Was anyone else ever misdiagnosed as having something instead of OCD? Because when I started obsessing five years ago, I had intrusive thoughts about death, which led the doctors to believe that I wanted to harm myself when in reality it was my OCD. So, I was diagnosed with depression, and got treatment for that rather than OCD. It wasn’t until earlier this year they realized I was suffering from OCD.

I've never been diagnosed with OCD, but have thought for a long time that I do have it. I've tried to bring it up in therapy but have been shot down as "OCD tendencies". Luckily I'm with a new therapist and am planning to bring it up again. Especially after reading a lot of your posts, I'm really resonating with them. Especially my anxieties and obsessions with my health. God forbid I feel any weird pain or ache, I instantly think I'm dying. Sometimes I get a weird pain in my head and think it's a stroke or aneurysm. Ill go as far as the perform the stroke FAST test. This happens multiple times a day. I also have HUGE anxieties about death and my mortality. If I think about it too much, I get this deep cold pit in my stomach and spiral. Even talking about it causes me sooo much distress. I'm just worried I'll be dismissed or told I'm just self diagnosing because I related to a post online. But if any of this sounds accurate, please let me know. I'd love to be reassured of my obsessions rather than just dismissed as being anxious.

Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?

I started dealing with OCD when I became fixated on health issues, particularly the fear of contracting a life-threatening disease. If I experienced any kind of medical symptom, no matter how small, that even remotely hinted at something potentially fatal, it would drive me crazy, and I couldn’t stop obsessing over it. Then one day, I started having intrusive thoughts about accidentally hitting someone with my car, and I would end up driving in circles to check if I had. Eventually, I found myself overwhelmed by a flood of new obsessive thoughts and compulsions. One day, while I was at the park, a squirrel came near me, and for some reason, I felt like it attacked me. I Googled it and learned that squirrels could carry rabies, which spiraled me into a deep fear of rabies. I became consumed with the thought I received a bite from a squirrel, raccoon, or bat any time I’m in areas that trigger me. It started off only being inside then transferred to even being in my own home. This made me obsess over every physical sensation in my body, compulsively checking to make sure nothing was wrong. One compulsion that I hated the most would to be putting rubbing alcohol on me to make sure that I had no open wounds. Every day feels like I’m walking around in a fog of anxiety, constantly worrying that I won’t even make it to old age. Sometimes, it gets so overwhelming that I just want it all to end. It stresses me so bad at times to where my brain feels like I’ve been studying all day.