So I know a lot of people search for the cause of OCD so to speak. And while no known direct cause is really scientifically stated and it just seems to be a huge puzzle right now (like the human brain in general honestly), I'd like to talk about where I think my OCD roots from. I'm unsure why I'm posting this, writing my thoughts off probably. I digress, I think for me it started actually after getting bullied/isolated at school. I don't hear people on this app talking about this a lot but I bet a lot of us have been bullied/ignored/isolated before. I've read in a study before that the odds of developing OCD after bullying is from what I can recall 10 times more likely (I think it was even more). It was a higher odds than with depression, which shocked me at first because everyone knows that bullying can onset and that it increases the chance for that depression. But then I gave it a thought. The bullying made me become more perfectionistic, making me feel like I couldn't do anything right, lose self confidence, doubt myself a lot, etc. Perfect recipe for OCD, it sounds like. If anyone's interested I'll post below what my experiences at school were, but honestly I am more interested if many of you guys also went through something similiar.

I wanna start out by saying, I am really proud of how far I've come in recognizing my OCD tendencies and learned about how it can show up intersectionally for BIPOC folks who have racialized trauma and how me, being a White person, how it manifests itself for me. I'd also like to say, this is gonna be more of an analytical and reflective post. Please feel free to read and respond with any critiques or thoughts you have. I'm embarrassed about it nowadays, but it's important to acknowledge because it was a HUGE part of my teenage personality, unfortunately. I used to be a HUGE Shane Dawson fan 😭 like, his content was my strongest hyperfixation to date. So at this point in time, I feel like I'm still trying to decipher what kind of racial commentary and satire and jokes are genuinely funny and which are just perpetuating stereotypes and straight up minstrelsy. Shout out to D'Angelo Wallace for making the video essay that woke me up to seeing this issue more clearly. I try to be aware of how I can easily fall into just laughing at racial stereotypes without being aware of the serious consequences it has for BIPOC people, but at the same time, I don't want to be too worried about everything being racist and therefore that means it's bad and should be banned, cause that's also not always helpful, I've noticed. So racialized fear and polarization is something I'm deconstructing. I hate to admit this, too, 'cause it's embarrassing, but my OCD seems to latch onto racial issues. I end up obsessing about whether or not I'm causing marginalized people harm or not, particularly when it comes to racism. I believe this is because I know I was one of those White kids who was into "edgy" humor when I was a teen. I think it's just lingering guilt from knowing that was wrong, but OCD makes my guilt and rumination and therefore compulsions to "fix" it so much worse than most people. It's frustrating, but I have come a very long way in confronting and dealing with it. I'm very proud of myself for being aware that that's an issue I have. I've got to give credit where credit is due, to my biracial friend (who also happens to have OCD) for essentially helping me learn this, albeit the hard way with many arguments about racism and trauma. It's something that isn't talked about much, but we're learning to build bridges in our understanding of how mental health affects us as people with different forms of racialized trauma. Mine's not so much trauma, but social stigma, whereas his was from actual bullying and harassment and physical assault, simply because of his race. I've also learned how to recognize and deal with my own mental health issues WHILE confronting race because of Black advocates like Tony Nabors who does Racial Equity Insights, F.D. Signifier who does really great intersectional analyses on social issues pertaining to Black people, and D'Angelo Wallace for being the first Black YouTuber that made the problem with Shane Dawson video that finally helped me break out of my lowkey toxic parasocial/trauma bond relationship I had with him, lol. Does this post seem too wordy and analytical for this forum? Let me know if this isn't the right audience for this type of writing and reflection. I just wanted to talk about it because it's something I had to figure out largely on my own. Wondering if anyone else relates to this or can see themselves in this.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.

Hello everyone! This is my first post since downloading the NOCD app and wanted to share a little about my life with OCD. I was first diagnosed when I was 17 but truly started noticing there was something going on with me as early as 10. To summarize: I have the repetitive ritualistic type of OCD. Basically, I have a fear of becoming other people. I believe that if I perform an action, like turning off the sink or closing a door, or even breathing in and out while thinking about somebody, especially someone that I dislike, that eventually I will become just like that person or experience something they've been through that is negative; like health issues, personality issues, or social status decline. Simple example: I know this one dude named Richard, I worked with him in retail, and he told me about how his brother died at a young age. Now, it’s nighttime, and with that new information known about Richard, I believe, that If I take my contact out while thinking of Richard, or an image of him appears in my head while I’m taking out my contact, I believe that MY brother is going to eventually die too. What’s the solution?: I worked with another kid in retail. His name is Mikey, he was decently put together, and his brother didn’t die. So that means: Now with my contact still on my finger, I put it to my eyeball, and keep tapping at my eyeball with my contact while trying to get an image of Mikey perfectly timed, so that I can cancel out the image of Richard and save my brothers life. This is a challenge because the image of Richard, or I should say, the fear that my brother could die from this thought, is strong, and often times I have to think of other people (from other life experiences) along with Mikey just to feel confident that I got the image cancelled enough to move forward. Every day, I complete many actions and with every action comes a thought or image of some person I’ve encountered in my life that I’m either afraid of becoming or obtaining the same negative life experiences, which therefore means I also have all the othet people in my mind, at the ready, that cancel them out too. Every day I cancel people out and repeat actions disguised to the public. Sometimes it’s noticeable, but knowing how to cover your ugly side while making sure you don’t mess up your future with the wrong thought is just what I call life. I’m a man with a thousand people in his head and its been an EXHAUSTING journey. But through therapy and acceptance of myself, I have found a way to love with it. Like anything else, there are horrible days and okay days, but this is apart of me forever and im lucky to share it all with you! Can anyone relate?? Feel free to comment or reach out! - Matt