posted
- 5y ago
I don't have intrusive feelings but I have intrusive thoughts which go against God and the holy ghost and I want it to go away I've typed up something asking anyone to help me that's why I'm here now
- Date posted
- 5y ago
Did you felt periods of time where you still had the thoughts but they didn't feel like anxiety ?
- Date posted
- 5y ago
I’m not sure I understand the question?
- Date posted
- 5y ago
I've read so many different things, doing scripts, accepting uncertainty, trying not to pay attention etc.. literature constantly ranks ERP as the single best thing against OCD but pure OCD erp is tricky
- Date posted
- 5y ago
Any tips on Relapse prevention?
- Date posted
- 5y ago
Hello Ms Hodges, thank you so much for helping. I was wondering, have you ever met people's with HOCD who, during therapy, said they had felt like they had changed or that they felt different. When by ocd spikes that happens to me and I'm often scared that what I'm ocd says. I have found it has happened after therapy but it goes away I think. I'm sorry if I sound like I'm seeking reassurance, if so, please disregard
- Date posted
- 5y ago
How does ERP work with a Pure O that tends to switch themes? I understand that ERP works by exposing yourself to the intrusive thoughts without allowing compulsions, but how can that be successful when the obsessive thinking changes themes often.
- Date posted
- 5y ago
I’m going to attempt to answer these in order! I do not recommend doing ERP on your own. If you want to use workbooks by Grayson, Abramowitz, or Hershfield that is a good start. Otherwise, I would definitely suggest working with a professional to learn how to manage ocd.
- Date posted
- 5y ago
Chrissie, thank you for all you do! It’s super cool that your avi on here looks just like you, hair and all ☺️
- Date posted
- 5y ago
Thank you for your reply Chrissie I will check that out! I have read Jon hershfields book overcoming harm ocd and although it was a fantastic book and I started to feel more positive, in the end I felt worse. I'm on a year waiting list. Can't seem to find a private therapist that can help with my situation I've contacted so many and they all say they can't help. Just feel myself slipping further under and can't see a way out. I just don't know what to do.
- Date posted
- 5y ago
I just wanted to say, Chrissie I have beeb watching your videos for quite a while now, and I’m so grateful we have you. I will say though ironically enough I used to watch the same videos for reassurance seeking, but luckily I think even my OCD got tired of that haha. Thanks for all the replies! ?
- Date posted
- 5y ago
I so wish I could do that. The anxiety that comes with my intrusive thoughts and feelings is just so overwhelming ? it scares me so much
- Date posted
- 5y ago
So what is the exact steps for ERP for pure o?
- Date posted
- 5y ago
Is there guidance on differentiation obsessions with poor insight vs psychosis or anxiety based psychosis?
- Date posted
- 5y ago
Hi Is it normal to get depressed about life when you don’t have obsessive thoughts because of Prozac working
- Date posted
- 5y ago
Hi Chrissie! Im having hocd since december. How you can treat the feeling of losing your own identity as a woman? This theme by itself is driving me crazy.
- Date posted
- 5y ago
My suggestion would be to work with an ocd therapist to make sure you are doing ERP correctly. The most important part of ERP is the response prevention. It’s difficult to know how to do this without guidance from an expert.
- Date posted
- 5y ago
Hi Chrissie, thank you so much for everything you do to help others suffering from OCD. I remember being on my absolute lowest point whenever I wasn't diagnosed with OCD yet and I stumbled upon on of your videos on YouTube on POCD. It was such an eye-opener and has taught me that I'm not a monster but just constantly being fooled by my disorder. My sister is currently pregnant and its making me really anxious. Should I tell her about my fears? I'm scared it might confuse her in the wrong way.
- Date posted
- 5y ago
Is numbness a part of ocd or caused by ocd?
- Date posted
- 5y ago
Yes i meant emotional numbness like doesn’t feel anything in situations that normally you should feel things in it
- Date posted
- 5y ago
Pray for me and promise i will pray for you wish you all the best. I love you
- Date posted
- 5y ago
I love you tetros!
- Date posted
- 5y ago
Chrissie, I sense a huge emphasis from you on seeing a specialist before doing ERP. The fact of the matter is that there are no specialists around where I live and there would be affordability issues if there were (or if there are through other means like Skype). I am not going to use a lack of having a specialist as an excuse for not doing ERP!
- Date posted
- 5y ago
How do I stop replaying a "dirty" scene from my childhood? I can't stop obsessing over it and I really want to confess it to my therapist but it's so gross that I don't want to at the same time. I don't know what to do.. ?
- Date posted
- 5y ago
Hey- so I've got over my theme- but i have this constant omnipresent anxiety that still says X (Worst case scenario) may happen. And it's very annoying
- Date posted
- 5y ago
Happy to have you here Chrissie your work has been invaluable and I would love to learn more about how I can do work like you to help others with OCD!
- Date posted
- 5y ago
What is pure o
- Date posted
- 5y ago
Sorry, I know I already asked a question but I wanted to know if you’ve ever feared of falling back into doing a certain compulsion again because that compulsion ended up making you feel extremely guilty and more scared? Like “what if this means I’m losing control etc etc...”
- Date posted
- 5y ago
Is pure o can make is feel numb or can i have these horrible thoughts and don’t feel bad about it?
- Date posted
- 5y ago
Well , Chrissie . I've been dealing with HOCD for somewhat of a month now . And in the beginning the thoughts gave me paralyzing anxiety and I couldn't think straight. But now the thoughts don't give me anxiety but they make me uncomfortable and I feel like I'm noticing girls more which is not a comfortable feeling. Is it possible to grow used to these thoughts ? I'm sorry if this sounds like I'm looking for reassurance.
- Date posted
- 5y ago
Thanks for that link Chrissie I did have a look its not something I can afford financially as I'm out of work I wish i could but I can't. Thanks anyway appreciate your help and advice.
- Date posted
- 5y ago
I have terrible really terrible thoughts and i feel nothing or bad about it . Can pure o make me don’t feel sad or guilty?
- Date posted
- 5y ago
...
- Date posted
- 5y ago
Chrissie, because of your videos, you have enabled me to be able to help my boyfriend understand how I suffer in a much clearer light and I am so so grateful for that! <3 I've had one of the worst weeks recently with my OCD and I'm really struggling with ERP, can you suggest any materials or anything that can help me to really get to grips with ERP so that I can do it properly? :)
- Date posted
- 5y ago
The thing I hate most about my thoughts is that they become more like physical feelings and urges I hate to use the word urge because it makes it sound like it's wanted when it totally isn't. But when they become intrusive feelings that's what Ive struggled the most with in my harm ocd
- Date posted
- 5y ago
I did an acceptance and motivation script after reading jon hershfields book overcoming harm ocd, but when it got to the flooding script I got half way through and couldn't continue it scared the hell out of me like thinking some how writing it down would make me do it. I couldn't carry on with it
- Date posted
- 5y ago
Are there ways to differentiate between rumination that is obsession based, depression based, or related to go polar? I had a crisis episode and can remember humming a specific song and I believe it was a mental compulsion.
- Date posted
- 5y ago
I watch you all the time on YouTube. Always love your videos.
- Date posted
- 5y ago
Any specifics that you can provide about how to do mindfulness in managing your OCD will help me. It is possible that you have provided some specifics in your answers to some of the questions that have been asked. I really appreciate the information you have provided!
- Date posted
- 5y ago
Hi Chrissie! Any advice for a suicidal OCD warrior ?
- Date posted
- 5y ago
Hello Chrissie, any advice on dealing with false memory OCD? Thank you
- Date posted
- 5y ago
Your video about the topic help me a lot to understand how this works! Thank you for the suggestion :)
- Date posted
- 5y ago
I want to thank you for your continued advocacy and support in the community! It is so helpful a lot of us out here. I hope one day to be able to talk about my OCD so openly to help others! So much appreciation ☺️
- Date posted
- 5y ago
ERP for Pure O is the same as ERP for any manifestation of OCD. People have a misperception that it’s harder to treat, but that isn’t correct. You have to have a therapist who is specialized to treat it, and practice learning different behavior responses daily to learn to manage it.
- Date posted
- 5y ago
I’m not sure how to differentiate the nuances of compulsions as I’m not a therapist. My general rule of thumb is, it it looks and feels like a compulsion it probably is, so the goal is to eliminate it.
- Date posted
- 5y ago
Hey Chrissie, how do I stop confessing for reassurance to my mother? I fear my past mistakes coming to haunt me or think of the worst case scenario. My mom is a controlling perfectionist and I always got scared of her reactions growing up. Now she is used to things I’ve done and has become more self aware but I lose sleep and can’t function if I try to resist the urge to confess.
- Date posted
- 5y ago
Is it an OCD trait to be quick tempered?
- Date posted
- 5y ago
What does you mean I’m sorry I don’t understand
- Date posted
- 5y ago
I feel pain in my heart right now?
- Date posted
- 5y ago
Well I really don’t deserve to be loved but thank you❤️
- Date posted
- 5y ago
Hi Chrissie, I've suffered with HOCD, and looking for a therapist privately in London which I'm finding difficult. Do you happen to know of any ocd therapists in London or know of anyone who might know a good ocd therapist in London? Also do you offer phone or Skype sessions for those abroad?
- Date posted
- 5y ago
Hello Crissie, and thank you for all the work you do in the community of ocd sufferers <3 Hugely appreciated! Have you ever experienced/heard of the kind of intrusive thought (?) that is kind of a thought but with extreme "sensorydoubt" : very hard to explain but for example having suddenly a thought of touching someone inappropiately/ doing sthg very inappropiate to someone and if there is a person next to me or on my lap (child) thst thought then leaves me with wonder whether I actually did do the thought or if it was just a thought. Almost like doubt my sensory memory, where my hands have been , and can I be sure I have not touched, moved them from where they were :( Is this called intrusive thought too, or sthg specific? Very consuming to cope with. I know now, that I need to move forward, n o t rethink about the thought and the real moment. This is what I do yet it leaves me with doubt and anxiety, gets me down for days. Anxiety may lower but it is replaced by lowness, sadness, depressive feelings. Due to not being able to get this moment back to check. All the above show me this sounds very ocd to, but can this be categorized being an intrusive thought, have you experienced/heard of this kind? Big thank you beforehand <3
- Date posted
- 5y ago
Is facing your fears and doubts the only way to cure ocd?
- Date posted
- 5y ago
Will the workbooks that you suggested help without even seeking a therapist?
- Date posted
- 5y ago
My friend told me and has told me similar things that I care more about my mental health than others. Idk what to do...
- Date posted
- 5y ago
Hello chrissie from France.i have pure o since aprox 15 years. I ve tried everything to overcome it, it has just ruined my life. I ve even tried doing erp by my own but as mentioned, it didn’t work.. so, I m gonna use my last savings to get a treatment with doc phillipson.. I ve scheduled 4 sessions with him via Skype for next weeks ( it’s very expensive )..my only question is :does doctor phillipson is one of the best to help me ???...(reassurance,I know but I want to know what you think about him)
- Date posted
- 5y ago
My main pure O symptom is rocd. Whenever I see our interact with a woman who is more attractive than my partner then I start thinking I might be better off with them. How do you handle this?
- Date posted
- 5y ago
Is facing the fear only the way to cure OCD? I might get a heartattack for not performing my some compulsions. I have tried but the only thing on my head when I try to ignore those thoughts, is the fear which force me to compulsory perform the compulsions more than the times I really have to. I punish myself and perform more compulsions to have a superstitious balance in my life.
- Date posted
- 5y ago
I have been dealing with harm ocd thoughts for almost a year now and feel like I have lost my sense of self from one moment to the next. Is this due to the disorder that I feel that I have lost my true identity - that I doubt myself whether I am a terrible person and that I am just in denial? I am seeing a CBt therapist but she tells me to just tell myself that “ i don’t want this” whenever I get an intrusive thought ... but isn’t that reassurance? Btw I am so thankful for you and all the help that you offer to ocd sufferers ?
- Date posted
- 5y ago
Hi everyone, Ms. Hodges is most likely done answering questions. I wanted to thank her for her time and please check out her stuff on www.chrissiehodges.com
- Date posted
- 5y ago
Is there anyone or anything that helps motivate you when you feel you just cant anymore, when you feel all is lost?
- Date posted
- 5y ago
Im my past i had sex with my gender .. many many times and i felt no guilt about it ! One day i had sex in the church itself and i felt no guilt about it.. once i was sleeping with my aunt and I think sexually about her an i wanted that not an intrusive thing and I didn’t feel bad about it .. I stopped all of that... my best friend’s died and he was the most beautiful person anyone could imagine or have ..he make miracles now and i felt numb and not sad for his death ..I didn’t feel that i missed him or want to see him...after a had a sexual dream about my mom and after that endless thoughts came to my head sexually about anything anytime in any situation ... not just sexual thoughts..any kind of horrible , ridiculous, evil, abnormal thoughts...and I don’t feel anything about it .. sometimes i bring it..all my community and the people that I know are really beautiful they love and really I can’t explain how beautiful and good people they are..being around them is soo hard it’s like being soooo uglyyyy and miserable between angels..I don’t know why ..if I’m bad person why am i bad ..why I’m not just like all of these people.. i don’t know it just really bad
- Date posted
- 5y ago
Chrissy, I love you. This is so cool you're answering questions. My question is exhaustion a normal symptom after doing exposures sometimes since your confronting the anxiety and trying to get your mind bored of it or is it a sign that you've been engaging in compulsions without realizing it?
- User type
- OCD Conqueror
- Date posted
- 5y ago
Awesome
- Date posted
- 5y ago
Yes, I have pure O in terms of my compulsions. I have harm OCD and use psychological reassurance tactics, which are, essentially, internal compulsions. For example, I’ll have intrusive thoughts about stabbing loved ones or people I’m living/staying with, and I’ll repeat over and over in my head, “I can’t be a serial killer. I had a good childhood, no one is in my family, I didn’t fins fascination in harming animals as a child, etc. etc.” I don’t do any external rituals, like counting or arranging or praying, for example, but my mind goes straight to reassurance tactics such as the ones I mentioned above, to combat the intrusive thoughts. I also get, what I believe is being described as “intrusive feelings,” which my psychotherapist calls, “intrusive impulses,” and for me, those are the scariest. Usually, if I’m already anxious or stressed that day and then have intense intrusive thoughts these come on and are what lead to like, a 10/10 panic attack, for me. The intrusive impulses are where I feel like I’m on the verge of losing control of my physical body, like muscles, and it feels like some force is literally pulling my body in the direction of whatever I’d be doing if I were to carry out my intrusive thought. For example, if I’m driving and have intrusive thoughts about crossing the center line, which I do, my muscles will freeze up, which is my subconscious doing, because I’ll feel like something is pulling my arms to move the wheel towards the direction of the line. In order to fight that non-existing “force,” my muscles tense up extremely tight, and I’ll freeze. That’s when I get tingly and numb and panic will sort of set in. It’s a cycle from there because when my body feels that out-of-(my)control, my intrusive thoughts have a lot more powerful of an effect on me. That’s when I start thinking, like, “Oh, I have to force myself to not do xyz, so I must be a serial killer, I must want to deep down even though I don’t think I do, etc. etc.” That’s when I will want to use, like, physical reassurance tactics like “I need someone to lock me in a room until this passes so I don’t carry out that act against my will.” The less in-control I feel (not just with OCD symptoms, but with life in general), the scarier it is and the more likely I am to have a panic attack like that. I’m also just over 1.5 years sober from substance abuse, so that does play a role. Normally, though, because I’ve done a lot of treatment, and because I work a 12-step program of sobriety, if I have an intrusive thought I can just let it pass through and accept it. So, those instances are a lot less common for me than they used to be. They are few and far between. Hope that helps/clears it up for anyone!
- Date posted
- 5y ago
@ScarlettA maybe look into the 12 steps. You don't have to be a drug addict to benefit from them. They even have OCD groups that work 12 step recovery.
- Date posted
- 5y ago
If you throw the ERP, 12 steps, talking therapy, meditation and exercise, sleep hygiene and healthy nutrition, full-time and keep busy, socialising not isolating, Journalling at OCD it can't handle it and wont stay strong for lomg
- Date posted
- 5y ago
And medication if prescribed by doctor, full-time work
- Date posted
- 5y ago
Awesome sister good luck
- Date posted
- 5y ago
Hey chrissie, I have a question
Related posts
- Date posted
- 13w ago
Now that we’ve kicked off the new year, I find myself reflecting on where the OCD community is today—how things have changed for the better, as well as my hopes for the future. Ten years ago, it was almost impossible to access a licensed therapist with specialty training in OCD using health insurance. Most professionals simply didn’t understand what OCD actually looks like, so over 95% of OCD cases weren’t correctly diagnosed. As a result, insurance companies weren’t able to see how widespread OCD actually was—or how effective exposure and response prevention (ERP) therapy was at treating it. Instead, people with OCD had to pay about $350 or more per session, all out of pocket, for their best chance at getting their life back. I know this from personal experience. OCD turned my life completely upside-down, and I reached out desperately for help, only to be misdiagnosed and mistreated by professionals who didn’t understand OCD. When I finally learned about ERP therapy, the evidence-based treatment specifically designed for OCD, I learned that I’d have to wait for months to see the one OCD specialist in my area, and I couldn’t afford the cost. But I was fortunate. My mom found a way to help us pay, and I finally got the help I needed. Otherwise, I don’t think I’d be here today. In a few months, I started seeing improvement. As I continued to get better using the skills I learned while working with my OCD specialist, I learned I wasn’t the only one with this experience—in fact, millions of people across the country were going through the exact same things I was. That’s why we started NOCD. Since 2015, we’ve always had one mission: to restore hope for people with OCD through better awareness and treatment. The OCD community needed an option for evidence-based treatment that they could afford and access, no matter where they live—an option that also provided necessary support between sessions. And the entire healthcare industry needed to understand how OCD actually works. As I write this post, I’m more enthusiastic than ever about our mission. Just recently, we’ve partnered with Blue Cross Blue Shield of Illinois, Texas, New Mexico, Montana, and Oklahoma. To put this into perspective, 155 million Americans can now use their insurance to access NOCD Therapy. This year, I have high hopes for the OCD community. More and more people will be able to use their insurance to pay for NOCD Therapy, and we’re working hard to give everyone who has OCD the ability to access the treatment they deserve. In addition to providing ERP Therapy, our OCD-specialty therapists also support our Members in prioritizing their overall well-being. With a focus on developing important lifestyle habits, including diet, exercise, mindfulness, and healthy sleep hygiene, they help our members build a strong foundation for lasting mental health so people are more prepared to manage OCD long-term. For every person who gains access to a therapist specialized in OCD for the first time, 2025 could be a year that changes their lives. If you or a loved one is suffering from OCD, please comment below or schedule a free 15-minute call with our team to learn more about how to access evidence-based OCD treatment and ongoing support using your insurance benefits.
- Date posted
- 10w ago
I get asked about the name NOCD a lot. People might want to know how it’s pronounced, and they’re curious about our story. Every time, I’m excited to share a bit about what the name means—in fact, it’s an opportunity for me to talk about something everyone should know about OCD. First things first: it’s pronounced “No-CD.” And it actually means a couple things, both central to our mission: To restore hope for people with OCD through better awareness and treatment. The first meaning of our name is about awareness: Know OCD. Though we’ve come a long way, not enough people truly know what OCD is or what it’s like. How many times have you heard someone say “Don’t be so OCD about that,” or “I wish I had a little OCD. My car is a mess!” Things like that may seem innocent, but they trivialize the condition and keep most people with OCD—around 8 million in the US alone—from getting the help they need. The second meaning of NOCD is about treatment: No-CD. To go a bit deeper: Say “No” to the compulsive disorder. On one level, this is also related to knowing OCD—noto means “to know” in Latin. This inspired the name NOTO, the operations and technology infrastructure that powers NOCD the way an engine powers a vehicle. But this meaning goes even further. It has to do with how you can manage OCD symptoms—learning to resist compulsions. This is the foundation of exposure and response prevention (ERP) therapy, the most effective, evidence-based form of treatment for OCD. Learning how to resist compulsions with ERP changed my life, and it taught me how important it is to get treatment from a specialty-trained therapist who truly understands how OCD works. I’ll give you an example. When I was 20, my life was going according to plan. I was thriving on the field as a college quarterback, doing well in school, even winning awards—until OCD struck out of nowhere. I started having taboo intrusive thoughts, things that horrified me and went against my core values and beliefs. Desperate for help, I saw several different therapists—but no one diagnosed me with OCD. At one point, I was instructed to snap a rubber band against my wrist whenever I had an intrusive thought. It was supposed to stop the thoughts, but it only made my symptoms worse. Driven into severe depression, I had to put my entire life on pause. Once I started ERP with a therapist who understood OCD, I learned why: you can’t stop intrusive thoughts from occurring. Everyone has them—and the more you try to get rid of them, the worse they get. Anything you do to suppress them is actually a compulsion, whether it’s counting in your head, snapping a rubber band against your wrist, or using substances to drown the thoughts out. To get better, you have to learn to resist compulsions and accept uncertainty. OCD doesn’t get to decide how you live your life. How do you educate the people in your life about OCD? Whether friends, family, or strangers, I’d love to hear how you share your understanding and raise awareness about OCD.
- User type
- OCD Conqueror
- Date posted
- 10w ago
Hi everyone, I’m Cayla. I’m a mom that’s lived with OCD since childhood, but my breaking point came more recently after having my son. I was consumed by terrifying thoughts—What if I hurt him? What if I did something awful without realizing it? I was so afraid of my own mind that I couldn’t be alone with him. The shame and exhaustion were unbearable, and I convinced myself I was broken. In 2024, I finally sought help. ERP therapy at NOCD was one of the hardest things I’ve ever done, but it saved my life. Even now, I have tough days, but I know I don’t have to be ruled by OCD. When my 12 year old daughter began showing signs of OCD, I felt overwhelmed with guilt. I never wanted her to go through what I had, but I knew what to do. I told her that I have OCD too and made sure she knew it wasn’t her fault—and that she wasn’t alone. One of the hardest parts of this journey was trusting someone else with my daughter’s OCD. I knew how vulnerable it feels to share intrusive thoughts, and I wanted her to feel safe. Her NOCD therapist was able to establish trust and genuine empathy from the start, and that relationship gave her the confidence to face ERP head-on. Seeing her build that trust made me certain she was in the right hands. ERP has helped both of us reclaim our lives, and it is beautiful to see my daughter managing her condition and making visible progress. Parenting with OCD while raising a child with OCD isn’t talked about enough, but I know so many parents are struggling with these same challenges. If you have questions about managing OCD while parenting, helping your child through ERP, or breaking cycles of guilt, drop them below—I’d love to share what I’ve learned. I’ll be answering all of the questions I receive in real-time today 4-5pm ET.
Be a part of the largest OCD Community
Share your thoughts so the Community can respond