- Date posted
- 4y
- Date posted
- 4y
It took me about a month to reach out for help and get diagnosed lol. That was when I was 12 years old. I was like nah this is not working for me and I immediately wanted help, so i went back to an old talk therapist I’d had a few years prior. Fortunately, she was able to diagnose me correctly, but it was not the right treatment. We did regular talk therapy and then eventually when the ocd got worse I went on medication. Luckily, this allowed me to function for several years even though I was still doing mental compulsions unknowingly. I again reached out for help when I was around 17 or 18, but I was convinced medication was the sole answer and I just needed some more talk therapy, so when the ocd specialist tried to do erp with me I was like absolutely not cause I didn’t understand the process and I was functioning enough to think I could go without. Fast forward about 7-8 years and I finally reached out for erp help earlier this month, because a new theme came into the picture and I was beyond unprepared. This is a very long way to say it took me about 13 years to start erp treatment.
- Date posted
- 4y
hm, i started seriously struggling with this ocd thing a month ago, and i am currently considering getting professional help but im stuck in a loop of doubt and i don't know if it's worth it or not since i could be just making this up or something and i don't wanna waste any professional's time... thank you for sharing your story and i hope that you'll start healing soon!
- Date posted
- 4y
@feethebee Definitely get professional help, cause trust me, it’s worth it. I hope you feel better soon too!
- Date posted
- 4y
@MegB thank you for insight i really appreciate it and i hope you feel better soon! it's just that every time i feel "good" (meaning every time im distracted by doing something i like) i say to myself, "i am doing well right now, i can't think of something negative, so i must be alright. if i had ocd i would feel distressed, wouldn't i? maybe my intrusive thoughts aren't that important to me anymore and my brain is just playing tricks on me sometimes, nothing serious. it'll go away". this usually if not always ends up being false since the next day i probably go through a mildly depressive episode or just feel extreme mental discomfort when im exposed to triggers, when i try to avoid ruminating, or when a new intrusive thought comes up when im just staring at the ceiling doing nothing. it's like im always changing my mind and doubting myself. sorry if this was lengthy i just wanted to get it out of system
- Date posted
- 4y
@feethebee That’s okay. Yeah, I would definitely reach out for help!
- Date posted
- 4y
I realize now I have had OCD for a very long time ( 15+ years?) but it wasn’t until the themes became taboo that i ever suspected something was wrong. It took me 2 1/2 years before I sought true help with ERP. If you suspect you have OCD, don’t wait. It can get absolutely debilitating. And themes can switch too unfortunately. It’s usually the taboo themes (harm, violence, sexual, HOCD) that cause people to finally reach out in my opinion.
- Date posted
- 4y
why is that odd?
- Date posted
- 4y
hm, maybe 'odd' wasn't the right word, 'unfortunate' fits better i think. i believe that, you know, having to struggle with intrusive thoughts and other ocd symptoms for months or years on end without knowing what is going on in your mind can have a detrimental effect on someone's well-being and that it is sad how so many people live in darkness because of this. sorry for causing any misunderstandings
- Date posted
- 4y
@feethebee I had no idea I had OCD. I always thought OCD meant being neat and clean.. you know the typical stereotype that I’ve learned to dislike lol I always thought I just had a guilty conscience and that I was a monster but kept it from everyone until one day I couldn’t take it anymore and decided to get therapy. My first therapist diagnosed me with OCD and that’s when I became informed on OCD. I think I developed it in my late teens and I was diagnosed at 26
- Date posted
- 4y
@Staying Alive oh i see, i hope you're doing better now. thank you for sharing your story!
- Date posted
- 4y
thank you for sharing your story! i honestly don't know how to feel about the fact that the onset of my ocd was being bombarded by taboo themed intrusive thoughts, mostly sexual. so much stigma
Related posts
- Date posted
- 25w
Last year during April I started to experience groinal responses when I looked at kids. I was terrified of what it could mean and decided to attempt two weeks later. The very next day I had those responses I decided to attempt. I didn’t really have the courage to do so at that time but I started experiencing images about disturbing things done to kids and as days went by it got worse. April 16 was the last straw and I couldn’t take it anymore. I ended up in a mental hospital but before I ended up there I had searched up what I was experiencing. That’s when I started to understand that it was OCD. I felt relieved for a few moments until I felt the urge to get more information. I saw lots and lots of things and many comments saying that it wasn’t normal and that people who went through this were disgusting people who shouldn’t be allowed to roam free. That’s when my anxiety and fear became worse and I tried to get rid of it but nothing worked. I shook the entire time I was awake, I didn’t have motivation for anything anymore, I just felt so disgusting. In the end, I’m so glad I ended up in that mental hospital or else I wouldn’t be here with my friends and family. Thank you for reading my story, I’m so glad that I’m not alone
- Date posted
- 11w
Hi, I just had a recent diagnosis of OCD. It’s crazy because I never considered it or thought that I had it. There have been some thoughts I look back on that make me wonder if it was OCD the whole time. It came to full fruition recently when I made a bad decision that cascaded into me worrying, and then led me to having these intense intrusive thoughts that I never thought I had. Can OCD magically manifest this intensely for some? I notice a lot of the stories here that people experience all the intrusive thoughts when they were younger. I keep looking back on previous times, making me think I had those same thoughts then. I can’t remember if they were genuine thoughts like I believed them, or if I knew they were bad thoughts and I just got over them. I feel like I am lying to myself every time I have the thoughts and that I’m a bad person because of it. I’m trying to not accept it. I have a few sessions in with my therapist introducing ERP but I wish I could get through this quicker. I feel disgusted with these thoughts and that I might be a bad person. Please help me understand and how to best handle this. Anyone have advice on how to be patient with yourself through this process?
- Date posted
- 9w
Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.
Be a part of the largest OCD Community
Share your thoughts so the Community can respond