I have questions for those of you who have been diagnosed! 1) how did it feel for you when you started telling your friends about your diagnosis? Did you tell your friends and family at all? 2) Before your diagnosis, how did you feel about going to talk to a therapist or a specialist for the first time? Your answers are only for my reference and further understanding! Thank you.

Hi all, As of Monday, I received the diagnosis for Pure OCD during an ADHD evaluation. It came as a bit of a shock, despite knowing my grandpa had OCD (according to my parents and extended family, he passed away before I was born). I'm just a little lost on where to go from here. I'm trying to find a therapist who does both OCD and ADHD, but it's surprisingly hard. Do people typically have different therapists for their different needs? I've mentioned it to close friends and family, and when I've tried to discuss what I'm feeling, they said they do it too to a certain extent which is a little invalidating. Anyway, sorry for the ramble. Would anyone be able to give some advice/supportive words for a newly diagnosed college student? Thanks :)

Hi I’m currently undiagnosed but am so sick of the way I’m living that I’ve decided I seriously need to get help. I need advice on 1. How to tell my parents that I need help and 2. The process. The first part is hard because a couple years ago I talked to my mom about having OCD but she brushed it off and said “everyone has anxiety” so I just never brought it up again. I’m also a bit ashamed for some reason, I don’t know why, to bring it up to them and I feel scared. For the second part what’s the process of getting diagnosed and getting medication and therapy. Where do I get diagnosed and do I have to start therapy before getting medicated? Thanks so much for the help.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.