I have questions for those of you who have been diagnosed! 1) how did it feel for you when you started telling your friends about your diagnosis? Did you tell your friends and family at all? 2) Before your diagnosis, how did you feel about going to talk to a therapist or a specialist for the first time? Your answers are only for my reference and further understanding! Thank you.

So you got to ask me anything… Now I’d like to ask you something! I’ve heard from Members that they were so scared coming to their first ERP session. They were terrified that I would think they were crazy, that I would tell them their worst fears were true. That I would confirm they are some form of a terrible person or have them hauled off to prison for their thoughts. I’ve also had Members share how they’re very scared to begin ERP treatment because they’ve researched enough to know it means facing the fear, without the compulsions that have kept them feeling safe (but not really safe) this entire time. They struggled to see how they could be capable of doing this, while simultaneously acknowledging that they did not want to live like this anymore. If you have had your first session, what were your thoughts before? Did you have any hesitations or fears going into it? How did it turn out? If you haven’t yet begun to work with an ERP specialist, what is holding you back?

I finally found the courage to seek a psychiatrist last week, when I got there I was nervous for obvious reasons and felt a bit guilty. I met the doctor and don’t get me wrong he was very nice and knowledgeable in the bigger scope of mental health. Asked me questions of depression, anxiety, if I see things others don’t etc.. However, while we went through the assessment I did not receive a formal “diagnosis” and seemed as though he came to the determination what I have is general anxiety disorder. I don’t disagree, I know I have anxiety! However, when it came to the point where we were wrapping it up I had a “BUT WAIT” moment. I explained I was a part of an OCD community where I had previously been doing therapy to manage OCD. He asked “well why OCD?” I replied, “I have constant thoughts very repetitive thoughts that follow a theme and they are extremely persistent.” It was then I knew I couldn’t let down the walls and go into depth, as I knew he wouldn’t understand. To validate what I already knew, I said “I have constant fears and worries about my children, myself, and religion. I think about these things all day long. In order to free myself from the feeling I have to say a specific phrase or word in my head.” He said “well yea that’s normal to have worries and fears about your family, your religion” and so forth. The feeling of disappointment is an under statement, this is more than just “anxiety” this is something that I struggle with daily and to have a professional discredit my daily fight was off putting. Not his fault, it demonstrates the lack of knowledge for OCD and treatment many of us have to face. Sorry for the rant, sometimes we just have to advocate for ourselves.. 🌸

Hi guys, This is my first post on here, as I’ve been scared to be vulnerable in this way. I’ve had a lifelong journey of mental health, diagnosed with a myriad of things, and misdiagnosed with others. When I got diagnosed with OCD, things started to click and treatment has been going well. There’s still a disconnect, things I do that are different than others and aren’t compulsion or obsession related. The reason I’m posting is to ask if anyone has been diagnosed with OCD/Autism and how you navigated that comorbidity. Thank you to anyone who shares