Hey this is my first post on here. I have struggled with ocd since i was 5. I didnt know because I repressed these memories I guess but my mom told me I had to see a therapist when i was in kindergarten. Anyways, I finally opened up to my best friends the other day about my crippling OCD. And none of them seemed to really care...at all. I wish people would realize OCD is more than just being “neat” and “clean”. It makes school and everyday things more difficult. People dont take OCD seriously enough. I wish my friends cared so I could talk to them about it more, since therapy is so expensive, but I just wanted to share my experiences with a group of people who would understand.

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.

This is my first post on this app, though I made this account back in late September of 2021. I grew up in a toxic environment, and was mentally abused by my parents, included being taken advantage of because of my autism. I’ve been suffering from OCD as long as I can remember. Ever since I was a child, I’ve sometimes had thoughts that scared me, and I’d often try to find ways to calm myself down. I’ve had thoughts over the smallest and silliest of things, but as time went on, these thoughts suddenly became more violent, like wanting to step in front of moving car while waiting for the bus, or grabbing a knife on the dinner table and using it to stab a family member. Even thoughts of death and what happens afterwards scared me. Aside from being afraid of a kids horror show for a while, OCD did bother me at points in my life, but they never severely crippled me… until my teenage years. Throughout my teen hood, I would very occasionally suddenly imagine fictional child characters being SA’d. I would also sometimes imagine children getting injured while noticing them sometimes. I didn’t know why those thoughts popped up into my head and they would weird me out, but I would be able to usually push them aside and not think about them too much… but it got worse after I was dropped out of high school without my consent by my parents. In March of 2017, I was at a gas station when I saw a child and imagined doing a disgusting action with them. It freaked me out immensely and sent me into a panic attack. I was able to calm down from it shortly after, but I think it planted a seed into my brain, and it would launch a horrific attack on me the very next month. Me and my family were driving around a town for a special occasion when I had the worst OCD attack I’ve ever had. Every child I saw, I imagined doing something disgusting to them. I was having a full blown panic attack and it honestly felt like my mind itself was being sexually assaulted by this horrifying thoughts. This incident scarred me mentally, and to this day, I’m still afraid of being around anyone younger than me. I tried researching what these thoughts could mean, and I found out about these being symptoms of OCD. After talking with a psychiatrist a month later, I was diagnosed with OCD. For a while, I thought I’d be okay from that point. I thought I could conquer this on my own… but by early 2018, I was still struggling. I eventually came out to my older sibling and parents about what I was dealing with. They thankfully didn’t ridicule me, and did help me with getting a therapist. The first visit with my therapist went alright, but I was an emotional mess after finishing the session. The next time I went in however, I was seen by someone else because my therapist was out. The man I saw honestly felt condescending, and he basically made go to a group therapy session. The group therapy didn’t help in the slightest, and with more toxicity developing in my family afterwards, I stopped going after the group therapy. I did see my therapist at least once I think, but that was it. Ever since 2018, I was silent about my OCD. I was just hoping that someday I’d be free of my shackles both from my mental illness and my toxic environment. Two years later though, a friend (now partner) of mine heard about my family’s living situation and wanted to help get me out of there. I first visited them in 2021, and thankfully I stay with them for the most part. That being said, I was still worried about opening up to them about my OCD. I did talk with them about general OCD from time to time, but never got into P OCD… until last year finally. I opened up them fully about it, and both they and their mother told me that they weren’t upset, and that they understood where I was coming from. I think that genuinely helped me out, and I don’t feel as anxious as I did before. Just yesterday, I finally talked about my OCD to my older sibling (they’re super supportive and understand our parents toxicity). I was genuinely nervous about telling them for a while out of fear of them either abandoning me or ratting me out… but they understood. They were accepting and didn’t ridicule me at all. It was like a weight was lifted off my shoulders… and honestly, I think I might have the courage to speak up on this app finally and hopefully find a therapist who can help me. I’ve been suffering with P OCD for over 8 years now ever since I was 18. I just recently turned 27 a few days ago. I’ve been suffering in silence for so long due to trauma, fear, and PTSD. But now, I think I want to take a step forward and get onto the road to recovery. It most likely won’t be easy and it won’t happen overnight, but I feel relieved knowing I have people who love and support me, now that I’m in a better environment.

Im new here so im not exactly sure what im supposed to be doing but my therapist recommended that I start using this platform. I have had OCD my whole life as does my mom and her parents, but I never had a formal diagnosis until about 5 years ago. Recently my OCD has been absolutely taking over my life and it is just so mentally exhausting. I know there’s nothing “wrong” with me but I really wish that I just didn’t have OCD. I really just want to be able to exist without all of these obsessions. I’ve seen a few posts from people just talking about experiences so if anyone has any tips on how best to use the platform that would be great! On a funnier note - I’m pretty open about my OCD and I mention it to a coworker and there response was “Do you really have that or is that just something you say”. And my response was oh yeah no I really have it and it really impacts every minute of everyday in my life and they were just like 😶