Hey, I'm brand new here. I've been in therapy before for OCD and anxiety however my therapist seemed to get upset with me and my roadblocks. He did not seem to understand "just right" subtype and kept asking me questions to which I had no answers for because it simply did not apply. It was also extremely difficult to do exposure therapy because my OCD is embedded in daily routine and tasks. Having someone dump dirt on my floor was not going to elicit a flare because the interaction had been planned that day. I was blamed for not wanting to get better. I need someone that understands that "my rules" for how I live my life are in place simply because I do not know how to live without them - without I feel out of control and chaos and my brain just gets stuck for reasons I dont even understand but it's extremely discomforting and debilitating. Theres very little fear-base (ie: Im afraid I dont have my 3 cups of coffee, I will fall asleep spontaneously or If I dont check the curtains 3 times, the sun will burn a hole in my floor and set my house on fire) and more so rooted in a "just right" feeling which has ties to moralistic, perfectionistic, and affects relationships. It's more I check the curtains because it just doesnt feel right - or how do I know they are positioned "just right" if I dont? I religiously use my turn signal even when turning in and out of my own driveway because that's RIGHT. Sometimes it's a law that dictates it or moral code and other times for more Neutral things I've set my own "laws" in order to navigate the "gray" areas that I do realize are not normal or needed. However if I do not follow them or am unable to (ie: it's time to vaccum and my vaccum breaks), I shut down/meltdown and intensely feel anxiety and discomfort that's nearly unexplainable. I know logically if my vaccum is broken I can clean my refrigerator out instead or move onto another task but OCD illicits such strong anxiety and discomfort that it send my brain into crash mode. I know it's ridiculous but I cannot move on until the vaccum is fixed and I can continue the ORDER of routine. If it takes along time for the vaccum to be repaired, I might feel as if I have to "start all over again" instead of picking up where I left off...which is again, time consuming loop that causes very little accomplishments and things that do not have to be re-cleaned again to be re-cleaned in the specific order of my routine. I do hang onto items longer than needed and have a fear - based lack of spending I've been trying to work through. I have plans to purge my closets soon of clothing I've hung onto for over 10 years, but it sometimes is to the point where it affects my self care (Ie: I refuse to buy myself underwear because I am afraid to spend money even though my underwear is holey and barely held together. I cannot "afford" to buy food because what if I need the money for a bill?") - this has been easier to identify and work through but I'm still recovering. I also obsess over the past concerning familial childhood relationships have an abandonment root for me. I repeat myself verbally and written word when upset or when communicating with people and they often get annoyed - I believe it's because I never felt understood, valued or heard and I want to make certain they understand me clearly. When everything else falls apart I dive into answers online, medical, self help, history and stories....I look up facts, cases, ect ect and because theres always facts to learn it helps quench the extreme need for "just so" answers. But I tend to get lost and lose track of time. BUT "just so" root type has been extremely difficult to treat and function with. I end up feeling like I'm failing, I hold guilt for not being able to take care of my family and things "normal" people can handle or accomplish. I'm frustrated with myself but I also know my family is frustrated with me. I get irritable and shut down and can accomplish anything when I get roadblocked...its like my brain cannot compute how to navigate without the exact order and routine. My inners feel like a 3 year old is temper tantruming uncontrollably inside of me and its extremely distressing. I want help. I just need to know I'm not alone and I'm in the right place with people who understand the subtypes and MY specific OCD. I cannot go through getting blamed again for not trying hard enough by a therapist when I am fighting with everything I am every day and I am exhausted. I'm here now because my quality of life has been greatly diminished amidst transitions in life right now and change in familial dynamic that's prevented my normal routine and sent me into chaos. It's going on 4 months and I thought I could navigate it with time, but it's not gotten any better and I need help to get my life back on track on way or another. Thank you for getting this far if you have. Advice, comments, thoughts welcome.

hi everyone, i just joined and this is my first time really seeking help for my mental health. i’ve always thought i could handle the thoughts on my own but it’s getting harder every day and starting to becoming debilitating in some aspects of my life. i’m not educated enough on a lot of forms of OCD and i’ve never spoken to a professional (i plan to soon) but i think i may have some form of harm OCD? reading the descriptions of it and learning about others stories, i feel i can safely say i have experienced harm OCD, however the bulk of my thoughts don’t revolve around me hurting someone, instead i have very graphic and intrusive thoughts/ visions of my loved ones dying in all kinds of ways. I obsessively watch my boyfriends location as he drives because i need to be sure he is alive and moving. when he leaves i have to say the same prayer (i am not religious) like a mantra three times. if i see a loved one a “dangerous” situation, say standing at the top of stairs, stepping on rocks at the beach, leaning on a balcony, etc. i will have INCREDIBLY real and vivid images flash in my head of them dying. the images are so graphic and make me have a visceral physical reaction. some images have stuck with me for years and they will “flash” in my head all day, every day. almost every time i shower, walk by a curb, i have a split second image of me or a loved one tripping and hitting my head. i will be sitting on the couch and see the corner of a table and my whole body will shiver hard because i imagined slipping and hitting my head. sometimes this makes me stay up all night because i can’t control or stop the thoughts and i will have a panic attack. I also have always really bad thoughts revolving driving. i drive a LOT and luckily it hasn’t interfered with my ability to do so, but since i started driving almost ten years ago i have had the same little mantra that i repeat three times EVERY time i put the car in drive. i have several items in my car that can not leave or i am convinced something horrible will happen. this year i got a new car and i had horrible panic attacks and anxiety leading up, to the point where i almost considered backing out. i sobbed when i tried to Not transfer my “safety items” from my last car to my new one. i am proud to say that there were a couple items that i was able to throw out, not including a dead, petrified beetle (gross i know) that i have kept 3 different cars (for OCD reasons, im not gross) last thing for this post- for as long as i can remember, i do this thing where i poke my fingernails into my palms very hard until i feel pain so i can assure that im alive. kind of like a “pinch me im dreaming thing”. i will not cut my nails short because when i do, the poking doesn’t “hurt enough” so i cant reassure myself that im alive. i do it every time death is mentioned, i do it every. single. time. a semi truck is driving past me. i do it every time i have an intrusive thought, every time i see a motorcyclist, every time i feel “jinxed”, every time someone is driving too fast, etc. etc. etc. i did not expect to write so much in this first post, it just all kind of came out so if anyone has actually read this, thank you. i think i just want to know what this is and if anyone else has experienced something similar. thank you ❤️

Hello, I’m new to this app. I’ve always had an anxious brain, and I’ve had coping mechanisms for as long as I can remember. When I was a kid, from as early as I could spell, until I was probably early teens, I would constantly write words in my head along to the beat of music. It’s such a vivid memory because I never stopped doing it. The word had to perfectly match up to the lyric and I loved that it kept my brain busy. I grew out of that, but felt like good context. My anxiety increased drastically around ages 17-19, and I began therapy. I was diagnosed with generalized anxiety and panic disorder, due to having a panic attack nearly every day at that time. I overcame that as well, and now the panic attacks are every now and then, but the anxiety is constant, and some recent symptoms have led me to believe I might have some form of OCD. Maybe not. I’m trying to understand myself and get better so I joined this app to make sense of things. Lately I’ve been having really intense intrusive thoughts. I’m really embarassed and they make me feel like a bad person. Thoughts pop in my head seemingly out of nowhere. It will be an image of me harming myself or someone else in a really bad way. (Trigger warning) for example the other day I couldn’t shake the image of me putting a knife through my own forehead, although it’s not something I want to do. Or I’ll imagine someone killing me. I imagine my loved ones dying often. The thoughts feel so out of my control it’s insane. I hate them. Another persistent issue that isn’t as new is replaying social scenarios. I’m a hairstylist so this one is difficult since I meet a bunch of new people every day. I obsess over how I act and if people like me. I will impulsively say things all the time and they will haunt me for weeks. I question even my closest friends and family who show their love. I find myself so angry and numb and like I have so much built up emotion and a busy mind always. While doing my job I spiral really badly if any little thing goes wrong and it’s embarassing. I know there’s more but I can’t think of it now. I just want to feel better and like I’m not constantly battling my mind.

Some background: I’m a woman in my 30s who’s been struggling to find the right diagnosis for years. Since 2022, I’ve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, “high functioning BPD,” and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again. Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, I’ve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) haven’t returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse. Through all of this, I’ve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and I’ve even watched old vlogs –the puzzle pieces still don’t come together. It’s left me feeling like I’ll never really know what’s going on, and I’ve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment. Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting point—multiple diagnoses that never felt right—until a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really don’t know much about OCD beyond the stereotypes. I didn’t know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me here… So now I’m wondering: could OCD be a better explanation for what I’ve been experiencing all these years? Questions for the community: 1. What steps did you take to find out if OCD was what you were dealing with? 2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right? 3. How did you advocate for yourself when people dismissed your concerns? 4. Is there anything you wish you had done earlier in your OCD journey? Thank you so much if you made it this far. I’m really grateful for this space and just want to start finding answers and the right kind of help.