how long did it take you guys to reach out for help, get diagnosed and start treatment? im just curious because ive seen many people say that they first started having intrusive thoughts when they were 14 for example but only got an ocd diagnosis and started therapy multiple years later which is kind of odd.

Hi all, As of Monday, I received the diagnosis for Pure OCD during an ADHD evaluation. It came as a bit of a shock, despite knowing my grandpa had OCD (according to my parents and extended family, he passed away before I was born). I'm just a little lost on where to go from here. I'm trying to find a therapist who does both OCD and ADHD, but it's surprisingly hard. Do people typically have different therapists for their different needs? I've mentioned it to close friends and family, and when I've tried to discuss what I'm feeling, they said they do it too to a certain extent which is a little invalidating. Anyway, sorry for the ramble. Would anyone be able to give some advice/supportive words for a newly diagnosed college student? Thanks :)

Hi, I just had a recent diagnosis of OCD. It’s crazy because I never considered it or thought that I had it. There have been some thoughts I look back on that make me wonder if it was OCD the whole time. It came to full fruition recently when I made a bad decision that cascaded into me worrying, and then led me to having these intense intrusive thoughts that I never thought I had. Can OCD magically manifest this intensely for some? I notice a lot of the stories here that people experience all the intrusive thoughts when they were younger. I keep looking back on previous times, making me think I had those same thoughts then. I can’t remember if they were genuine thoughts like I believed them, or if I knew they were bad thoughts and I just got over them. I feel like I am lying to myself every time I have the thoughts and that I’m a bad person because of it. I’m trying to not accept it. I have a few sessions in with my therapist introducing ERP but I wish I could get through this quicker. I feel disgusted with these thoughts and that I might be a bad person. Please help me understand and how to best handle this. Anyone have advice on how to be patient with yourself through this process?

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.