My OCD experience (so far)

Hi everyone, My name is Trevin (24,male,he/him) and I’m new to this app and this is my first post. Here’s how I’m feeling today: OCD frustrates the hell out of me. Mostly when it becomes hard for me to comprehend. A few weeks ago I had convinced myself I have Huntington’s Disease (or will have it in the future). I was reading symptoms that overlap with how I was feeling at that time, and started drawing connections to my life. Some large connections, like my grandma who has parkinson’s, and my psychiatrist augmenting my SSRI with memantine, fixating on “what it means” for me, a young, healthyish individual to be on an “old person” drug. Some longshot connections linked to Huntington’s, like my above average intelligence and large head size. Each symptom I found that “clicked” my OCD made the anxiety ramp up. I shut this down fairly quickly as I could tell it was unrealistic and it felt very clearly that it was OCD. However, on days like today, my OCD is a much more undefeated beast, not dissimilar to a Rancor. Unfortunately I am not a Jedi. Today, my OCD just feels like nothing feels right. I feel like my entire perception of the world is different today. I’m drowning in it. The sky looks different, the coldness against my skin feels more piercing than it normally would. My thoughts just feel like a whirlpool, like I can’t place a finger on a single thought I have. They are moving fast and swirling like a galactic orb or nebula. Everything just feels “off”. And that makes me frustrated and angry. I feel like I have no control of myself. TLDR; I fucking hate this disorder. And I hate its name too. More often than not, I don’t feel like I have an obsession or compulsion. It’s just a feeling or perspective distortion. Maybe a better name for OCD is Control & Doubt Disorder, or Obsessional Uncertainty Disorder. I hate searching OCD online and it simplifying the hell out of it: “Obsessions that lead to compulsions”. Girl, I wish it was that fucking cut and dry and easy to delineate. I still insist to my psychiatrist that I have a different disorder in addition to OCD, because what I feel doesn’t “feel” like OCD. They, of course, insists that this is OCD about OCD. Ugh, frustrated, whatever :P Thanks for reading 🫶🏻

I’ve come to a point in my life where I can be very happy. I have a safe environment, a loving community. Yknow I’ve really healed through or moved on from a traumatic past and as I say to my boyfriend from time to time like a broken record: I feel like nowadays the only thing bringing me stress or at times misery is myself. I am a fairly joyful person, when I’m comfortable I’m very goofy and like to sing dance and have fun. I find that I relate to so many amazing people I meet that are the nicest, most fun, elevating individuals, who also struggle with the hardest sometime debilitating things. It truly sucks because when I find those moments of peace I see the power of what an ocd mind could be as a person. We are people who may over analyze, but I myself also always find the good in people. And aye if in a moment I don’t think anything is doomly wrong and if I don’t try to understand it I may parish 😅 then that moment feels like the best one in the world. But on the other side of that when I’m not in a quiet mind moment and I’m left with myself to take control of what life in front of me looks like in or around me. I almost have been crumbling. Like I said at the beginning of this story here, the life around me is not so situationally stressful. And it’s also fairly simple. My boyfriend and I live together in a small cozy trailer with our two cats, he works full time very hard and I work part time where I spend as much time as I can working and then have a few days around the house. We’re saving for a home and are quite content with our lifestyle at the moment with work and being “lazy”, or resting and going out for fun now an then on our time off together. Most times though I do have day or two off during the week by myself, which usually goes one of only two ways. Like I said before I do like to work hard, especially now that I have a part time job that’s fairly easier than others I’ve had in the past. So I work 6-7 hours then drive home, air up my tires and wash my car sometimes because I like doing something after work while I still have energy.Or I go to the store. Come home make food, prolly nap and not really worry about too much because I’ve worked all day. But on my days off. I find myself waking up with a lot of anxiety. I usually fight it off by going back to sleep. But my OCD is heavily circled around shame. Even though I only sleep in till 10-11, 12-1 at the latest. I find myself thinking about how wrong (in nice terms) it is to do that. And the funny thing is the older I get (I’m a 21F). I’m not as pressured by this thought, even though it’s still stressful it literally just feels like a thought I can’t escape from. To put things in simple terms. I truly psycho analyze my actions breath by breath and my intrusive thoughts are critiquing those actions bit by bit. I’ve recently have started medication and it was a tremendous difference in the beginning and it helped me cope with the acceptance and letting go (f it or just care less) of those thoughts. But let’s say I forget to take it, or I wake up one morning by myself all day and I’m super tired or unmotivated. That day will feel truly debilitated. And now I’m definitely to the point where I’m battling that, but also have a thin vale behind that where I now know what is going on. And the thoughts are shameful for “not trying to get better or be better” Because I do Like I write a lot, and it truly is one of the best coping mechanisms for working through intrusive or obsessive compulsions. I could also write all day, and if I don’t listen to that ease of the anxiety from writing. And try to keep going the writing will turn into a compulsion itself I feel like I should not stop or critique it as well. But luckily I’ll hopefully find my place in explaining the cycle of what I do when my brain is very loud about things. The next time it’s too loud:)

this is the most i will ever go into depth about my mental health, all in one post; all in one sitting. this will be draining. to start this off, yes, i have OCD—but i also have several other disorders as well. some of my diagnoses that will come to light in this have a strong correlation to comorbidity and so instead of this being a story simply about my OCD, i will cover all areas of my mental health. for readers, i want it to be clear; this is for me. i’m doing this to put my story out. i hope you find some interest in what i have to say, but in the end, my intentions are strictly to make my damage good. symptoms of my mental issues were present frequently in my childhood experience. for years i avoided any truth to how i thought or felt. thinking, feeling, acting—all 3 were never in cohesion. i had a very anti-social attitude towards life for most of my pubescent years. i got use to faking and manipulating to appear a certain way when i knew i was at risk of punishment; it allowed me to get away with a lot of immoral behaviors for a long time before i eventually was forced into counseling from a school fight i had initiated. i was roughly 14 at this time. counseling was my initial therapy for a while. i have since seen 5 therapists. i can’t say any of those therapists knew a single truth about me, really—with a mixture of pathological lying and a bad masking habit, I was stopping myself from getting any real treatment. i don’t know why, but for a long time i was content with this truth. a part of me never really felt the need to address it. my manipulative behaviors were often unintentional and not once had i sought a need to be callous, even when doing the things i was doing. with every new therapist, i had tuned my personality specifically to fit them—a concept that i don’t have a name for but now can dissect in immense detail. i would take parts of my personality and accentuate them to fit the attitudes and interests of particular people. in my head it was always about admiring the story. nobody was real; everyone was a character, everyone was a unique, self-manifested character. i just made my character with greater intents. i was a good listener, i think understanding that made me get more comfortable with my destructive and manipulative tendencies. when someone believes your listening, like really, actively listening—they’ll eventually tell you everything about themselves. now for a slight addressing of the obvious, i want it to be clear, i’m not describing ASPD—aka, the real life equivalence of sociopathy. i do think i show strong signs of it early on in my youth, and i bring these behaviors up because i think the issues that i do have developed from my anti-social behaviors—however, i was a child; i didn’t know the consequences of my behavior like i do now. if anything is needed to be said here, it’s best to address the following events like this: i understand now, i didn’t understand then. turning 15, i had started off 2023 in a relationship that meant a lot to me—a lot more to me than anything in my life leading up to this point. it’s best to address this now as well—i don’t feel a lot, but when i do, it’s usually irrationally intense and feels completely uncontrollable. at this time, i had gotten over a lot of my anti-social tendencies by now and have spent the last year improving myself after the things i had done began hurting the people i valued most. from a long list of lying, manipulating, preying, harassing, even stabbing people with whatever sharp thing was at my disposal—i had come a long way in creating a character that i actually liked. an important thing to keep in mind during this time was the early development of my OCD that had initially come in the form of suicidal ideation. most of the people in here i’m assuming are people that personally have OCD and understand that it’s not a disorder based in the stigmatized-lens of perfectionism but rather an irrational need for certainty. death quickly became my “ultimate form of certainty” in my teenage years as i turned to the concept like a comfort place—a hand on my shoulder saying “it’s okay, you can fuck up however you might, there’s always a way out.” i had not been truthful about that in therapy either, nor did the several medications prescribed in my lifetime ever do something of benefit to what my issues actually were. of course, i blame no one but myself for not benefiting from outside sources. skipping over a lot of meaningless detail—the gist of the year went like this: Jan-April relationship breaks up badly—in my irrational state, i attempted to take my life and was hospitalized, and eventually, institutionalized. i stayed there for 11 days. at the time the only diagnoses they could make of me was MDD and ASD with slight signs of generalized anxiety. May-August i get extremely medicated and start taking 150+ pills a month to maintain what at the time was being treated for bipolar and schizophrenia. i was too young to see my clinical record, and i assume they wouldn’t tell this to a minor, but it seems they believed whatever my issues really were—i was simply too young to get an accurate assessment. September-December the medication makes me completely apathetic and my loss of care for life brought back my irrational gimmicks and self-destructive tendencies. i, in a 4 month period, ruined every single relationship i had kept close to me. 2024. i was alone. i stopped taking my pills due to a loss of interest and excessive weight gaining but it made my intense emotions start to bite me again. this was the year my OCD had fully developed and by April, i was diagnosed after failing a risk-assessment. for a long period of time, i lived a meaningless, uneventful, isolated life. that year, i let my mental health take over all acts of my being. i got deep into philosophy, psychology, pathology, a lot of tv shows built around psychological dynamics—i was desperate to understand this parasite that seemed to destroy my life without any awareness. i never wanted it to take the years it did since i was initially that 13 year old boy, but i write this now with a simple truth—a truth i refused to let myself believe until recently. i can’t fix this. the more i feed into it, obsess over it—the more these issues are going to worsen. for years i wasted my days thinking i was trying everything i could and it just wasn’t working. i couldn’t accept the fact that i don’t control this, and despite being told that again and again—it never got through to me until i spent the last week not feeding into the OCD and emotional dysregulation, and for the first time, i didn’t find myself counting the seconds that passed me by. it might not mean that much for an outsider looking in, but since my OCD had fully developed—i would always be counting the seconds in the back of my head, not like 1231, 1232, 1233… but as a tick of a metronome that made me always aware of the time. the days where this wasn’t annoying, it was boring, which i ultimately hated more. i’m seeing a light i haven’t seen in years, and with it i keep reaching the same notion—i wish i didn’t waste so much of my life being miserable. i’m getting a psychological evaluation within the next month. i’ve been out of therapy for about a year now but i’m going in now looking to help myself. this is specifically for my emotional dysregulation. my current theories revolve around cluster B personality types, 1 of 4 including ASPD as i had mentioned earlier, albeit my bet is actually on BPD (Borderline Personality Disorder.) I crossed off Borderline for a long time because the symptoms list always felt too broad, but the more i understand the disorder—the more i feel connected to it. my theory comes from several factors—my rapidly changing self image, my impulsive/erratic behaviors, my irrational emotions, my long history of unconventional relationships, my fear of abandonment, my chronic emptiness, my history of self harm, etc. this is not confirmed however, and i wish to get an evaluation specifically for the disorder. getting a personality disorder diagnosed in a minor isn’t easy, but i’m doing it half for the certainty of just knowing—and half for potentionally getting a medication that can help me live a healthy-adjacent life. i never thought i would see a life free of obsession since being diagnosed with OCD. now i can enjoy the silence. thanks for reading. any commentary appreciated.