- Date posted
- 6y
- Date posted
- 6y
I also haven't been officially diagnosed yet as I see a private therapist who cannot diagnosed me so whilst they have told me I definitely have it, I need to wait to be diagnosed by the NHS. Don't feel ashamed though, it is something that you experience and a diagnosis will not change your experience. At the end of the day, it is just a label ?
- Date posted
- 6y
I mean...I've been diagnosed with compulsive behavior but not OCD yet because I've not seen an OCD therapist. However I still call it OCD because that's easier to explain. I would go to a therapist that specializes in this illness to get a correct diagnosis. And don't feel ashamed! This is just a part of who you are :)
- Date posted
- 6y
diagnosis is actually kind of a weird concept. having an “official diagnosis” can mean a lot of things, and there’s not always a strict guideline for it. for example: my partner has adhd, and has struggled their whole life with schoolwork and focus. so much so that they were pulled from school by their parents and homeschooled until college. adhd ruled their life, and a therapist of theirs diagnosed them as a young teen using the DSM-5 (google this if interested). they had a diagnosis from a therapist and a lifelong history documented, but when they got to college, they were denied academic help for adhd because they had not been given one specific test. but because they had already been diagnosed, the university mental health system wouldn’t perform this test on them. seems backwards huh? i guess what i’m trying to say is that “official” diagnosis is a concept that is used to withhold resources from people who need them. sure there are people out there who may fake having something or be wrong about their diagnosis, but it doesn’t sound like you are one of them. and even if your counselor and doctor are wrong/unqualified (i doubt it though) your symptoms are still something you face. many with ocd start as self diagnosed because our obsessions can be to shameful to discuss even with a doctor, and that’s ok! what matters is that coping mechanisms for used ocd help us. ok i’m done! sorry for the long response!!!
- Date posted
- 6y
Thank y’all so much. That was really helpful. I just didn’t want to make people think I’m one of those people who are just throwing ocd around when she hasn’t been diagnosed. Then again, I know that’s my ocd talking. I’ve struggled with 8-10 themes. I know I have it but I advocate on twitter a lot and don’t want to be discredited because I haven’t been diagnosed if that makes sense
- Date posted
- 6y
@Jen22 I wouldn't think you would be discredited, I used to talk quite a lot about OCD on Twitter too. I ended up coming off Twitter because it became a compulsion! I'm sure the people on Twitter will realise that your experience with OCD is valid, usually people will be able to tell if you are just throwing the term around and you definitely don't sound like someone who is! I wouldn't worry about that ?
- Date posted
- 6y
But how do you know you have been diagnosed? Do you know the process of that?
Related posts
- Date posted
- 22w
I'll start by saying, I have not been clinically diagnosed, as I do not have the funds to see therapists or psychiatrists in my current situation. Once I'm in a better spot, I very much intend to. That to say; after months and months of having issues with anxiety, specifically health related, my partner was the one that mentioned OCD. I did have some somewhat OCD related behaviors in my youth, though those likely could be explained by potentially undiagnosed ASD (as my mother is on the spectrum as well as a sibling, both diagnosed.) But I never considered OCD taking form in a health sense. I posted earlier about how I've had 4 days of pretty minimal anxiety and intrusive thoughts, and it has led me to doubt the OCD label I've been working at treating? I don't want to be the person that identifies themselves with a disorder they don't have, which is why I hesitate to self diagnose with OCD or ASD or anything else. At the same time, I've read that a lot of even clinically diagnosed people with OCD doubt their diagnosis. It makes me wonder if I will always have this doubt, and if that means it is worth it or not to get tested? I know that if I do, they can actually do ERP (whereas I've been self taught and self guided so far) so that would be worth it...
- Date posted
- 20w
I’m kind of frustrated because for YEARS I’ve been trying to express my concerns. For about 6-7 years I’ve been concerned about having OCD. I’m not diagnosed and I want to talk to a professional to confirm whether or not I have it. I have been struggling with several symptoms over many years of my life and it has been absolutely distressing. I’ve expressed my concerns to two doctors. One of them pretended like they didn’t hear me and the other did give me scenarios that I experience. When I said yes to the ones that applied to me, she said “well it’s very normal for people to wash their hands a lot and check door locks” well yeah but what I experience is so much more than that and it’s been absolutely horrendous. I have super bad compulsions and intrusive thoughts, at some point I broke a TV because I felt like I had to throw these little coasters at it for 5 times. And then after those 5 times, the way I threw it didn’t feel right, so I had to do it again and again until it felt right and then it broke :/ The doctor later told me that they can recommend me to professionals but my mom didn’t want me to because of fear that I can get medicated. But I just want to talk to a professional to be able to express my concerns about it. I also feel bad about talking about what I experience because I don’t want people to think that I’m trying to self diagnose myself. I just want to be able to recognize my struggles and try to overcome what I go through. All I want is help. At some point I went to therapy and I had three sessions and then my mom pulled me out. But in those sessions I haven’t talked about my struggles with OCD yet, I was talking about other issues and my therapist was still trying to get to know me. :( Sometimes when I’ve talked to my parents they don’t really try to listen. Sometimes they tell me “well everyone has a little bit of OCD”. Okay, well I’m not talking about everyone, I’m talking about ME. And back when I struggled so much with violent intrusive thoughts, it was also a time where I felt like I HAD to tell my parents about every thought that I had. And my parents were concerned and thought that I was just in general violent. But I’m not violent, I don’t believe these things. And they STILL don’t want to hear me out on my concerns after all of that. I just want to feel validated with what I go through. I am convinced that I struggle with OCD, but I want to be SURE. I don’t want to feel like I’m self diagnosing. I want to KNOW what I’ve been experiencing all these years. I really do like this app because I feel like I finally relate to other people and that I can REALLY talk about my struggles while being understood. Whether or not if I do have it, I feel really understood and I really understand and relate with others. But anyways I hope I can figure this whole thing out one day😓🙏
- Date posted
- 19w
hi! how did you guys get your ocd diagnosis? what was that process like? did it take a while? do some of you not have a diagnosis but just know you have ocd?
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