So I know a lot of people search for the cause of OCD so to speak. And while no known direct cause is really scientifically stated and it just seems to be a huge puzzle right now (like the human brain in general honestly), I'd like to talk about where I think my OCD roots from. I'm unsure why I'm posting this, writing my thoughts off probably. I digress, I think for me it started actually after getting bullied/isolated at school. I don't hear people on this app talking about this a lot but I bet a lot of us have been bullied/ignored/isolated before. I've read in a study before that the odds of developing OCD after bullying is from what I can recall 10 times more likely (I think it was even more). It was a higher odds than with depression, which shocked me at first because everyone knows that bullying can onset and that it increases the chance for that depression. But then I gave it a thought. The bullying made me become more perfectionistic, making me feel like I couldn't do anything right, lose self confidence, doubt myself a lot, etc. Perfect recipe for OCD, it sounds like. If anyone's interested I'll post below what my experiences at school were, but honestly I am more interested if many of you guys also went through something similiar.

I wanna start out by saying, I am really proud of how far I've come in recognizing my OCD tendencies and learned about how it can show up intersectionally for BIPOC folks who have racialized trauma and how me, being a White person, how it manifests itself for me. I'd also like to say, this is gonna be more of an analytical and reflective post. Please feel free to read and respond with any critiques or thoughts you have. I'm embarrassed about it nowadays, but it's important to acknowledge because it was a HUGE part of my teenage personality, unfortunately. I used to be a HUGE Shane Dawson fan 😭 like, his content was my strongest hyperfixation to date. So at this point in time, I feel like I'm still trying to decipher what kind of racial commentary and satire and jokes are genuinely funny and which are just perpetuating stereotypes and straight up minstrelsy. Shout out to D'Angelo Wallace for making the video essay that woke me up to seeing this issue more clearly. I try to be aware of how I can easily fall into just laughing at racial stereotypes without being aware of the serious consequences it has for BIPOC people, but at the same time, I don't want to be too worried about everything being racist and therefore that means it's bad and should be banned, cause that's also not always helpful, I've noticed. So racialized fear and polarization is something I'm deconstructing. I hate to admit this, too, 'cause it's embarrassing, but my OCD seems to latch onto racial issues. I end up obsessing about whether or not I'm causing marginalized people harm or not, particularly when it comes to racism. I believe this is because I know I was one of those White kids who was into "edgy" humor when I was a teen. I think it's just lingering guilt from knowing that was wrong, but OCD makes my guilt and rumination and therefore compulsions to "fix" it so much worse than most people. It's frustrating, but I have come a very long way in confronting and dealing with it. I'm very proud of myself for being aware that that's an issue I have. I've got to give credit where credit is due, to my biracial friend (who also happens to have OCD) for essentially helping me learn this, albeit the hard way with many arguments about racism and trauma. It's something that isn't talked about much, but we're learning to build bridges in our understanding of how mental health affects us as people with different forms of racialized trauma. Mine's not so much trauma, but social stigma, whereas his was from actual bullying and harassment and physical assault, simply because of his race. I've also learned how to recognize and deal with my own mental health issues WHILE confronting race because of Black advocates like Tony Nabors who does Racial Equity Insights, F.D. Signifier who does really great intersectional analyses on social issues pertaining to Black people, and D'Angelo Wallace for being the first Black YouTuber that made the problem with Shane Dawson video that finally helped me break out of my lowkey toxic parasocial/trauma bond relationship I had with him, lol. Does this post seem too wordy and analytical for this forum? Let me know if this isn't the right audience for this type of writing and reflection. I just wanted to talk about it because it's something I had to figure out largely on my own. Wondering if anyone else relates to this or can see themselves in this.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.

tw: abuse I feel like my early childhood experiences may have caused OCD. Most of them not really positive, involving one that was somewhat sexual but could be passed off as a brief accident (without going into detail), though even that I feel like has left a scar of some sort. I also endured neglect and unfortunately physical abuse for a really long time so I do sometimes get flashbacks of certain things and it's tragic what happened. This made me hide completely everything from my parents and not interact with them, instead being left completely alone to figure things out myself. It made me redirect to the online world where morbid curiosity led me to really disturbing stories and tales, all at an age where I wasn't really able to process it completely and instead resorted to saying "This wouldn't be me, 100%. This is disgusting.". Could this have caused my OCD? Maybe helped trigger it, not like it made it any better. I almost feel like I was watching those videos compulsively, to see whether I still react "how I'm supposed to". I was also raised in a very religious and strict household, where any deviation from the norm was considered "against God" which also is how OCD started - with me getting blasphemous thoughts and feeling like I'm going to hell over it. It's also caused a lot of internalized homophobia / transphobia where OCD told me that by being LGBTQ+ I'm immoral or that "God has left me to my own twisted desires" and that the next step is complete immorality. Hell, it even made me avoid the term "pan" and use "bi" instead because it told me "So you're open to relationships with all genders, sure, but what if you start ignoring everything altogether?", yikes. I even had transgender OCD, but the kind where you're afraid you'll suddenly become the other gender / are on your way to becoming the other gender AND that you'll be socially outcast for it. Interestingly enough, I've learned that it's nothing dangerous and I am in theory transgender - not the opposite sex assigned at birth, just outside the binary. And I can already hear OCD screaming "SO YOU'RE GONNA NORMALIZE SOMETHING BAD NEXT" - no, I won't. All the theme's I've had up until this point were characteristic of Pure OCD - always things that are seen by me as "unacceptable" or "wrong". Whether it's me having swears interjected into prayer, or worrying that I'll become trans and be outcast, or then worrying about harm ending up on sexual OCD, all revolve around me fearing that I'm not who I think I am and trying to desperately figure out whether that's the case. Anyone relate? Any advice you would have for me? I feel like this could be CPTSD / generally trauma but then I'm not qualified to say that it is with certainty. Just wanted to rant / vent.