- Date posted
- 1y
I need more recovery story’s
I need more happy recovery story’s to feel hope on I can get better. I need to know the except steps they took to recovery.
I need more happy recovery story’s to feel hope on I can get better. I need to know the except steps they took to recovery.
Hi! I’m still on my own journey and still have days where I struggle but my ocd has gotten immensely more manageable since I started taking a different medication and supplements that support my system such as iron, NAC, glycine, and myoinosital. NAC has been scientifically proven to help ocd symptoms and it’s really working for me. Just remember my friend that healing is not linear. You won’t always be happy but you also won’t always be sad. The key is finding a balance in the middle that is manageable. I’m always open to talk if you need it!
@shaybaby8 Ya I’d love to talk more Where would we?
@shaybaby8 I would love to hear more about the supplements you’re taking and anywhere you could point me to learn more about supplements and OCD! This is the first I’ve heard of that being a part of their treatment, and I’m very interested to learn more.
A tricky thing to recovery is not seeking reassurance and yet without hope found from reassurance we have a hard time recovering. I’m still on the journey myself, but a small victory happened today. I went woodcutting with my bro and his boy. I feared handling my chainsaw around them but managed to get through without intrusive thoughts debilitating me.
I got better. Faster than stats indicate you can. I'll try bullet point the steps I personally used as I can talk for ever on it. - background: my ocd was triggered by a traumatic accident when I was 6 on my little brothers birthday. My ocd got stronger and stronger followed by other key events that only reinforced my ocd. I had this undiagnosed for 27 years. I was trying to figure out what was wrong with me since my teen years as I knew I wasn't quite right, or everyone else wasn't. Met a woman, she became my best friend and I could tell she saw something in me and tried helping. She helped me discover I had ocd. I was looking to get therapy and fell in love with her in the mean time. I lost her before my second session. My compulsions were too much and I don't blame her at all for this. I did resent her for ditching me, but don't anymore. (very basic summary). - in my early 20s I believe I hit remission accidentally for about 6 months. I didn't know I had ocd at the time but it felt weird in that period. I did CBT therapy which led to that. My mind was so used to racing around and I felt like a zombie in comparison, but that was actually me being better as I was doing more in my life than I ever did before. Was in a band and hitting the gym hard, work was fine etc. I didn't realise this was remission until later on in life. - in my mid-late 20s I had emdr therapy to deal with some trauma that occurred in my teen years. First session helped a bit and kind of felt like I was reliving it. I noticed a bit of improvement. Then we took a different approach to emdr where you actually don't talk about the trauma at all and that really helped and figured out where my guilt was coming from and it was further back, when I was 6. That helped me feel differently about my memories, they weren't traumatic anymore. - earlier this year after I met my friend I figured out I had ocd. We tried to get me better without therapy and it didn't work. We didn't have the education and we're missing vital stages. We were close but not close enough. Made me worse, but also made me determined to get better. - therapy. First 2, of 12 sessions were talking, just getting to know my bsckstory and what has worked for me before. After that we got to work. Mainly divided into 3 sections per session. Weekly update / erp / forgiving myself or changing a perspective of my core values. My therapist loved using my heartbreak for ERP. I hated it but I loved it because nothing would've stopped me. Once I got the hang of ERP I practiced it on my own every day and everywhere. I used a phobia I had, casadastraphobia as a Guinea pig which I had for half my life and it went in 4 mins. Thought I was going to die but it was pure relief after. It was like a eureka moment. So I used it in small things (not even ocd related, just genuinely small intrusive thoughts and feelings) and honed my skills so when ocd did decide to pop up, I've trained to deal with it. It got easier over time just like any other skill you practice. I definitely made mistakes but my therapist put me right and told me how to do ERP properly as she didn't tell me to do any of that and was quite shocked about how much I was doing out the sessions. Was trial and error but definitely got better. The mistakes hurt but treat them as a learning experience. Don't expose yourself without a clear goal in mind and don't do it reluctantly, do it with attitude. When you do ERP just say bring it. If done properly it's all worth it. You can go in increments too, I jumped in at the deep end and it was stressful but I was extremely determined to never let ocd screw my life again. After 12 sessions I didn't need therapy any more and felt like I had itz I had an option to do more but chose not to. I hopefully will one day do a Ted talk on how to beat ocd with my therapist. I want to make something of myself first. To summarise : - EMDR for trauma - CBT was good for mindfulness and helped me focus, but relapsed because I didn't have the education or knowledge to identify my pitfalls or how to deal with them. - I researched OCD like crazy and tried to educate myself. I looked at the neuroscience, subtypes, how to do ERP, joined this amazingly beautiful community ( thank you guys 🤗). - through looking at neuroscience I found out that our brains are more overactive within the fight, flight and freeze system. This is when stress is caused and we go around in loops until we cave into compulsions. This only makes this neural pathway more dominant as you've trained your brain accidentally to do this as it brings relief. This actually will make it worse over time. To use the other neural pathway, the rationalising pathway which "normal people" are able to use more than us, it requires serotonin. You can get better without boosting serotonin but when you do it's like a recovery performance enhancer. I started to exercise more go for walks in nature and changed what I ate so my body could produce more serotonin. Doing this alone does nothing, you need to have a mindset to go with it. It's like taking steroids and then not working out. - have a goals and targets. My main goal was to never let ocd do this again to me and I will get better. The other big goal was to say a massive f*** off to the recovery stats as they are off putting and demoralising. I had mantras is repeat to myself. I will get better, nothing or no one will stop me". " f*** the stats, I'll prove everyone wrong". I told my therapist I wanted to get better quicker than has ever been recorded before and she was on board with it. We both accepted that it may not work but we went for it anyway. I havent found another stat that resembles my results. There probably are stories out there like it but haven't seen them. Keep your eye on the prize, the result your aiming for. It's the light at the end of your tunnel and you will head wherever you're looking eventually. - the stats I saw before I said "f*** that! ". Roughly 1.2% of the population have ocd. 10% of those seek therapy. 10% of those who seek therapy get better with a minimum average of 6-12 months. Those stats were not good enough for me and wanted to show the world it can be done better. It was my everest. Soooo I'm not the most articulate person so this isn't structured how I'd like but it's all there. Reassurance is bad, encouragement is good. Maybe, maybe not, or exaggerate intrusive thoughts until they're funny. Acknowledge the thought then indirectly suppress them by showing other stuff attention, not to try and ignore the thought but to just focus on something else. This is key and a bit confusing to understand at first. Grounding techniques to keep you present. Boost your serotonin! Makes rationalising thoughts easier and you get less defensive. Have healthy or beneficial distractions available. If they aren't, sort it out and set yourself up for success, not failure. Practice ERP like a skill. You wouldn't go to a boxing match without training, because you'll get your butt kicked. Same thing applies when you're fighting compulsions. If something scares you or makes you feel uncomfortable. Think, what can I gain fron doing this with ERP and do it if you have an answer. Change your relationship with fear, stress and anxiety. They are all a part of us but we perceive the messages incorrectly. Change your perception. Find something to drive you to get better. What's your fuel for recovery? What's your destination? If I can do it, you can too. What recovery looks like/ feels like : First of all I didn't even know I was better until I realised I was doing compulsions by choice now and didn't feel like I deserved to be better. I reflected and thought why the hell did I do that? Felt like it was a choice for the first time in my life. Then I stopped. My mind is so quiet now compared to how it used to be. It's unsettling at first as your brain is like, why am I quiet, I needed to do something, let's do something! No thoughts with it just a lot of energy. My mind cleared up a lot of capacity. I felt like a blank canvas and still do a bit. I tried to become the person I thought I should've become before ocd took over but I think I went down this path for a reason. Now I'm trying to become whoever I want to be. I want to help others escape their mental cage which ocd disguises as a compulsion Palace. I believe all of you can get better, whatever better is for you. Getting better wasn't the finish line was looking this whole time. It was the starting line, and my life begins now. If you read all of that, I respect you as I could type for ever on it. Any questions, just ask.
@Invalid I appreciate this so much. I look forward to your future your gonna do great things! Like you said ocd truly is a cage and I’m gonna break it real soon with my therapy. I truly appreciate you breaking down your journey into steps it helps a lot. Thank you again
@YaBoio Np. Just remember, keep moving in the right direction. You're not trying to run away from something, your running towards something else.
Yes we need reassurance and it’s a part of our OCD too 😓
have you listened to the ocd stories by stuart ralph?
Like stated, it might be a journey.
Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?
It’s been 4 years. 4 years since I spiralled into a world controlled by rituals of 4, it started as 2, then 3, then 4 - my safe number. The amount of times I wash my hands after touching something dirty and how many repeats it takes until I feel ‘clean’, the amount of taps I make when closing doors to make sure I don’t ‘die’, the amount of times I rinse cutlery and plates before eating off them, the amount of times I disinfect things. My OCD subtype is contamination and I know 2020 lockdowns and the pandemic caused it to spiral but what started as a small ritual quickly became bigger until I no longer remembered what my life was like without the obsessive thoughts of germs and contamination. Could that person be ill? What if I go outside to the shops and someone makes me sick? You can’t answer the door to get that package from the delivery driver because he might make you sick, oh you can’t put the shopping away without disinfecting it first - what if someone has coughed on it? ‘I’ve got to wear gloves to do that’ I can’t, I can’t, I can’t. For 4 years I’ve lived like this, the ‘I don’t want to touch that’ or ‘I can’t go to this place because I don’t want to get ill and die’ ‘can you go do that for me as I don’t think I can right now’ - I know my OCD is irrational, I know the likelihood of those things actually happening are slim to none and I know my OCD stems from a need of control in my life because for so many years I felt like everything in my life was out of my control. But no matter how much I know of how many books I read, how many mindful practices I do the panic I feel after being ‘exposed’ or before exposing myself to a trigger is horrible. I’ve avoided and avoided and avoided to the point where something small now seems and feels like an impossible mountain to climb. It often feels like there isn’t light at the end of the tunnel on the dark days, when I know there is, it’s just going to take some time. Despite this on the outside to those not in my circle my life is a whole picture perfect painting. I run my own business, have a nice car, a nice house, a happy relationship and the of best friends and I’m so grateful for all those things but the reality is much different - behind closed doors and hidden in the closest is the OCD monster. I’ve decided now, after 4 years it’s time to change. I’m breaking the cycle and starting anew. The irony that 4 is my safe number too and it’s been 4 years since things started to get dark. I’m ready to lose control and find myself again. Why am I writing this? Honestly, I really don’t know. I found this app recently and hope it can be a help for my ERP practices I’ve been practicing on my own and it’s actually the first time I’ve ever openly posted or spoken about my OCD to date. For years I have lived with a huge amount of shame and embarrassment, hiding my issues from everyone - even my closest friends have no idea how much it impacts my day to day. I’ve felt shame as I can’t control my own mind despite knowing the thoughts are irrational and the rituals only provide temporary relief but each day again and again the safety blanket of the rituals wraps me up and takes over. The only person who truly knows how much it affects me is my partner, who has been by my side through it all, he’s burnt out and has seen first hand the impact it has had on me, my life and my happiness. I’ve sheltered him as much as I can, but I’m sure those who are in relationships with OCD can relate to the burnout their partner feels day in day out. So that’s my story, I hope those going through similar can take comfort in this and know they aren’t alone in it all as my OCD has made me feel so incredibly lonely, isolated and empty for 4 years too long. It feels freeing to finally share my monster and I hope I can connect with others who are on a similar journey to me. The biggest thing I want to be able to do again? I want to be able to hug my loved ones without feeling triggered, I want to go outside and enjoy life without worry, I want to live again. This app has made me feel seen for the first time in a long time and reading your stories, your experiences and how you’re coping is comforting, encouraging and makes me feel less alone ❤️ thank you for reading x
Hi everyone, I’m Andrea and I am a member of the Intake Team here at NOCD. In junior high, I was known as the “aneurysm girl” because I was convinced any small headache meant I was dying. At just 12 years old, I read something that triggered my OCD, and from that moment on, my brain latched onto catastrophic health fears. Any strange sensation in my body felt like proof that something was seriously wrong. I constantly sought reassurance, avoided being alone, and felt trapped in an endless cycle of fear. Over time, my OCD shifted themes, but health anxiety was always there, lurking in the background. I turned to drinking to numb my mind, trying to escape the fear that never let up. Then, in 2016, everything spiraled. I was sitting at work, feeling completely fine, when suddenly my vision felt strange—something was “off.” My mind convinced me I was having a stroke. I called an ambulance, launching myself into one of the darkest periods of my life. I visited doctors multiple times a week, terrified I was dying, yet every test came back normal. The fear never loosened its grip. For years, I cycled in and out of therapy, desperately trying to find answers, but no one recognized what was really happening. I was always told I had anxiety or depression, but OCD was never mentioned. I was suicidal, believing I would never escape the torment of my mind. It wasn’t until 2022—after years of struggling, hitting rock bottom, and finally seeking specialized OCD treatment—that I got the right diagnosis. ERP therapy at NOCD was the hardest thing I’ve ever done, but it saved my life. Today, I’m 34, sober, and living a life I never thought was possible. Do I still have hard days? Absolutely. But I am no longer a prisoner to my fears. The thoughts still come, but they don’t control me anymore. They don’t dictate my every move. Life isn’t perfect, but it no longer knocks me off my feet. If you’re struggling with health OCD or somatic OCD, I see you. I know how terrifying and isolating it can be. But I also know that it can get better. If you have any questions about health & somatic OCD, ERP, and breaking the OCD cycle, I’d love to tell you what I’ve learned first hand. Drop your questions below, and I’ll answer all of them!
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