- Username
- polkzer
- Date posted
- 3y ago
Mine is a bit of a different presentation. It is somewhat episodic or it waxes and wanes. I had my first episode when I was 7 and convinced that I was contaminated with poison and that I subsequently was going to die and kill all of my family. That lasted for a few months until my avoidance behaviors stopped. I didn’t have another episode until I was 12 and became convinced that I was possessed by a demon and going to kill my family. That one was really intense but lasted a shorter period of time. Then I experienced mild levels of depression and significant generalized anxiety throughout high school until I had a terrible episode of ROCD after a traumatic experience when I was 18. Since then I have had significantly higher levels of anxiety with some compulsive behaviors and avoidance and also have been going to therapy. It wasn’t until two years later after that I was diagnosed by my psychologist with OCD (which was just a month ago) as I had a bad episode this summer that incapacitated me for a while and I’m working through at the moment but I am doing better at the moment. I wish you all of the best with your journey!!!
I cant imagine having to deal with such a difficult OCD thought at just the age of 7. I respect your resilience and hope that you're able to overcome OCD in the future. Best of Luck!
My OCD was subclinical as a child. My OCD at that time was contamination based. I think my parents had chalked it up to being a personality thing or me being sensitive, but as a child I genuinely remember being afraid of getting contaminated by germs and dirt. Cleaning my room was a nightmare and I would often feel tingly after cleaning. Like I would legitimately feel like I was contaminated and I would have to wash until the tingles went away. My OCD didn’t become clinical until I was 14 though. That’s when I got SO OCD and it was very severe. At 15 I started having general sexual OCD. 16 I got scrupulousity and real event. Now, 19 going on 20, I just struggle with all of them except contamination. When I was 15, I saw someone who was completely unqualified in diagnosing and treating OCD. They dismissed me and didn’t give me help, but I ended up going back to them during my senior year of high school. I had begged my mom to let me see an OCD specialist but she refused to believe me so she took me back to someone who couldn’t even treat me. They did talk therapy which doesn’t help OCD. I did get medication, but I really needed therapy. I like to think ages 16-17 I had mild-moderate OCD. At age 18, it became severe again. I ended up having to get my own therapist through NOCD after my spike. I was doing well, but recently I’ve been doing bad again. Between being in college, dealing with family problems, having complications with medication, and now only doing therapy once a month, it’s been horrible. Two months ago my OCD would’ve been mild maybe even subclinical. Now it’s moderate.
Argh Its always so saddening to hear to someone deal with Incompetent therapists. Im so sorry that you had to go through that, without the support of a parent nonetheless . Balancing this situation is commendable, I actually dropped out. I hope that what your experiencing is the worst of it and that nothing but tranquility awaits you. P.S Ponyo is an amazing movie
Mine started when I was around 8. I was so scared because I had awful thoughts about stabbing myself, my parents, or even strangling my baby brother. I also worried about calling my dad swear words that randomly came to my mind. I had no idea it was OCS. Many years later, I got a boyfriend. Everything was perfect and amazing and I couldn't believe how lucky I was to find such an amazing guy who fit me perfectly. A few weeks into my relationship, all hell broke loose. I started worrying about everything. That I was gonna hurt him, murder him, or leave him....just like the thoughts I've had as a little eight year old. I started doing more research, panicking on if I was going insane. Then I found out about hard ocd and relationship ocd. It escalated super quickly from 0-a million in a span of days and started affecting my daily life. More ocd themes popped up like sexual ocd, sexual orientation ocd, and a few more. After a few weeks of constant thoughts and stress and anxiety, I got officially diagnosed with ocd of many different themes at an OCD center. Thankfully, my boyfriend understands my condition and doesn't get mad or anything with stuff I think. He's so understanding and he tries his best to help support me as I try and get through this tough time. I'm gonna get ERP soon hopefully so this nightmare can be over!!
*OCD *harm
My story is kind of complicated. I had my first intrusive thought at the age of 8. There are some themes that I have had for many years. Some last for weeks or even months. I am 45 years. Up until about 3 months ago, OCD wasn't even on my radar. I thought OCD was just handwashing and being neat and organized. I never had either. But in July, I heard a podcast. The host was interviewing a woman who has OCD. I was shocked to realize that I had many of the same thoughts as the guest. I threw myself into researching OCD to convince myself I didn't have it. But it had the opposite effect. Once, I knew what to look for, I recognized various themes over the course of my life. But I started to doubt I really had it. So much so that when I had my 90 min assessment, I was convinced my counselor would tell me I didn't meet the criteria for OCD. Instead, I got a diagnosis. I threw myself into ERP. I made rapid progress. Honestly, ERP is one of the hardest things I have ever done. Some of the exposures I did were brutal. But it works. I am well on my way to recovery. My OCD is starting to fade into the background. My only regret is not starting treatment sooner. But I believed everyone struggled the way I did. I had no idea that what I was experiencing wasn't normal. Just prior to starting treatment, I was at a very low point. I felt hopeless and like nothing would ever change. Before I knew I had OCD, I did about 10 years of talk therapy. I would go weekly for up to 2 years. I never made any progress. I did everything I was supposed. I would eventually get frustrated and quit. Even switching counselors didn't help. I felt worse at the end than I did at the beginning. Its like I was trying to put together a puzzle. But a lot of the pieces were missing. I had a few pieces that kind of fit together. Once I added the OCD pieces, everything started clicking and the puzzle was finally completely. It looked completely different than I thought it would. But it all fit together. I have made more progress in 3 months with my NOCD therapist than I did in years of regular therapy. Its amazing the difference applying the correct treatment to the correct problem can make.
I had never really had OCD symptoms like this a few months ago. I had struggled a little bit with anxiety and had always had a fear of uncertainty but I’ve never felt a 24/7 pain anxiety, guilt and fear like this. I was pretty happy😭 Have others had this experience as well? Did it just show up randomly from one intrusive thought that you couldn’t brush off? Is it possible to get back to how you were before or will I have to “manage” for the rest of my life?
Hi everyone. I have PANS OCD and had it early as a child around 5. It was debilitating I went though counting, contamination OCD even thinking family members were contaminated, hand washing till my hands were raw and more I had a good childhood but it was heavily OCD based which stinks. I am now 25 and have had manageable OCD throughout the last 10 ish years. Up till late last year I got it back again worse than ever.. I am now worried about asbestos and mold and lead and household things we moved into an older home and it’s been awful. I also worry constantly 24/7 about death… also We don’t have any of those materials In our home but my OCD won’t leave me alone. I went into treatment didn’t sleep the 4 days I was there and checked myself out, I instantly regretted it and tried going back but they wouldn’t let me back right away unfortunately. I am seeing my therapist once a week and trying to live life as an adult with OCD it never fully went away but it was so manageable and now I need to learn to live with crippling OCD all over again if anyone has any advice or relates to this please comment so we can talk. Thanks Lydia
I want to heart about your OCD story. Please use this comment section as a safe space where we can all share our struggles, and find those who relate to us. I’ll go first. When I was 13 years old, I went through one of the toughest years of my life. It was awful. My anxiety was on full and my depression followed wherever I went. I started to do compulsions then. Checking, double checking, triple checking. Whether it was an email, an essay I wrote, the lock, the hair straighter etc etc etc. I used to seek reassurance from someone, who is to this day my best friend. I was so embarrassed when I would do it, but I felt like I had to. I would cry myself to sleep. I didn’t know I had OCD. When I was 16 and learning about mental illnesses in class, I remember listening to a group presentation on OCD. From there, I knew what was wrong with me. My OCD died down when I was 14, yet I vividly remembered the struggle. At 18 years old, right after graduating high school (just recently), my OCD came back at full force. It seems like it accompanies my anxiety when it reaches a level beyond the scale. Every morning I wake up, and I’m scared to go about my day. Whether I’m reading, driving, painting, talking or anything, I’m constantly scared of what my OCD will do. I’m scared of my own brain. I hope we can all someday think of OCD as just a memory. Thank you. ❤️
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