- Date posted
- 7y
- Date posted
- 7y
Yes, I went to therapy for a long time before I was diagnosed with OCD by a psychologist. None of my therapists before that even mentioned the possibility of OCD, even though I had the symptoms then. But once you are diagnosed it is so helpful, because now you can start treating OCD specifically.
- Date posted
- 7y
Looking back, it seems so obvious that it was OCD. I wonder what it would’ve been like if I had gotten treatment all the way back then.
- Date posted
- 7y
I feel the same way! It seems so obvious now. I wonder that too, if I would have my OCD under control by now.
- Date posted
- 7y
@Jayge I literally experienced the same exact situation. My thoughts came after experiencing a major trauma but I had the same kind of thoughts. I was diagnosed as MDD and proceeded with talk therapy for the next 5 years. It did very little to help. In fact when I look back a lot of what happened in therapy only perpetuated the OCD. In hindsight it was so obviously OCD. Ten years later and only 2 months ago did I receive this diagnosis.
- Date posted
- 7y
I feel the same. Speech therapy didn’t help at all with my OCD, which made me feel so hopeless. I wonder how common that story is. I think there is a general lack of knowledge among a lot of doctors and therapists concerning OCD.
- Date posted
- 7y
I also got misdiagnosed, for 20 years. I have relationship ocd (obsessive jealousy), which isn’t well known or common. So most of my therapists told me I had attachment issues or was insecure due to a shitty childhood. I actually did my own research (Dr google!) and found (very few) things online about ROCD - but still something - that made me think “huh, this is not just simple insecurity!”. I went to an ocd specialist and told them what I thought, and they immediately got it (finally)! But that was just 2yrs ago, so I’ve been suffering with no knowledge of what was going on for 20 years!
- Date posted
- 7y
I was sent to a psychiatric facility when I was 15. By this time i had been experiencing symptoms as far back as I could remember, but I hid them. About a year earlier I realized I had OCD when I read a book about it. I told the doctor in the facility and he scoffed at me. I didn't know it then, but my mom told me later I was diagnosed with schizophrenia (totally unrelated and ethically wrong to diagnose a kid with this who showed no symptoms) because I didn't know i had that diagnosis anytime I went to psychiatrists and said I have OCD, they read in my chart that I had schizophrenia but also did not tell me that. I also was diagnosed with Tourettes at one point. Only this year, at age 35, did I receive the diagnosis I knew all along I had, over 20 years ago. So I'd say yeah, western medical health is very far behind and does not respect or listen to people about their own minds and bodies. By the way it's EXTREMELY obvious I have OCD so there's no excuse for any of them ;,)
- Date posted
- 7y
I was called “just anxious”
Related posts
- User type
- OCD Conqueror
- Date posted
- 23w
OCD is so much more than just being 'neat' or 'organized'—it’s relentless, exhausting, and often deeply misunderstood. The intrusive thoughts, the compulsions, the anxiety—it can feel like a never-ending cycle that others just don’t seem to get. Many of us have had experiences where even therapists didn’t fully grasp the depth of our struggles. I myself faced difficulty being misdiagnosed and my talk therapist not understanding the full extent of what I was going through until I found NOCD. So many prior therapists wrote off my symptoms as general anxiety, not realizing it was actually OCD all along. If you could sit down with a therapist who truly wanted to understand, what do you wish they knew about OCD?
- Date posted
- 21w
Can someone please tell me if there are any other similar diagnosis to OCD I am convinced that I was misdiagnosed or that I miss spoke to the extent that I have made the provider who did my psych evaluation misdiagnose me with OCD. I have intrusive thoughts of suicide constantly. I have intrusive thoughts that cause me intense distress and disgust. I am constantly ruminating for hours on different situations and even crying as I type this because I don’t know what’s wrong with me but I feel like I’m not aligned in a prescriptive way with what OCD is. I am extremely frustrated. I just want to know what is wrong with me And there are so many things that I see within the OCD community that align with my experiences, but I feel like from conversations I’m having maybe I’m just anxious or a flawed person and I’m not saying that for reassurance I really feel that way I don’t know what else to do. This is a recent diagnosis so anyone who has felt this way or has similar diagnosis to OCD it would be great to hear from you. Thanks.
- Date posted
- 11w
Ok, so first of all, I’m undiagnosed. However, I’ve been pretty certain for a while now that what I’ve been struggling with is OCD. My problem though is that it’s not easy to get diagnosed, and in some cases, it would require me to pay money. It frustrates me that I have to pay to deal with my mental health. Is it worth it for me to get diagnosed? I know I don’t need a diagnosis to start healing and working on these things, but I also don’t want to be “self diagnosing” the problem, because that makes me feel like a liar and an imposter. My other problem is that I fear my family doctor won’t properly diagnose me. I came to him about mental health related issues once before, and he read off a very generic list of mental health symptoms. when he got to what sounded like the ‘OCD’ section, we asked one or two very generic questions that had nothing to do with my themes, and since I couldn’t relate, I just answered no to them. He then told me I was fine, that I was just a “type A personality”, and that I was just being too hard on myself. I fear that my doctor might not be very knowledgeable or up to date on current information regarding OCD, and this might make it increasingly difficult for me to get diagnosed. Another problem is my symptoms seem to come and go. I often have an obsessive cycle that can last months at a time, and then it just goes away. Sometimes I won’t experience any symptoms for years. This makes me feel like I don’t actually have OCD or that it’s not ‘bad’ enough to be diagnosable.
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