- Date posted
- 4y ago
- Date posted
- 4y ago
luckily we have free healthcare so what we do get, we generally don’t get billed for. I’m 17 and started experiencing symptoms of OCD this summer. I held off from going to the doctors until it was pretty much unbearable, and when I finally did in November it was honestly useless. They didn’t do anything except tell me to come back if it got even worse. By the time I waited to see if it got any worse, the episode started to end and I’m now in that strange limbo between them. She even said “I’m not a psychologist but...” and then proceeded to tell me what she thought was going on (which wasn’t accurate to my experience at all). Definitely not good that time, but from speaking to friends it can take multiple visits before you get anywhere. Once you do, the system is apparently decent.
- Date posted
- 4y ago
This is so sad. I’m sorry y’all have to go through this.
- Date posted
- 4y ago
It’s frustrating, I don’t know if it’s making things worse because of Covid, but me personally new to ocd, they haven’t really got a clue but I think that’s mental health in general. It’s horrible talking to people on the phone and they talk to you quite condescending. A gp will just put u on an sri, things just labelled as depression/anxiety. Gp doesn’t have a great deal of power, I’ve had 2 referrals to mental health as I was going weeks without sleep because of nightmare intrusive thoughts and they took 8 days to get back to me.
- Date posted
- 4y ago
Yeah that sucks. There is so much that needs to be don’t to correct the system
- Date posted
- 4y ago
It's awful. "Free" yes. But completely inaccessible. I've been under care of mental health team since I was 16 (21 now), been begging for help with OCD since then, to be told no because it wasn't my 'biggest problem' (have other mental health issues too). Had OCD since I was 7 but not diagnosed until 16. Told the team I'm under 6 months ago I'm at breaking point and can't cope anymore with the OCD, they told me any OCD treatment will be 1-3 year wait because they don't offer it in my area yet and need to research it.
- Date posted
- 4y ago
So sorry to hear this man. Free isn’t always better that’s for sure. There has to be a better way. Keep fighting man I know it’s hard but hang in there
- Date posted
- 4y ago
@Dre83 Thankyou. I'm researching private options but have no income (literally none) because I'm disabled and have had my benefits taken away for no reason. I'm thankful for the NHS but the system needs changing.
- Date posted
- 4y ago
@LittleTurtle Totally agree that the system needs a pivotal change
- Date posted
- 4y ago
@Dre83 I think the shit will hit the fan this year with mental health. You need to sort that, that’s just not good enough.
- Date posted
- 4y ago
@avh202021 Yeah. Unfortunately there's not much the public can do. The NHS is massively underfunded and understaffed by the government. The people who do work in the mental health sector, most of them haven't been trained well (in my experience), simply because they hire anyone who applied pretty much.
- Date posted
- 4y ago
@avh202021 What do u mean by “ you need to sort that, that’s just not good enough”?
- Date posted
- 4y ago
@Dre83 Sorry that was kind of for little turtle, she deserves better care.
- Date posted
- 4y ago
@avh202021 Ah ok lol now it makes sense
- Date posted
- 4y ago
I come from a country with universal health care as well and the quality of health care is awful so I don't understand when many americans are asking for it in their country.
- Date posted
- 4y ago
@Meof3 I do understand because people can't afford treatment, ambulances etc. Everywhere needs to change idk
- Date posted
- 4y ago
@Meof3 Exactly I live in America and I don’t understand. They think it’s this great idea but as I’ve always believed you get what you pay for. But sometimes people gotta learn the hard way just sucks for those of us who know it won’t work.
- Date posted
- 4y ago
@Dre83 Yes! We definitely get what we pay for!!!
- Date posted
- 4y ago
@LittleTurtle Yeah it’s a cluster fuck. Insurance needs to be affordable for people. And people need to take care of themselves so rates don’t increase like they do.
- Date posted
- 4y ago
@LittleTurtle Like physically take care of themselves. A lot of conditions could be prevented if we ate healthier and exercised at least here in America cause obesity is a problem.
- Date posted
- 4y ago
@Dre83 100% agreed. People need to take care of themselves and not heavily depend on medicines
- Date posted
- 4y ago
@Meof3 Yep but America’s mindset is there is a pill for everything it’s quite sad to be honest. Nobody wants to do the work that’s required to be healthy physically
- Date posted
- 4y ago
absolutely awful i’ve been on a waiting list for CAHMS and i had extrememly severe ocd and anxiety and if not for my parents being able to afford to go to a psychiatrist for a couple of months to get medicated and get cbt and get me the help i need i don’t even know if i would be here anymore it was so bad
- Date posted
- 4y ago
Ugh... That sounds so awful. I cannot believe that people are put on a waiting list when they have severe OCD. Ocd can be so crippling.
- Date posted
- 4y ago
@Meof3 especially with covid the nhs are so slow and i get it but it’s not really okay
- Date posted
- 4y ago
@Amb They put me on a waiting list for a free service when I had my first bad episode late summer Still waiting Had 2 more bad episodes since UK mental health help sucks
- Date posted
- 4y ago
@🐈⬛ it does if you ever need someone to talk to i’m here for you!
Related posts
- Date posted
- 22w ago
My therapist isn’t specialized in OCD. I’m her first OCD client. She told me she’s taking courses in ERP and specifically sexual OCD since a lot of my themes are sexual in nature. I want help, I need help. It feels like every time I meet with her I get set back. I make progress a lot on my own. Sitting with discomfort, trying to accept the thoughts and uncertainty. But every single time I meet with her, it feels like I’m explaining OCD to her. She even went as far as to suggest that some of my thoughts that bring me distress are mine. I am not a cheater. They are not mine. Why on earth would they not be intrusive if I was in tears about having this thought? I feel bad. I really do because I can see that even though I can very much see her mistakes, I can also see that she’s trying to help me. I’m just so scared of getting worse. I’ve been in therapy for 5 weeks now. I feel like had it been with a specialist, I would be doing so much better. Instead it takes me days to come backs to whatever progress I’ve made alone after meeting with her. She’s a great person, she tells me she experiences intrusive thoughts too and she doesn’t have OCD which helps me feel less alone but I don’t think that’s enough for me. She’s always available for a call whenever I’m in extreme panic. I just don’t think this is working. I trust her and I tell her everything, but it feels like she’s just listening to me talk the whole time. We’re doing a workbook but she gives me absolutely 0 input. I just read my replies and she just sits there. I don’t understand the point in that. I feel so anxious right now. She wants me to get properly evaluated for anything that may be going on because on top of the severe OCD, I was also diagnosed with PMDD, GAD, and MDD by my primary care doctor but I guess she doesn’t trust those diagnoses? My psychiatrist also told me I have ADHD, which I’ve suspected my whole life but it sounds like my therapist doesn’t know how to handle OCD much less OCD, MDD, GAD, PMDD, and ADHD. She’s questioning the validity of my diagnoses instead of helping me figure out how to deal with all of it. This is so suffocatingly difficult. I’m also a huge people pleaser so how on earth do I end this thing?
- Young adults with OCD
- Relationship OCD
- Mid-life adults with OCD
- Older adults with OCD
- Somatic OCD
- Harm OCD
- POCD
- NOCD Therapy Alumni
- Date posted
- 16w ago
I feel really scared and worried that the therapist I find on NOCD might not be effective, and instead of getting better, I might end up feeling worse. I’m afraid that if I don’t feel any progress, I’ll want to switch therapists, but my mom might get impatient with me. I worry that she’ll lose faith in therapy, stop paying for it, and think it’s a waste of time and money. I know therapy takes time and it’s not a quick fix, but I’m scared that things won’t go the way I hope. What if I don’t connect with the therapist? What if they don’t understand my OCD as well as I need them to? I’ve already been struggling so much, and the thought of going through another disappointment is exhausting. I’m only 14, and I feel stuck because I can’t manage this on my own. I need help, but I also need my mom to stay patient and supportive through this process. I’m scared that if things don’t improve fast enough, she’ll give up on paying for therapy. I don’t know what to do, and it’s making me feel really anxious. I just want to get better, but what if nothing works out?
- Date posted
- 15w ago
Now that we’ve kicked off the new year, I find myself reflecting on where the OCD community is today—how things have changed for the better, as well as my hopes for the future. Ten years ago, it was almost impossible to access a licensed therapist with specialty training in OCD using health insurance. Most professionals simply didn’t understand what OCD actually looks like, so over 95% of OCD cases weren’t correctly diagnosed. As a result, insurance companies weren’t able to see how widespread OCD actually was—or how effective exposure and response prevention (ERP) therapy was at treating it. Instead, people with OCD had to pay about $350 or more per session, all out of pocket, for their best chance at getting their life back. I know this from personal experience. OCD turned my life completely upside-down, and I reached out desperately for help, only to be misdiagnosed and mistreated by professionals who didn’t understand OCD. When I finally learned about ERP therapy, the evidence-based treatment specifically designed for OCD, I learned that I’d have to wait for months to see the one OCD specialist in my area, and I couldn’t afford the cost. But I was fortunate. My mom found a way to help us pay, and I finally got the help I needed. Otherwise, I don’t think I’d be here today. In a few months, I started seeing improvement. As I continued to get better using the skills I learned while working with my OCD specialist, I learned I wasn’t the only one with this experience—in fact, millions of people across the country were going through the exact same things I was. That’s why we started NOCD. Since 2015, we’ve always had one mission: to restore hope for people with OCD through better awareness and treatment. The OCD community needed an option for evidence-based treatment that they could afford and access, no matter where they live—an option that also provided necessary support between sessions. And the entire healthcare industry needed to understand how OCD actually works. As I write this post, I’m more enthusiastic than ever about our mission. Just recently, we’ve partnered with Blue Cross Blue Shield of Illinois, Texas, New Mexico, Montana, and Oklahoma. To put this into perspective, 155 million Americans can now use their insurance to access NOCD Therapy. This year, I have high hopes for the OCD community. More and more people will be able to use their insurance to pay for NOCD Therapy, and we’re working hard to give everyone who has OCD the ability to access the treatment they deserve. In addition to providing ERP Therapy, our OCD-specialty therapists also support our Members in prioritizing their overall well-being. With a focus on developing important lifestyle habits, including diet, exercise, mindfulness, and healthy sleep hygiene, they help our members build a strong foundation for lasting mental health so people are more prepared to manage OCD long-term. For every person who gains access to a therapist specialized in OCD for the first time, 2025 could be a year that changes their lives. If you or a loved one is suffering from OCD, please comment below or schedule a free 15-minute call with our team to learn more about how to access evidence-based OCD treatment and ongoing support using your insurance benefits.
Be a part of the largest OCD Community
Share your thoughts so the Community can respond