- Date posted
- 45w ago
Undiagnosed
Hi, are some of y’all undiagnosed too?
Hi, are some of y’all undiagnosed too?
I am! I wish I was, but a tough family situation (dad doesn’t believe in mental health and thinks I make everything up) doesn’t really allow for that! Someday though. I cannot wait to get help! For now, this app is the greatest support system for me. :)
Yes, well sort of. When I was 16 my therapist was the one who first brought it up to me and diagnosed me during one of our first sessions. I know that a different profession is needed for a proper diagnosis and to be honest I felt like she diagnosed me over the most minor things that I'd bring that I myself didn't even recognize as OCD. She also gave me "well everyone's a little OCD including myself" vibes, but now I know today that it's certainly OCD, but for different reasons rather than what she diagnosed me for.
I am!
I am actually diagnosed with generalized anxiety disorder not OCD. But still some things here feel similar or even more helpful than my therapy for the GAD.
I went for a long time being undiagnosed. I didn’t know I was autistic until just recently (in my 30s). I didn’t know I had OCD either until a patient shared a similar experience (and I’m a therapist lols).
Sadly
Hey, I’ve been doing some research on OCD and think I may have it. I’m not 100% sure, but I have a lot of the symptoms. I want to get myself diagnosed, but my parents won’t let me. They agree that it’s very likely that I have OCD, but they think that if I try hard enough, I can get over it. I don’t know what to do anymore or if what I have even is OCD, and I want to be somewhat sure before a I do anything. Right now, I’m a junior in high school, but freshman year was when my “OCD” was the most severe. I think I had (and still do) the symmetry/order subtype and “just right” subtype. I was obsessed with writing things neatly to a point in which I kept forcing myself to erase and rewrite things until all the letters were straight and all the graphs were neatly drawn (typing wasn’t safe either because I use Notability and felt the need to align every text box and make them all the same length). Handwriting was especially a problem in calculus A, and it got to a point in which I couldn’t keep up with the notes, and the homework was taking hours a night because I was obsessed with making my work perfect. Needless to say, I didn’t get a good grade in calculus A and didn’t build a good foundation for future math classes. This makes me really sad because I was previously really good at math and had a bright future in the subject. Eventually, I just stopped trying in calculus A, but by then, I felt burnt out, couldn’t concentrate on anything, kept putting things off, and lost the ability to properly manage my time. I think it may have escalated to executive dysfunction at that point, and it carried over to all my other classes. As someone who was previously pretty productive and good at planning, this was a huge hit on my self-esteem. I was also obsessed with symmetry. If I touched one side of my body, I had to touch the other side in the exact same place. If I was coding something, I would have to evenly distribute touch across each key on the keyboard. It felt like everything was a heatmap, and the colors had to be kept in balance at all times. I also avoided odd numbers because they were considered “asymmetrical”. I was obsessed with routine and had to complete tasks in a certain way, a certain order, and a certain amount of time. Even something as small as combing my hair for five minutes instead of six caused me extreme distress. Writing one word that “sounded off” on an English paper left me unable to keep writing until I fixed it. I had to keep the sound of my phone at a certain volume (6 normally, 10 when exercising, and 12 when cleaning, divide everything by 2 when using a computer) and had to walk a round number (any number that ends in 0) of steps a day. I kid you not when I say that some days I woke up and didn’t want to live anymore. Sophomore year, my mental health improved and I probably seemed overly perfectionistic but not to a point of concern. However, this year, the handwriting issue relapsed in all its glory during physics, and I’m not able to keep up with notes or homework. I feel the same way that I did in calculus A, and I don’t want history to repeat itself. I want to ask my teacher to let me do my homework on paper rather than the iPad (it’s easier for me to write on paper due to increased friction), but I’m scared to ask because I don’t have a formal diagnosis. I don’t know what causes my behavior. I feel like if I can’t do things perfectly, no one will like me. I’ll lose all my friends, and no boy will ever want to go out with me. I know it’s irrational. Literally no one cares what my notes look like or how long I spend on each step of my morning routine or whatever, but I constantly feel like people are judging me and will hate me the second I mess up. There are two more times in my life that I can think of when I displayed symptoms of OCD, contamination OCD when I was 9 and pure/religious/magical thinking/health concern OCD (they all just kind morphed together) when I was 11. I can go into more detail if you wish. As of now, I just want to know my behavior sounds like OCD, and if so, how to more forward. If not, I would love to know what I do have and how to treat it. Thank you so much.
I've never been diagnosed with OCD, but have thought for a long time that I do have it. I've tried to bring it up in therapy but have been shot down as "OCD tendencies". Luckily I'm with a new therapist and am planning to bring it up again. Especially after reading a lot of your posts, I'm really resonating with them. Especially my anxieties and obsessions with my health. God forbid I feel any weird pain or ache, I instantly think I'm dying. Sometimes I get a weird pain in my head and think it's a stroke or aneurysm. Ill go as far as the perform the stroke FAST test. This happens multiple times a day. I also have HUGE anxieties about death and my mortality. If I think about it too much, I get this deep cold pit in my stomach and spiral. Even talking about it causes me sooo much distress. I'm just worried I'll be dismissed or told I'm just self diagnosing because I related to a post online. But if any of this sounds accurate, please let me know. I'd love to be reassured of my obsessions rather than just dismissed as being anxious.
It started when I became an adult, and started receiving my mental health diagnosis. I hyper fixated on each and every action I did and how it could be related to my diagnosis’s. It then lead to fixation to my physical health — making appointments and seeing every specialist I can to rule out every possibility. I currently have been suffering with obstructive sleep. I woke up the past few days with severe pain from the lack of sleep whilst believing I was oversleeping. Luckily my fit watch tracks my sleep cycle and it turns out I am not receiving any sleep. I had an extreme panic attack — bursting into tears on the phone with my mom wondering what this case might be. She told me it could be sleep apnea and that a simple sleep study could figure this out. However, knowing my family history I made appointments to every specialist I can to make sure it is nothing serious. The unknown of health can be scary to me. Watching my mother suffer with her physical health chronically since I was a child lead me to be very conscious and aware of how my body is functioning. This morning was one of the worst moments of physical pain. I should just take one step at a time with the sleep doctor instead of taking measures to see every specialist that could pertain with this issue. However, that is very hard to me. I don’t want to ever wake up in the pain I was this morning. Does anyone else suffer with health-related OCD? And if so, how do you find a sense of ease during moments like I expressed?
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