Hi, this is my first time posting here, though I have been looking at the app for support for a while already. I have pretty bad social anxiety which unfortunately extends to even being in forums online as well, so I have been putting off sharing on here. I am in my early 40s and have struggled with OCD in various forms since I was a child. In my mid-teens it exploded into very tormenting Pure O. It is complicated by some comorbidity with other diagnoses — social and generalized anxiety, depression, and CPTSD. The sad thing is that I’ve actually experienced so much harm over the years at the hands of uneducated mental health professionals who didn’t have a clue about OCD or how to work with it, and i feel like I carry this extra burden of shame and trauma from those bad experiences on top of the grueling daily struggle I have with my mental health diagnoses. I am set up to have an initial consultation appointment soon with a therapist who is a psychologist in private practice. They seem kind and very knowledgeable, and so I am very hopeful that we will be a good fit for working together. But I am still haunted by those past bad experiences, and so the whole process of starting with someone new is nerve wracking. Has anyone else had bad experiences with therapists who didn’t understand OCD or who had only a superficial understanding of it? Thanks for reading!

Hello, I’m new to this app. I’ve always had an anxious brain, and I’ve had coping mechanisms for as long as I can remember. When I was a kid, from as early as I could spell, until I was probably early teens, I would constantly write words in my head along to the beat of music. It’s such a vivid memory because I never stopped doing it. The word had to perfectly match up to the lyric and I loved that it kept my brain busy. I grew out of that, but felt like good context. My anxiety increased drastically around ages 17-19, and I began therapy. I was diagnosed with generalized anxiety and panic disorder, due to having a panic attack nearly every day at that time. I overcame that as well, and now the panic attacks are every now and then, but the anxiety is constant, and some recent symptoms have led me to believe I might have some form of OCD. Maybe not. I’m trying to understand myself and get better so I joined this app to make sense of things. Lately I’ve been having really intense intrusive thoughts. I’m really embarassed and they make me feel like a bad person. Thoughts pop in my head seemingly out of nowhere. It will be an image of me harming myself or someone else in a really bad way. (Trigger warning) for example the other day I couldn’t shake the image of me putting a knife through my own forehead, although it’s not something I want to do. Or I’ll imagine someone killing me. I imagine my loved ones dying often. The thoughts feel so out of my control it’s insane. I hate them. Another persistent issue that isn’t as new is replaying social scenarios. I’m a hairstylist so this one is difficult since I meet a bunch of new people every day. I obsess over how I act and if people like me. I will impulsively say things all the time and they will haunt me for weeks. I question even my closest friends and family who show their love. I find myself so angry and numb and like I have so much built up emotion and a busy mind always. While doing my job I spiral really badly if any little thing goes wrong and it’s embarassing. I know there’s more but I can’t think of it now. I just want to feel better and like I’m not constantly battling my mind.

This is my first post on this app, though I made this account back in late September of 2021. I grew up in a toxic environment, and was mentally abused by my parents, included being taken advantage of because of my autism. I’ve been suffering from OCD as long as I can remember. Ever since I was a child, I’ve sometimes had thoughts that scared me, and I’d often try to find ways to calm myself down. I’ve had thoughts over the smallest and silliest of things, but as time went on, these thoughts suddenly became more violent, like wanting to step in front of moving car while waiting for the bus, or grabbing a knife on the dinner table and using it to stab a family member. Even thoughts of death and what happens afterwards scared me. Aside from being afraid of a kids horror show for a while, OCD did bother me at points in my life, but they never severely crippled me… until my teenage years. Throughout my teen hood, I would very occasionally suddenly imagine fictional child characters being SA’d. I would also sometimes imagine children getting injured while noticing them sometimes. I didn’t know why those thoughts popped up into my head and they would weird me out, but I would be able to usually push them aside and not think about them too much… but it got worse after I was dropped out of high school without my consent by my parents. In March of 2017, I was at a gas station when I saw a child and imagined doing a disgusting action with them. It freaked me out immensely and sent me into a panic attack. I was able to calm down from it shortly after, but I think it planted a seed into my brain, and it would launch a horrific attack on me the very next month. Me and my family were driving around a town for a special occasion when I had the worst OCD attack I’ve ever had. Every child I saw, I imagined doing something disgusting to them. I was having a full blown panic attack and it honestly felt like my mind itself was being sexually assaulted by this horrifying thoughts. This incident scarred me mentally, and to this day, I’m still afraid of being around anyone younger than me. I tried researching what these thoughts could mean, and I found out about these being symptoms of OCD. After talking with a psychiatrist a month later, I was diagnosed with OCD. For a while, I thought I’d be okay from that point. I thought I could conquer this on my own… but by early 2018, I was still struggling. I eventually came out to my older sibling and parents about what I was dealing with. They thankfully didn’t ridicule me, and did help me with getting a therapist. The first visit with my therapist went alright, but I was an emotional mess after finishing the session. The next time I went in however, I was seen by someone else because my therapist was out. The man I saw honestly felt condescending, and he basically made go to a group therapy session. The group therapy didn’t help in the slightest, and with more toxicity developing in my family afterwards, I stopped going after the group therapy. I did see my therapist at least once I think, but that was it. Ever since 2018, I was silent about my OCD. I was just hoping that someday I’d be free of my shackles both from my mental illness and my toxic environment. Two years later though, a friend (now partner) of mine heard about my family’s living situation and wanted to help get me out of there. I first visited them in 2021, and thankfully I stay with them for the most part. That being said, I was still worried about opening up to them about my OCD. I did talk with them about general OCD from time to time, but never got into P OCD… until last year finally. I opened up them fully about it, and both they and their mother told me that they weren’t upset, and that they understood where I was coming from. I think that genuinely helped me out, and I don’t feel as anxious as I did before. Just yesterday, I finally talked about my OCD to my older sibling (they’re super supportive and understand our parents toxicity). I was genuinely nervous about telling them for a while out of fear of them either abandoning me or ratting me out… but they understood. They were accepting and didn’t ridicule me at all. It was like a weight was lifted off my shoulders… and honestly, I think I might have the courage to speak up on this app finally and hopefully find a therapist who can help me. I’ve been suffering with P OCD for over 8 years now ever since I was 18. I just recently turned 27 a few days ago. I’ve been suffering in silence for so long due to trauma, fear, and PTSD. But now, I think I want to take a step forward and get onto the road to recovery. It most likely won’t be easy and it won’t happen overnight, but I feel relieved knowing I have people who love and support me, now that I’m in a better environment.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.