What is your OCD story? I’m curious to hear about what other people’s journeys with OCD have been like. When you were diagnosed/what kind of treatment you have tried/what kind of OCD or symptoms do you have/what has helped you most? For me personally I don’t have a lot of people that I feel comfortable sharing my journey with in real life so I like having the chance to let it out on another platform. I’d love to hear whatever you are willing to share. I’ll start by sharing my journey. I was first diagnosed with and treated for OCD when I was seven (12 years ago). It started when my parents noticing that I was constantly smelling and washing my hands. I also worried a lot about my family’s safety and had a lot of magical thinking: I couldn’t throw anything away, had special walking rituals, had to touch things certain ways, etc. When I got to high school my symptoms got worse. I was re-diagnosed with OCD, dermatillomania, social anxiety, generalized anxiety, panic disorder, and depression. My OCD had morphed into just right/perfection obsessions (took me hours to do a simple homework assignment and I spent hours per day reviewing my interactions to look for mistakes), contamination OCD (couldn’t go outside, in my car, downstairs in my home, etc.), magical thinking OCD (knocked on wood over 60 times per day), health OCD, fears of losing control and intrusive thoughts. My life was consumed by my disorders so I entered a partial hospitalization program for OCD for 12 weeks. Two years later I was still struggling to function. I felt like I had tried everything. intensive ERP, 13 different medications, 11 different mental health specialists so I decided to enter residential OCD treatment. I was there for 3 months. It helped a lot to have the intensive ERP and 24/7 staff support. I got also got a much better grasp on my issues. I still struggle but I know how to deal with my obsessions and compulsions. I doubt anyone made it this far but if you did thank you for your time. I’m definitely interested in reading other people’s stories no matter how short or long they are :). Have a great day.

Looking back, I realize I’ve had OCD since I was 7. though I wasn’t diagnosed until I was 30. As a kid, I was consumed by fears I couldn’t explain: "What if God isn’t real? What happens when we die? How do I know I’m real?" These existential thoughts terrified me, and while everyone has them from time to time, I felt like they were consuming my life. By 12, I was having daily panic attacks about death and war, feeling untethered from reality as depersonalization and derealization set in. At 15, I turned to drinking, spending the next 15 years drunk, trying to escape my mind. I hated myself, struggled with my body, and my intrusive thoughts. Sobriety forced me to face it all head-on. In May 2022, I finally learned I had OCD. I remember the exact date: May 10th. Reading about it, I thought, "Oh my God, this is it. This explains everything." My main themes were existential OCD and self-harm intrusive thoughts. The self-harm fears were the hardest: "What if I kill myself? What if I lose control?" These thoughts terrified me because I didn’t want to die. ERP changed everything. At first, I thought, "You want me to confront my worst fears? Are you kidding me?" But ERP is gradual and done at your pace. My therapist taught me to lean into uncertainty instead of fighting it. She’d say, "Maybe you’ll kill yourself—who knows?" At first, it felt scary, but for OCD, it was freeing. Slowly, I realized my thoughts were just thoughts. ERP gave me my life back. I’m working again, I’m sober, and for the first time, I can imagine a future. If you’re scared to try ERP, I get it. But if you’re already living in fear, why not try a set of tools that can give you hope?

My earliest memory of OCD was at five years old. Even short trips away from home made me physically sick with fear. I couldn’t stop thinking, What if something bad happens when I’m not with my mom? In class, I’d get so nervous I’d feel like throwing up. By the time I was ten, my school teacher talked openly about her illnesses, and suddenly I was terrified of cancer and diseases I didn’t even understand. I thought, What if this happens to me? As I got older, my fears shifted, but the cycle stayed the same. I couldn’t stop ruminating about my thoughts: What if I get sick? What if something terrible happens when I’m not home? Then came sexually intrusive thoughts that made me feel ashamed, like something was deeply wrong with me. I would replay scenarios, imagine every “what if,” and subtly ask friends or family for reassurance without ever saying what was really going on. I was drowning in fear and exhaustion. At 13, I was officially diagnosed with OCD. Therapy back then wasn’t what it is now. I only had access to talk therapy and I was able to vent, but I wasn’t given tools. By the time I found out about ERP in 2020, I thought, There’s no way this will work for me. My thoughts are too bad, too different. What if the therapist thinks I’m awful for having them? But my therapist didn’t judge me. She taught me that OCD thoughts aren’t important—they’re just noise. I won’t lie, ERP was terrifying at first. I had to sit with thoughts like, did I ever say or do something in the past that hurt or upset someone? I didn’t want to face my fears, but I knew OCD wasn’t going away on its own. My therapist taught me to sit with uncertainty and let those thoughts pass without reacting. It wasn’t easy—ERP felt like going to the gym for your brain—but slowly, I felt the weight of my thoughts dissipate. Today, I still have intrusive thoughts because OCD isn’t curable—but they don’t control me anymore. ERP wasn’t easy. Facing the fears I’d avoided for years felt impossible at first, but I realized that avoiding them only gave OCD more power. Slowly, I learned to sit with the discomfort and see my thoughts for what they are: just thoughts.

It’s been 4 years. 4 years since I spiralled into a world controlled by rituals of 4, it started as 2, then 3, then 4 - my safe number. The amount of times I wash my hands after touching something dirty and how many repeats it takes until I feel ‘clean’, the amount of taps I make when closing doors to make sure I don’t ‘die’, the amount of times I rinse cutlery and plates before eating off them, the amount of times I disinfect things. My OCD subtype is contamination and I know 2020 lockdowns and the pandemic caused it to spiral but what started as a small ritual quickly became bigger until I no longer remembered what my life was like without the obsessive thoughts of germs and contamination. Could that person be ill? What if I go outside to the shops and someone makes me sick? You can’t answer the door to get that package from the delivery driver because he might make you sick, oh you can’t put the shopping away without disinfecting it first - what if someone has coughed on it? ‘I’ve got to wear gloves to do that’ I can’t, I can’t, I can’t. For 4 years I’ve lived like this, the ‘I don’t want to touch that’ or ‘I can’t go to this place because I don’t want to get ill and die’ ‘can you go do that for me as I don’t think I can right now’ - I know my OCD is irrational, I know the likelihood of those things actually happening are slim to none and I know my OCD stems from a need of control in my life because for so many years I felt like everything in my life was out of my control. But no matter how much I know of how many books I read, how many mindful practices I do the panic I feel after being ‘exposed’ or before exposing myself to a trigger is horrible. I’ve avoided and avoided and avoided to the point where something small now seems and feels like an impossible mountain to climb. It often feels like there isn’t light at the end of the tunnel on the dark days, when I know there is, it’s just going to take some time. Despite this on the outside to those not in my circle my life is a whole picture perfect painting. I run my own business, have a nice car, a nice house, a happy relationship and the of best friends and I’m so grateful for all those things but the reality is much different - behind closed doors and hidden in the closest is the OCD monster. I’ve decided now, after 4 years it’s time to change. I’m breaking the cycle and starting anew. The irony that 4 is my safe number too and it’s been 4 years since things started to get dark. I’m ready to lose control and find myself again. Why am I writing this? Honestly, I really don’t know. I found this app recently and hope it can be a help for my ERP practices I’ve been practicing on my own and it’s actually the first time I’ve ever openly posted or spoken about my OCD to date. For years I have lived with a huge amount of shame and embarrassment, hiding my issues from everyone - even my closest friends have no idea how much it impacts my day to day. I’ve felt shame as I can’t control my own mind despite knowing the thoughts are irrational and the rituals only provide temporary relief but each day again and again the safety blanket of the rituals wraps me up and takes over. The only person who truly knows how much it affects me is my partner, who has been by my side through it all, he’s burnt out and has seen first hand the impact it has had on me, my life and my happiness. I’ve sheltered him as much as I can, but I’m sure those who are in relationships with OCD can relate to the burnout their partner feels day in day out. So that’s my story, I hope those going through similar can take comfort in this and know they aren’t alone in it all as my OCD has made me feel so incredibly lonely, isolated and empty for 4 years too long. It feels freeing to finally share my monster and I hope I can connect with others who are on a similar journey to me. The biggest thing I want to be able to do again? I want to be able to hug my loved ones without feeling triggered, I want to go outside and enjoy life without worry, I want to live again. This app has made me feel seen for the first time in a long time and reading your stories, your experiences and how you’re coping is comforting, encouraging and makes me feel less alone ❤️ thank you for reading x