Has anyone found a physiological cause for their ocd? (That my not be the correct way to describe it). If so, if you treated the cause did it improve? For example, this all started for me after I had a rare complication during childbirth and almost died from blood loss. I immediately started having intrusive thoughts, then slowly started to develop a severe mystery condition and dysautonomia/pots. The crazy thing is though, that I have random days when it's almost like my body remembers wtf it's supposed to be doing and all of the pain, exhaustion, tension, and anxiety suddenly evaporates. It's like every cell in my body collectively sighs in relief. The same thing happens if I'm prescribed steroids. I guess what I'm wondering is, can ocd can be secondary to another condition?

Hi everyone! I’m feeling better today. I had a really bad flare yesterday, my husband really helped me calm down and fall asleep. However, if you have health OCD I feel like you probably shouldn’t read this post unless you are in a good head space. I do not have health OCD. So, I’ve been dealing with a lot of symptoms and health issues that have led me to alot of doctors visits, I have several different doctors that specialize in specific things and now go to an internal medicine doctor. My doctor thinks I have an autoimmune disease, so I’m running alot of tests for several different autoimmune conditions. My OCD has been dormant for a while. I would still deal with it sometimes, but it was way easier to manage. I’m not medicated for OCD. However, I do use arthritis cream and was prescribed muscle relaxers, I have not yet taken the muscle relaxers. So I had a really bad OCD flare last night, specifically Relationship OCD. My husband has just seen parole and I’m super excited for him to come home, but my OCD was trying to convince me otherwise. I also have a new nephew that was born on the 22nd. So I am out of state and was watching my niece for my sister in law. A lot of exciting things happening at once. I’m assuming that triggered my OCD. But I’ve been swelling in my face and dealing with a little bit of body pain as well. Autoimmune diseases come in flares like OCD. I have done some research on autoimmune diseases so I can know what I need to do in order to keep it under control if that’s what I do get diagnosed with. I learned that some autoimmune diseases are linked to OCD, or can even cause OCD because of inflammation in the brain. & It gave me a glimmer of hope honestly. Could my OCD have started because of an autoimmune disease? Could I get better by treating it? My OCD didn’t kick start until I was about 19. I am now 23. I did have symptoms of OCD at 17 though, I went through a period of time where I was compulsively praying and in a cycle of intense anxiety. So I probably had it since I was 17, but I don’t know. My symptoms of autoimmune disease didn’t start until about a year ago, but it could’ve been longer. I couldn’t get rid of a UTI I had for MONTHS & didn’t know why. I had to see a urologist, I was 21 when I kept getting UTI’s. I had to get a procedure done, I had pus build up in my urethra that was almost completely blocking off my urethra. I do not know how the infection got that severe.. especially because I took antibiotic after antibiotic. I felt like I’d get better for a few days, then boom…UTI symptoms once again. So.. that could’ve been the start of autoimmune symptoms. With an autoimmune disease, your immune system is pretty trash. You don’t fight off infections or illness as easy as others. I remember how I’d get sick after everyone else in the house would get sick, but I’d get it so much worse and have the illness for much longer than everyone else. Surprisingly enough, I never got COVID. My whole family had it & I didn’t get it. Unless I did and just didn’t have symptoms. Anyways, I never thought I would say this.. but I hope I do have an autoimmune disease that caused OCD so that I can treat the autoimmune disease and keep my OCD dormant for as long as possible. I forgot what it was like to deal with OCD.. it was so bad lastnight, I remember feeling that type of anxiety and it’s the worst.. 💔 If you took the time to read, thank you! I seem like a charity case lol.. I never thought by 23 years old I’d be like this.

Hi guys, This is my first post on here, as I’ve been scared to be vulnerable in this way. I’ve had a lifelong journey of mental health, diagnosed with a myriad of things, and misdiagnosed with others. When I got diagnosed with OCD, things started to click and treatment has been going well. There’s still a disconnect, things I do that are different than others and aren’t compulsion or obsession related. The reason I’m posting is to ask if anyone has been diagnosed with OCD/Autism and how you navigated that comorbidity. Thank you to anyone who shares

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.