What is your OCD story? I’m curious to hear about what other people’s journeys with OCD have been like. When you were diagnosed/what kind of treatment you have tried/what kind of OCD or symptoms do you have/what has helped you most? For me personally I don’t have a lot of people that I feel comfortable sharing my journey with in real life so I like having the chance to let it out on another platform. I’d love to hear whatever you are willing to share. I’ll start by sharing my journey. I was first diagnosed with and treated for OCD when I was seven (12 years ago). It started when my parents noticing that I was constantly smelling and washing my hands. I also worried a lot about my family’s safety and had a lot of magical thinking: I couldn’t throw anything away, had special walking rituals, had to touch things certain ways, etc. When I got to high school my symptoms got worse. I was re-diagnosed with OCD, dermatillomania, social anxiety, generalized anxiety, panic disorder, and depression. My OCD had morphed into just right/perfection obsessions (took me hours to do a simple homework assignment and I spent hours per day reviewing my interactions to look for mistakes), contamination OCD (couldn’t go outside, in my car, downstairs in my home, etc.), magical thinking OCD (knocked on wood over 60 times per day), health OCD, fears of losing control and intrusive thoughts. My life was consumed by my disorders so I entered a partial hospitalization program for OCD for 12 weeks. Two years later I was still struggling to function. I felt like I had tried everything. intensive ERP, 13 different medications, 11 different mental health specialists so I decided to enter residential OCD treatment. I was there for 3 months. It helped a lot to have the intensive ERP and 24/7 staff support. I got also got a much better grasp on my issues. I still struggle but I know how to deal with my obsessions and compulsions. I doubt anyone made it this far but if you did thank you for your time. I’m definitely interested in reading other people’s stories no matter how short or long they are :). Have a great day.

Last year during April I started to experience groinal responses when I looked at kids. I was terrified of what it could mean and decided to attempt two weeks later. The very next day I had those responses I decided to attempt. I didn’t really have the courage to do so at that time but I started experiencing images about disturbing things done to kids and as days went by it got worse. April 16 was the last straw and I couldn’t take it anymore. I ended up in a mental hospital but before I ended up there I had searched up what I was experiencing. That’s when I started to understand that it was OCD. I felt relieved for a few moments until I felt the urge to get more information. I saw lots and lots of things and many comments saying that it wasn’t normal and that people who went through this were disgusting people who shouldn’t be allowed to roam free. That’s when my anxiety and fear became worse and I tried to get rid of it but nothing worked. I shook the entire time I was awake, I didn’t have motivation for anything anymore, I just felt so disgusting. In the end, I’m so glad I ended up in that mental hospital or else I wouldn’t be here with my friends and family. Thank you for reading my story, I’m so glad that I’m not alone

this is the most i will ever go into depth about my mental health, all in one post; all in one sitting. this will be draining. to start this off, yes, i have OCD—but i also have several other disorders as well. some of my diagnoses that will come to light in this have a strong correlation to comorbidity and so instead of this being a story simply about my OCD, i will cover all areas of my mental health. for readers, i want it to be clear; this is for me. i’m doing this to put my story out. i hope you find some interest in what i have to say, but in the end, my intentions are strictly to make my damage good. symptoms of my mental issues were present frequently in my childhood experience. for years i avoided any truth to how i thought or felt. thinking, feeling, acting—all 3 were never in cohesion. i had a very anti-social attitude towards life for most of my pubescent years. i got use to faking and manipulating to appear a certain way when i knew i was at risk of punishment; it allowed me to get away with a lot of immoral behaviors for a long time before i eventually was forced into counseling from a school fight i had initiated. i was roughly 14 at this time. counseling was my initial therapy for a while. i have since seen 5 therapists. i can’t say any of those therapists knew a single truth about me, really—with a mixture of pathological lying and a bad masking habit, I was stopping myself from getting any real treatment. i don’t know why, but for a long time i was content with this truth. a part of me never really felt the need to address it. my manipulative behaviors were often unintentional and not once had i sought a need to be callous, even when doing the things i was doing. with every new therapist, i had tuned my personality specifically to fit them—a concept that i don’t have a name for but now can dissect in immense detail. i would take parts of my personality and accentuate them to fit the attitudes and interests of particular people. in my head it was always about admiring the story. nobody was real; everyone was a character, everyone was a unique, self-manifested character. i just made my character with greater intents. i was a good listener, i think understanding that made me get more comfortable with my destructive and manipulative tendencies. when someone believes your listening, like really, actively listening—they’ll eventually tell you everything about themselves. now for a slight addressing of the obvious, i want it to be clear, i’m not describing ASPD—aka, the real life equivalence of sociopathy. i do think i show strong signs of it early on in my youth, and i bring these behaviors up because i think the issues that i do have developed from my anti-social behaviors—however, i was a child; i didn’t know the consequences of my behavior like i do now. if anything is needed to be said here, it’s best to address the following events like this: i understand now, i didn’t understand then. turning 15, i had started off 2023 in a relationship that meant a lot to me—a lot more to me than anything in my life leading up to this point. it’s best to address this now as well—i don’t feel a lot, but when i do, it’s usually irrationally intense and feels completely uncontrollable. at this time, i had gotten over a lot of my anti-social tendencies by now and have spent the last year improving myself after the things i had done began hurting the people i valued most. from a long list of lying, manipulating, preying, harassing, even stabbing people with whatever sharp thing was at my disposal—i had come a long way in creating a character that i actually liked. an important thing to keep in mind during this time was the early development of my OCD that had initially come in the form of suicidal ideation. most of the people in here i’m assuming are people that personally have OCD and understand that it’s not a disorder based in the stigmatized-lens of perfectionism but rather an irrational need for certainty. death quickly became my “ultimate form of certainty” in my teenage years as i turned to the concept like a comfort place—a hand on my shoulder saying “it’s okay, you can fuck up however you might, there’s always a way out.” i had not been truthful about that in therapy either, nor did the several medications prescribed in my lifetime ever do something of benefit to what my issues actually were. of course, i blame no one but myself for not benefiting from outside sources. skipping over a lot of meaningless detail—the gist of the year went like this: Jan-April relationship breaks up badly—in my irrational state, i attempted to take my life and was hospitalized, and eventually, institutionalized. i stayed there for 11 days. at the time the only diagnoses they could make of me was MDD and ASD with slight signs of generalized anxiety. May-August i get extremely medicated and start taking 150+ pills a month to maintain what at the time was being treated for bipolar and schizophrenia. i was too young to see my clinical record, and i assume they wouldn’t tell this to a minor, but it seems they believed whatever my issues really were—i was simply too young to get an accurate assessment. September-December the medication makes me completely apathetic and my loss of care for life brought back my irrational gimmicks and self-destructive tendencies. i, in a 4 month period, ruined every single relationship i had kept close to me. 2024. i was alone. i stopped taking my pills due to a loss of interest and excessive weight gaining but it made my intense emotions start to bite me again. this was the year my OCD had fully developed and by April, i was diagnosed after failing a risk-assessment. for a long period of time, i lived a meaningless, uneventful, isolated life. that year, i let my mental health take over all acts of my being. i got deep into philosophy, psychology, pathology, a lot of tv shows built around psychological dynamics—i was desperate to understand this parasite that seemed to destroy my life without any awareness. i never wanted it to take the years it did since i was initially that 13 year old boy, but i write this now with a simple truth—a truth i refused to let myself believe until recently. i can’t fix this. the more i feed into it, obsess over it—the more these issues are going to worsen. for years i wasted my days thinking i was trying everything i could and it just wasn’t working. i couldn’t accept the fact that i don’t control this, and despite being told that again and again—it never got through to me until i spent the last week not feeding into the OCD and emotional dysregulation, and for the first time, i didn’t find myself counting the seconds that passed me by. it might not mean that much for an outsider looking in, but since my OCD had fully developed—i would always be counting the seconds in the back of my head, not like 1231, 1232, 1233… but as a tick of a metronome that made me always aware of the time. the days where this wasn’t annoying, it was boring, which i ultimately hated more. i’m seeing a light i haven’t seen in years, and with it i keep reaching the same notion—i wish i didn’t waste so much of my life being miserable. i’m getting a psychological evaluation within the next month. i’ve been out of therapy for about a year now but i’m going in now looking to help myself. this is specifically for my emotional dysregulation. my current theories revolve around cluster B personality types, 1 of 4 including ASPD as i had mentioned earlier, albeit my bet is actually on BPD (Borderline Personality Disorder.) I crossed off Borderline for a long time because the symptoms list always felt too broad, but the more i understand the disorder—the more i feel connected to it. my theory comes from several factors—my rapidly changing self image, my impulsive/erratic behaviors, my irrational emotions, my long history of unconventional relationships, my fear of abandonment, my chronic emptiness, my history of self harm, etc. this is not confirmed however, and i wish to get an evaluation specifically for the disorder. getting a personality disorder diagnosed in a minor isn’t easy, but i’m doing it half for the certainty of just knowing—and half for potentionally getting a medication that can help me live a healthy-adjacent life. i never thought i would see a life free of obsession since being diagnosed with OCD. now i can enjoy the silence. thanks for reading. any commentary appreciated.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.