My thoughts and compulsive behaviors were terrible last week, but now it’s like they’ve almost disappeared. I have my first 90-minute session scheduled with my NOCD therapist for next week but now I’m wondering if I even have ocd or if it’s even worth it for me to meet with my NOCD therapist. Does anyone else have experience with this? Did it affect how long it took for you to seek treatment? I know myself and that most likely if I cancel my upcoming session my brain will latch on to some other thoughts and the circular thinking will probably return. But now I’m second guessing myself because with help on the horizon it’s like my brain has pushed all the anxiety to the side and I feel more “normal” than I’ve felt in a while. I also had a brief last meeting with an intern that I was doing telehealth sessions with through a counseling center and when I told her what my anxiety is like and that I suspect that I may have ocd, she basically questioned me and was like “are you sure?” She said “ocd has two components — obsessions AND compulsions, are you sure you have both of them?” And so since that conversation and since some of my recent thoughts have quieted down, I’m wondering if I’m silly for even being here. I also felt really down after my conversation with her because it made me wonder if there was just no one who can help me. I’ve tried talk therapy and I don’t feel like it helped. But maybe I’m just not trying hard enough. Interested to hear if anyone else has had similar experiences in the process of looking for help or if I’m the only one.

My ocd is very cyclic so its themes change monthly, and they can feel so so inappropriate and scary to discuss. I’d love to start therapy and feel ready but my only concern is because my intrusive thoughts come in waves, I can have periods where I feel amazing and don’t experience what I’m experiencing now so what if that’s the case when I start? Any advice would be appreciated. It makes me feel like I’m a fake or that It isn’t bad enough to receive help.

I'll start by saying, I have not been clinically diagnosed, as I do not have the funds to see therapists or psychiatrists in my current situation. Once I'm in a better spot, I very much intend to. That to say; after months and months of having issues with anxiety, specifically health related, my partner was the one that mentioned OCD. I did have some somewhat OCD related behaviors in my youth, though those likely could be explained by potentially undiagnosed ASD (as my mother is on the spectrum as well as a sibling, both diagnosed.) But I never considered OCD taking form in a health sense. I posted earlier about how I've had 4 days of pretty minimal anxiety and intrusive thoughts, and it has led me to doubt the OCD label I've been working at treating? I don't want to be the person that identifies themselves with a disorder they don't have, which is why I hesitate to self diagnose with OCD or ASD or anything else. At the same time, I've read that a lot of even clinically diagnosed people with OCD doubt their diagnosis. It makes me wonder if I will always have this doubt, and if that means it is worth it or not to get tested? I know that if I do, they can actually do ERP (whereas I've been self taught and self guided so far) so that would be worth it...

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.