- Date posted
- 47w ago
Undiagnosed
Hi, are some of y’all undiagnosed too?
Hi, are some of y’all undiagnosed too?
I am! I wish I was, but a tough family situation (dad doesn’t believe in mental health and thinks I make everything up) doesn’t really allow for that! Someday though. I cannot wait to get help! For now, this app is the greatest support system for me. :)
Yes, well sort of. When I was 16 my therapist was the one who first brought it up to me and diagnosed me during one of our first sessions. I know that a different profession is needed for a proper diagnosis and to be honest I felt like she diagnosed me over the most minor things that I'd bring that I myself didn't even recognize as OCD. She also gave me "well everyone's a little OCD including myself" vibes, but now I know today that it's certainly OCD, but for different reasons rather than what she diagnosed me for.
I am!
I am actually diagnosed with generalized anxiety disorder not OCD. But still some things here feel similar or even more helpful than my therapy for the GAD.
I went for a long time being undiagnosed. I didn’t know I was autistic until just recently (in my 30s). I didn’t know I had OCD either until a patient shared a similar experience (and I’m a therapist lols).
Sadly
I'm reaching out in hopes of finding others who might relate to my experiences or offer insights. I'm dealing with a complex interplay of OCD, depression, and existential anxiety, and I'm struggling to make sense of it all. Here's what I'm experiencing: I have OCD with various manifestations, along with episodes of depression. I find myself in a cyclical pattern where, after a few weeks, I start to remind myself about my depressive tendencies. This reminder seems to trigger a cycle that actually makes me feel more depressed or at least more aware of depressive symptoms. When this happens, I often experience feelings of nihilism and existential dread. I try to think about my family - my two young boys and my wife - to find motivation or a sense of purpose, but this strategy often backfires, making me feel even more anxious and depressed. I constantly check my feelings, wondering if they're depressive or anxious. At the same time, I fear that my feelings of anxiety and panic might spiral out of control. I think about my emotions and thoughts on a meta-level, which means I'm not just experiencing feelings, but I'm also constantly analyzing the fact that I'm experiencing them. There's an existential component to my struggles, a fear of depression and anxiety itself, and a sense that this might be a self-fulfilling prophecy. Perhaps most frustratingly, I often have feelings, thoughts, or sensory experiences that I can't explain or put into words. I feel like I've never heard of these before, which leaves me feeling deeply misunderstood. Does anyone else experience something similar? How do you cope with this complex web of symptoms and experiences? I'm particularly interested in hearing from those who've found ways to break the cycle of meta-cognition and self-fulfilling anxiety. Any insights, shared experiences, or strategies would be deeply appreciated. Thank you for your time and understanding.
I feel like in some ways receiving a diagnosis for OCD has in some ways made things worse. I’ve always had what I called “phases” throughout life, which I now know were ocd episodes, but I didn’t really make too much of them and even if it was over several long difficult months, they’d always seem to kind of just pass. Recently I’ve begun my worse flare up in the last few years and now that I’m older I seemed professional help which led to my diagnosis. This all sounds great of course but I can’t actually afford therapy right now so I kinda just have the diagnosis but not the support so now that I realize these phases are actually this incurable mental illness I just feel like I’ve lost all hope that I’ll ever be happy and I feel like I basically obsess about obsessing at this point and it just sucks. Has anyone else had this or a similar experience?
I've never been diagnosed with OCD, but have thought for a long time that I do have it. I've tried to bring it up in therapy but have been shot down as "OCD tendencies". Luckily I'm with a new therapist and am planning to bring it up again. Especially after reading a lot of your posts, I'm really resonating with them. Especially my anxieties and obsessions with my health. God forbid I feel any weird pain or ache, I instantly think I'm dying. Sometimes I get a weird pain in my head and think it's a stroke or aneurysm. Ill go as far as the perform the stroke FAST test. This happens multiple times a day. I also have HUGE anxieties about death and my mortality. If I think about it too much, I get this deep cold pit in my stomach and spiral. Even talking about it causes me sooo much distress. I'm just worried I'll be dismissed or told I'm just self diagnosing because I related to a post online. But if any of this sounds accurate, please let me know. I'd love to be reassured of my obsessions rather than just dismissed as being anxious.
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