Hi NOCD users, welcome to our app designed to allow you space to share your experiences and for us to share helpful information. I was wondering what are your thoughts about the level of difficulty separating your trigger from your obsessive thoughts and then separating the obsessive thoughts from the compulsive behavior/action? I find through working with NOCD clients, that many run all of these together because it can be very difficult to catch and separate them from each other? At times, it seems to all happen so quickly and automatically that you may not see them as separate? Would love to hear your thoughts. Thank you for being here and any efforts to answer these questions for me!

Hello! I'm new here and new to OCD. My therapist suggested I might have OCD due to my tendency to ruminate endlessly on doubts and fears. These thoughts are indeed intrusive and I can't seem to stop them. The thing I'm kind of stuck on is that I can't see where the compulsions come in. Unless the thoughts themselves are compulsions. Can anyone relate to this?

I have a lot of thoughts about the universe, and they’re overwhelming—like being caught in a rip current, except it’s all inside my head. Most of the time, they’re about how small we are, how there really isn’t a “we” because our bodies aren’t truly ours—we’re just bacteria, cells, and microbes. The thoughts spiral, deeper and deeper, smaller and smaller, coiling until suddenly, I’m pulled under, drowning in a whirlpool. I’ve never felt like this before, and I’m convinced I’ve been faking it somehow. For the past few weeks, my OCD has been worse than it’s ever been in my 20 years of life. Or maybe I’m just more aware of it now. Has anyone else had their OCD suddenly get really bad? Does it ever end—if it even can? I’ve convinced myself that my intrusive thoughts aren’t actually intrusive, that my OCD is a choice, and that everything I do is intentional. As for compulsions, I don’t have the typical “If I don’t do ____ then ____ will happen” kind of thoughts. Instead, my brain simply commands, “Do ____,” and I always give in. It’s so loud in my head, and I can’t shake the feeling that I’m an imposter. Like I don’t belong here—like my presence on this app is an intrusion, invalidating everyone else’s struggles just by downloading it and daring to post. If anyone feels that way, if you think I’m intruding, I’m sorry. I only came here because I have no one to share my diagnosis with. Pouring my thoughts out, hoping someone might understand, feels less suffocating than journaling. Journaling is like letting a wound fester—each word burying the thoughts deeper, leaving them to decay in silence, for nobody to ever read but myself.

I get asked about the name NOCD a lot. People might want to know how it’s pronounced, and they’re curious about our story. Every time, I’m excited to share a bit about what the name means—in fact, it’s an opportunity for me to talk about something everyone should know about OCD. First things first: it’s pronounced “No-CD.” And it actually means a couple things, both central to our mission: To restore hope for people with OCD through better awareness and treatment. The first meaning of our name is about awareness: Know OCD. Though we’ve come a long way, not enough people truly know what OCD is or what it’s like. How many times have you heard someone say “Don’t be so OCD about that,” or “I wish I had a little OCD. My car is a mess!” Things like that may seem innocent, but they trivialize the condition and keep most people with OCD—around 8 million in the US alone—from getting the help they need. The second meaning of NOCD is about treatment: No-CD. To go a bit deeper: Say “No” to the compulsive disorder. On one level, this is also related to knowing OCD—noto means “to know” in Latin. This inspired the name NOTO, the operations and technology infrastructure that powers NOCD the way an engine powers a vehicle. But this meaning goes even further. It has to do with how you can manage OCD symptoms—learning to resist compulsions. This is the foundation of exposure and response prevention (ERP) therapy, the most effective, evidence-based form of treatment for OCD. Learning how to resist compulsions with ERP changed my life, and it taught me how important it is to get treatment from a specialty-trained therapist who truly understands how OCD works. I’ll give you an example. When I was 20, my life was going according to plan. I was thriving on the field as a college quarterback, doing well in school, even winning awards—until OCD struck out of nowhere. I started having taboo intrusive thoughts, things that horrified me and went against my core values and beliefs. Desperate for help, I saw several different therapists—but no one diagnosed me with OCD. At one point, I was instructed to snap a rubber band against my wrist whenever I had an intrusive thought. It was supposed to stop the thoughts, but it only made my symptoms worse. Driven into severe depression, I had to put my entire life on pause. Once I started ERP with a therapist who understood OCD, I learned why: you can’t stop intrusive thoughts from occurring. Everyone has them—and the more you try to get rid of them, the worse they get. Anything you do to suppress them is actually a compulsion, whether it’s counting in your head, snapping a rubber band against your wrist, or using substances to drown the thoughts out. To get better, you have to learn to resist compulsions and accept uncertainty. OCD doesn’t get to decide how you live your life. How do you educate the people in your life about OCD? Whether friends, family, or strangers, I’d love to hear how you share your understanding and raise awareness about OCD.