I need help

Posting here hasn’t felt super productive anymore. Idk if my experiences are not as common. But I’m limited in the treatments I have access to because of insurance. I can’t work with my conditions being this debilitating. I have tried specialized therapy before and now I’m reading books about my conditions to hold me over. I feel like I’ve hit a wall. Is this all my life will be? Pain, suffering, anguish. No dreams, barely surviving. Even when I dare to dream, work hard, graduate, whatever it doesn’t matter because life is too hard I can’t pursue these things. I can’t hold a job. I have no social life.

Anonymous

Date posted: Yesterday

Hang in there! Don't give up!!! 💜💜💜

sick&tired

Date posted: Yesterday

@Anonymous Thank you for your encouragement

Dianne Mae

User type: OCD Conqueror

Date posted: Yesterday

I’m so sorry you’re going through this and that it feels endless. You’re not alone. It’s hard to stay encouraged when OCD has felt exhausting and so demanding. But just showing up every day and trying (even when it feels nonstop or not helpful) is still a win. You’re still here and you’re still showing up. OCD robs us of being able to think outside of our trapped bubbles. The community is here to help you.. you’re not alone!

sick&tired

Date posted: Yesterday

@Dianne Mae Thank you for your compassion and kindness

Anonymous

Date posted: Yesterday

First of all, even though it is difficult, keep going. If insurance isn't able to cover your treatments, there are many people on Youtube that talk about the many issues they have. Watch videos that identify with your symptoms. I find comfort when I hear others saying what i feel. I can guarantee you that you are not alone. Others have had the same thoughts or situations that you have had. For many years I thought I was the only person to have the thoughts and symptoms that I have. After listening to others on youtube I have found many people who experience what I experience and I am not alone. If you are able, get outside and go for a walk. Experience nature or go to a festival. As far as OCD, it is a B$tch. You will need to challenge your thoughts and you will become stronger. I hope you stay strong and kick OCD's A$$.

sick&tired

Date posted: Yesterday

@Anonymous I appreciate your thoughtful response and wishes 🙏🏽 thanks for taking the time to write this

JS55555

Date posted: Yesterday

I think it is important for you to know that about every one of us who has recovered has felt this way

sick&tired

Date posted: Yesterday

@JS55555 After 15 years you start to give up on recovery. The intensive OCD outpatient programs, lots of ERP, TMS, prescriptions.. I’ve even been turned away from an OCD specialist in recent years because if I’ve tried all these things, they didn’t think there was anything more they could do for me. I have this and other conditions but they’re all lifelong. It just keeps on getting worse the longer you live with it.. all the weight of all the struggles adds up from each year and it’s just so painful and heavy. Out of pocket we have spent thousands and thousands on treatment. For someone who can’t even hold a job, it’s incredibly bleak.

Community AI...

User type: Staff

Date posted: Yesterday

Hi! I'm the NOCD Community AI assistant (currently in Beta), supported by the NOCD team. Would you like me to share some resources that might help? If so, just reply and let me know. As I'm in Beta, every response is reviewed by a member of our team, so we'll get back to you during office hours (Monday to Friday between 8 am and 5 pm CT). Thank you for your patience as we test to make sure we're providing helpful and thoughtful responses.

sick&tired

Date posted: Yesterday

@Community AI Helper What do you suggest for someone with treatment resistant OCD, severe depression, and autism?

Community AI...

User type: Staff

Date posted: 22h

@sick&tired - Fifteen years of fighting — including intensive programs, multiple rounds of ERP, TMS, and being turned away by a specialist — is an enormous amount to carry. That weight is real, and so is the exhaustion underneath your question. In a previous post, we shared some resources on ACT and autism-adapted approaches — those may still be worth revisiting if you haven't already. On the clinical side, "treatment-resistant" is the term clinicians use, but it means what you've tried hasn't worked — not that nothing can. There are a few options that may not have been part of your treatment picture yet, including I-CBT (Inference-Based CBT, a different framework than ERP that works better for some people), and for severe cases, interventions like deep brain stimulation and focused ultrasound. The intersection of autism + OCD + depression also often requires a specifically adapted approach that not all OCD specialists are trained in. "What is treatment-resistant OCD, and can I get better?" https://www.treatmyocd.com/what-is-ocd/info/ocd-stats-and-science/what-is-treatment-resistant-ocd-and-can-i-get-better Covers what treatment-resistant OCD actually means, why standard treatments sometimes fall short, and what the remaining options look like — including interventions typically reserved for cases where ERP and medication haven't provided enough relief. If things ever feel like more than you can carry right now, please know that support is available: https://www.treatmyocd.com/emergency-resources 🤍

Be a part of the largest OCD Community

Share your thoughts so the Community can respond