This is the first post I’ve made here, as I have just recently been told I have OCD. I started therapy when I was 15 for an eating disorder, and have been pretty much consistently going for the past 5 years. It is incredibly scary to me that it has gone undiagnosed this long, and it took a few horrible spiraling episodes and me admitting I had a fear of smelling bad for a therapist to tell me it might be OCD. I’m primarily concerned about having another undiagnosed mental illness, that I have done unforgivable damage to other people’s mental health, and the general fear of losing my sanity. If someone could share the benefits of accepting the OCD diagnosis and starting ERP even if it is petrifying, I would greatly appreciate that. Warm wishes and peace to all of you struggling right now:)

Hi there! I was diagnosed with OCD when I was about 17 but never really understood it. I never knew there were so many subtypes of OCD. There are things that I do that I knew were OCD related like intrusive thoughts, excessive counting, and excessive organization. I used to take medication for it but I was young and didn’t think I needed it so I stopped taking it. As of lately, I’ve been going through a lot of stress and anxiety. I was already flirting with the idea of therapy but felt I had a good handle on life and told myself I could get myself through most issues, but lately I’ve even stressed and overwhelmed so I finally decided to make an appointment. In my therapy research I began doing more OCD research as well and realized that a lot of my life centers around OCD. I always thought it was just anxiety or feeling unsure about myself but after doing this research I’m starting to think my OCD is a lot worse than I thought it was. Sometimes I write an email at work and read it over several times to make sure I didn’t make a mistake, every night before bed I check several times that the stove/oven are off and that the doors are locked because I’m afraid my family and I will die overnight, I’ve come to learn that the counting makes me comfortable and that my cleaning and organizational preferences aren’t just “quirky”, I’ve learned that avoidance is a symptom of OCD which has also affected my work, when my loved ones are sleeping I always check to see that they’re still breathing, I reread directions several times to make sure I don’t miss anything or make a mistake, I press the lock button on my car several times even if I’ve already heard the beep, unread notifications on my phone make me anxious because I’m worried someone is trying to tell me bad news or someone is threatening me. The list goes on. I’m definitely interested in seeking more treatment and learning coping skills but I’m afraid it will change me as a person. I like who I am, what if I manage my organization skills and then I become too messy or I stop checking directions or things I wrote and I make too many mistakes, etc. I think I have to keep reminding myself that treatment will make me more comfortable in my own body and mind and that it is definitely a good choice and a step in the right direction. I really didn’t expect this post to be this long 😅 but getting all of this off my chest feels good! I’m open to any advice and/or words of encouragement. Thank you for your time

i was “diagnosed” with OCD less than a year ago. the reason i use quotation marks is because my psychiatrist isn’t very thorough, although i’ve only ever had one psychiatrist so maybe this is the norm. essentially, i went in to tell him i’d been struggling with intrusive thoughts, and he just said “that sounds like OCD” and wrote me a prescription for medication to treat it. when i went in to talk to him about it, i’d already had the suspicion i’d been dealing with OCD after learning about it in my college psych 101 class. ever since i was 8 years old, i’ve had awful intrusive thoughts regarding my faith, and i’d combat them through repeating prayers or little sayings over and over again in my head. i’ve been doing this for over ten years now. i have other intrusive thoughts and related compulsions (if i really have OCD) , too, but that’s the bulk of it. here’s the reason i’m writing this, though: the medications i’ve been taking haven’t helped much, so i think i need therapy, but therapy makes me nervous. i’ve been taking anti anxiety medication for roughly 5 years, so when i told my psychiatrist i was dealing with intrusive thoughts, he was really surprised because the medication i was on is used to treat OCD all the time. he’s tried a couple different changes to my medication, but none have worked, which leads me to believe i might need therapy to bridge the gap. therapy terrifies me, though, because i have this sinking feeling that if i seek out therapy, my therapist will discover i’ve been lying about my symptoms without me even knowing that i’ve been lying, if that makes any sense. i’m sorry this is so long. i guess i’m looking for some encouragement.

How did others do after first getting diagnosed? Did the diagnosis cause you to spiral initially? It feels like all the symptoms have become so much worse since, maybe because I am noticing them and focusing on them. I have been stuck on looking back through my whole life but now through an OCD lens and it’s been incredibly overwhelming realizing how much OCD has impacted me my whole life. I had previously assumed all the symptoms were part of my having ADHD and Autism, but I am now realizing a lot of my struggling was actually OCD. I’m 45 and I was diagnosed with severe OCD a week ago. Tomorrow I start ERP and I’m quite anxious about it. I feel pretty unfixable at this point, but I’m trying to be hopeful. I have my doubts that I will be strong enough to do this.