When did you realize, you had OCD?

Hiii! This is my first post. I found NOCD through a tiktok ad that spoke to me. It was titled signs you didnt know were OCD or something like that, and one of the slides was “checking my pulse throughout the day to make sure i was okay”. This is something ive done for i dont even know how long. atleast 10 years, im 24 now. Ive always known Ive had OCD. Light Sanitation OCD runs in my family. But over the years ive started to realize i had way more than the “family trait”. Checking my pulse 40+ times a day is something i refer to as my “OCD tick”. Its to the point where people who dont know about my “tick” often ask if i am okay when they see me do it. Maybe this post is me putting it on paper for the first time so i myself can analyze but some other stuff i struggle with are: Often having thoughts of if i dont do A, B will happen. An example that is common for me is “if i dont refold this shirt me and my boyfriend will get into an argument” or if im out to dinner with a friend, “if i dont pick up this cup and place it back down, i will get into a car accident on the way home”. This is one i struggle with almost everyday, especially when im around people (work or outings). This compulsion happens multiple times a day. Now in my life i try to practice exposure therapy, even getting annoyed i feel the compulsion and think to myself “oh my god this is so stupid no!” but if i dont follow through i feel guilty. often when i get my next compulsion shortly after i tell myself “okay doing this will make up for not doing the previous one”. I definitely dont have a number based OCD, but i would have to pick up and put down the cup until it feels “right” or “correct”- same with checking my pulse. I have to check my pulse until the feeling is “just right”. With sanitation as i said before, i have a very clean and sanitary family, although mine is more severe than their feelings. I avoid touching certain surfaces after i have washed my hands, such as the front door knob, or living room tv remote, etc. If i need to touch or use these things, i have to immediately wash my hands again. Even if someone comes home and asks me to go and lock the front door ill often respond with “i cant i just washed my hands, if i lock the door ill have to rewash my hands”. thankfully my family is very understanding. I often feel like certain things are contaminated. For example when i come home i sanitize my phone immediately as it is contaminated from being outside of my house. I often have a feeling of something having to feel “just right”. If i go out to dinner i have to be the first to pick what seat or side of the booth im sitting on before the rest of my family sits down or i will feel anxious the whole dinner. Sometimes when im typing i have to back space and retype the same word over and over until i feel i typed it “just right”- even if i didnt make a typo. sometimes when i am driving and space out i often think “oh my god did i just hit someone” when there is no evidence that i have. it worries me. I think oh my god i mightve done a hit and run. But tell myself it can not be possible, theres no police chasing me, no honking, or anything. It is scary. this one is very rare. once in a blue moon i get a false memory. A main one ive felt since i was a kid is if someone or some object touches any part of my body, for example my left arm, i have to have them or atleast my self touch my right arm in the exact same way or i feel uneasy. this isnt with every single touch, but mainly when i feel triggered- although i never know what triggers a moment where i need the symmetry. I guess ive always known, i am very honest with my family, friends, and boyfriend about it. But i didnt start to realize how neurodivergent i was until asking some friends “you never randomly feel *insert compulsion*?” and they say never in their life have they felt like that. Im very self aware and have come to an acceptance with all these things, although it is debilitating. Periodically i think, wow it must be nice to not live life with these feelings but oh well. To be honest, downloading this app is the first step ive ever taken to find out more about OCD. Ive always kind of just been like “yeah i definitely have OCD but okay” more or less.

One of my first memories of OCD was from when I was about 8-12 years old. I’ve always struggled with sleeping and prone to twisting and turning due to my brain going like 🧠 🗣️🗣️🗣️ Anyways once I couldn’t sleep and got out of bed one of my parents said, with compassion, ”oh it’s so late, why are you awake it’s school tomorrow” and when they followed me to my room I saw that the time was 22:22 and I felt a really scary feeling in my chest (today I know it was anxiety) and from that day on the time 22:22 🕰️ followed me for years. I was twisting and turning and feeling anxious about my digital clock (I’m a 90s girly) turning 22:22. I could get issues taking deep breaths, being sweaty, uncomfortable and scared and feeling like ”ITS SOON 22:22 AND WHEN THE TIME PASSES IT WILL BE TOO LATE”. I never really understood exactly what was going to be ”too late” but I’m guessing it was getting too little sleep absolutely blown out of proportion. As soon it passed 22:22 it was all good and I could fall asleep 😴 I don’t struggle with those numbers today instead I smile and feel compassionate towards little me. Still OCD sucks, I still struggle with sleep times to times and do have some magical thinking but the big difference is that I logically know that it’s not real even if it emotionally sometimes feel that way. Take care out there. If this made you feel less lonely, wanna share your first memories of OCD? ❤️

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.