- Date posted
- 47w ago
Undiagnosed
Hi, are some of y’all undiagnosed too?
Hi, are some of y’all undiagnosed too?
I am! I wish I was, but a tough family situation (dad doesn’t believe in mental health and thinks I make everything up) doesn’t really allow for that! Someday though. I cannot wait to get help! For now, this app is the greatest support system for me. :)
Yes, well sort of. When I was 16 my therapist was the one who first brought it up to me and diagnosed me during one of our first sessions. I know that a different profession is needed for a proper diagnosis and to be honest I felt like she diagnosed me over the most minor things that I'd bring that I myself didn't even recognize as OCD. She also gave me "well everyone's a little OCD including myself" vibes, but now I know today that it's certainly OCD, but for different reasons rather than what she diagnosed me for.
I am!
I am actually diagnosed with generalized anxiety disorder not OCD. But still some things here feel similar or even more helpful than my therapy for the GAD.
I went for a long time being undiagnosed. I didn’t know I was autistic until just recently (in my 30s). I didn’t know I had OCD either until a patient shared a similar experience (and I’m a therapist lols).
Sadly
I'm reaching out in hopes of finding others who might relate to my experiences or offer insights. I'm dealing with a complex interplay of OCD, depression, and existential anxiety, and I'm struggling to make sense of it all. Here's what I'm experiencing: I have OCD with various manifestations, along with episodes of depression. I find myself in a cyclical pattern where, after a few weeks, I start to remind myself about my depressive tendencies. This reminder seems to trigger a cycle that actually makes me feel more depressed or at least more aware of depressive symptoms. When this happens, I often experience feelings of nihilism and existential dread. I try to think about my family - my two young boys and my wife - to find motivation or a sense of purpose, but this strategy often backfires, making me feel even more anxious and depressed. I constantly check my feelings, wondering if they're depressive or anxious. At the same time, I fear that my feelings of anxiety and panic might spiral out of control. I think about my emotions and thoughts on a meta-level, which means I'm not just experiencing feelings, but I'm also constantly analyzing the fact that I'm experiencing them. There's an existential component to my struggles, a fear of depression and anxiety itself, and a sense that this might be a self-fulfilling prophecy. Perhaps most frustratingly, I often have feelings, thoughts, or sensory experiences that I can't explain or put into words. I feel like I've never heard of these before, which leaves me feeling deeply misunderstood. Does anyone else experience something similar? How do you cope with this complex web of symptoms and experiences? I'm particularly interested in hearing from those who've found ways to break the cycle of meta-cognition and self-fulfilling anxiety. Any insights, shared experiences, or strategies would be deeply appreciated. Thank you for your time and understanding.
I have a lot of thoughts about the universe, and they’re overwhelming—like being caught in a rip current, except it’s all inside my head. Most of the time, they’re about how small we are, how there really isn’t a “we” because our bodies aren’t truly ours—we’re just bacteria, cells, and microbes. The thoughts spiral, deeper and deeper, smaller and smaller, coiling until suddenly, I’m pulled under, drowning in a whirlpool. I’ve never felt like this before, and I’m convinced I’ve been faking it somehow. For the past few weeks, my OCD has been worse than it’s ever been in my 20 years of life. Or maybe I’m just more aware of it now. Has anyone else had their OCD suddenly get really bad? Does it ever end—if it even can? I’ve convinced myself that my intrusive thoughts aren’t actually intrusive, that my OCD is a choice, and that everything I do is intentional. As for compulsions, I don’t have the typical “If I don’t do ____ then ____ will happen” kind of thoughts. Instead, my brain simply commands, “Do ____,” and I always give in. It’s so loud in my head, and I can’t shake the feeling that I’m an imposter. Like I don’t belong here—like my presence on this app is an intrusion, invalidating everyone else’s struggles just by downloading it and daring to post. If anyone feels that way, if you think I’m intruding, I’m sorry. I only came here because I have no one to share my diagnosis with. Pouring my thoughts out, hoping someone might understand, feels less suffocating than journaling. Journaling is like letting a wound fester—each word burying the thoughts deeper, leaving them to decay in silence, for nobody to ever read but myself.
I feel like in some ways receiving a diagnosis for OCD has in some ways made things worse. I’ve always had what I called “phases” throughout life, which I now know were ocd episodes, but I didn’t really make too much of them and even if it was over several long difficult months, they’d always seem to kind of just pass. Recently I’ve begun my worse flare up in the last few years and now that I’m older I seemed professional help which led to my diagnosis. This all sounds great of course but I can’t actually afford therapy right now so I kinda just have the diagnosis but not the support so now that I realize these phases are actually this incurable mental illness I just feel like I’ve lost all hope that I’ll ever be happy and I feel like I basically obsess about obsessing at this point and it just sucks. Has anyone else had this or a similar experience?
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