Hey, I'm brand new here. I've been in therapy before for OCD and anxiety however my therapist seemed to get upset with me and my roadblocks. He did not seem to understand "just right" subtype and kept asking me questions to which I had no answers for because it simply did not apply. It was also extremely difficult to do exposure therapy because my OCD is embedded in daily routine and tasks. Having someone dump dirt on my floor was not going to elicit a flare because the interaction had been planned that day. I was blamed for not wanting to get better. I need someone that understands that "my rules" for how I live my life are in place simply because I do not know how to live without them - without I feel out of control and chaos and my brain just gets stuck for reasons I dont even understand but it's extremely discomforting and debilitating. Theres very little fear-base (ie: Im afraid I dont have my 3 cups of coffee, I will fall asleep spontaneously or If I dont check the curtains 3 times, the sun will burn a hole in my floor and set my house on fire) and more so rooted in a "just right" feeling which has ties to moralistic, perfectionistic, and affects relationships. It's more I check the curtains because it just doesnt feel right - or how do I know they are positioned "just right" if I dont? I religiously use my turn signal even when turning in and out of my own driveway because that's RIGHT. Sometimes it's a law that dictates it or moral code and other times for more Neutral things I've set my own "laws" in order to navigate the "gray" areas that I do realize are not normal or needed. However if I do not follow them or am unable to (ie: it's time to vaccum and my vaccum breaks), I shut down/meltdown and intensely feel anxiety and discomfort that's nearly unexplainable. I know logically if my vaccum is broken I can clean my refrigerator out instead or move onto another task but OCD illicits such strong anxiety and discomfort that it send my brain into crash mode. I know it's ridiculous but I cannot move on until the vaccum is fixed and I can continue the ORDER of routine. If it takes along time for the vaccum to be repaired, I might feel as if I have to "start all over again" instead of picking up where I left off...which is again, time consuming loop that causes very little accomplishments and things that do not have to be re-cleaned again to be re-cleaned in the specific order of my routine. I do hang onto items longer than needed and have a fear - based lack of spending I've been trying to work through. I have plans to purge my closets soon of clothing I've hung onto for over 10 years, but it sometimes is to the point where it affects my self care (Ie: I refuse to buy myself underwear because I am afraid to spend money even though my underwear is holey and barely held together. I cannot "afford" to buy food because what if I need the money for a bill?") - this has been easier to identify and work through but I'm still recovering. I also obsess over the past concerning familial childhood relationships have an abandonment root for me. I repeat myself verbally and written word when upset or when communicating with people and they often get annoyed - I believe it's because I never felt understood, valued or heard and I want to make certain they understand me clearly. When everything else falls apart I dive into answers online, medical, self help, history and stories....I look up facts, cases, ect ect and because theres always facts to learn it helps quench the extreme need for "just so" answers. But I tend to get lost and lose track of time. BUT "just so" root type has been extremely difficult to treat and function with. I end up feeling like I'm failing, I hold guilt for not being able to take care of my family and things "normal" people can handle or accomplish. I'm frustrated with myself but I also know my family is frustrated with me. I get irritable and shut down and can accomplish anything when I get roadblocked...its like my brain cannot compute how to navigate without the exact order and routine. My inners feel like a 3 year old is temper tantruming uncontrollably inside of me and its extremely distressing. I want help. I just need to know I'm not alone and I'm in the right place with people who understand the subtypes and MY specific OCD. I cannot go through getting blamed again for not trying hard enough by a therapist when I am fighting with everything I am every day and I am exhausted. I'm here now because my quality of life has been greatly diminished amidst transitions in life right now and change in familial dynamic that's prevented my normal routine and sent me into chaos. It's going on 4 months and I thought I could navigate it with time, but it's not gotten any better and I need help to get my life back on track on way or another. Thank you for getting this far if you have. Advice, comments, thoughts welcome.

Hi everyone. First time here. I suffer from Contamination OCD. I have a good support group in friends, family, and my boyfriend, but I have not met anyone else with OCD and I needed to reach out to others to find help. I first got OCD when I was 17 (I am now 33) and was able to go into remission, but COVID brought it back. I was struggling at work (which was outside with the public). I found a therapist and she wrote me a doctor’s note suggesting I be allowed to work from home. My work was not accommodating at all and only offered me FMLA leave, so I took it as my only option and eventually got on Short Term Disability. The whole process took forever and was incredibly stressful. My leave was supposed to be a time of healing and it just made my OCD symptoms worse. My employer basically treated me as though I was trying to get out of work and proved to me that though they talk about the importance of mental health, they don’t take mental health seriously. I ended up having to leave my job “involuntarily due to health reasons” as they would not grant an extension nor let me return with any restrictions/accommodations. My therapist seemed good at first, but it became clear that she wasn’t really helping me. She would often use our sessions to vent about the insurance company and in one session, she basically called me a hopeless case and kept saying “I don’t know. I am concerned. I don’t know how you are going to be able to function” and threw out the word hospitalization, though she did backtrack on that one. I struggle everyday. I am worried that something from outside of the home touched something clean and is now contaminated. I need help working through this. I am constantly looking for reassurance, question if things are clean, wash my hands, use too many disinfectant wipes, and take showers upwards of 50-60 mins. I feel like my mind is being taken over by my OCD, I’m losing time, and it’s straining my relationship. For anyone who is struggling with contamination OCD brought on by COVID - any tips? My therapist never gave me anything specific to work on with this - to help me focus on something else. I am in the process of finding another therapist, but until then - any help would be greatly appreciated. Thank you!

Hello everyone! I have been through a whirlwind of mental health struggles but OCD feels like it might be “running the show” and I didn’t know if anyone else could relate The first time I got told I was struggling with ocd was by a therapist only a few months ago who said I “fall under the cloud of harm ocd” This lead me to a downward spiral because I had never had a mental health diagnosis before and I was so scared right away that nobody would believe me or help me. I feel like my life has been so out of control over the last few months. I’m dealing with some other things such as big life changes and identity crisis (fresh out of college, no longer a student athlete, came out to my family). I had to leave my first job as an icu nurse for the immense distress it caused me as i was working day/night rotating shifts and being triggered unknowingly to some trauma that I didn’t even know I was holding onto. I now experience heavy mood swings and dissociation at times related to ptsd and I feel like life just isn’t the same. I’m in such a tough spot because I seem to have a fear of being misdiagnosed/improperly treated, a fear of taking meds, a fear of unintentionally harming myself, and my needs for safety reassurance are so strong that I’m back home with my parents and scared to do anything. I’m a nurse as well so I know way too much about the meds and side effects. At the end of the day, the logical part of my brain wants meds to help me , but the fear or starting meds, the side effects, and the trial and error of them not knowing what will work leaves me stuck and feeling hopeless. I always end up thinking that I could just feel better if I jumped back into my normal busy life, but when I do so and get triggered (ocd or ptsd) I am left hopeless and begging my parents to get me on meds. Each appointment though leads to significant anxiety and like I have to say every single detail , which ends in me getting frustrated and confused not wanting to take meds after all because i don’t think they have the full picture. I had a bad experience with Zoloft bringing out manic symptoms when I first started it. It was terrifying. I’ve been switching provider to provider trying to find someone I trust, but in the mean time my anxiety is worsening and I feel more confused of what my symptoms really are in the first place. I have Xanax that I can take 3x daily but I don’t like feeling like I’m going to get addicted to it if I keep taking it and avoid getting on long term meds. I don’t trust any doctors and I feel the need to tell them every single little detail which I feel like leads to further frustration and maybe even impaired treatment plans. I’m sorry if this is a lot but I’m really struggling and needing some support and guidance 😭

Hi there! I was diagnosed with OCD when I was about 17 but never really understood it. I never knew there were so many subtypes of OCD. There are things that I do that I knew were OCD related like intrusive thoughts, excessive counting, and excessive organization. I used to take medication for it but I was young and didn’t think I needed it so I stopped taking it. As of lately, I’ve been going through a lot of stress and anxiety. I was already flirting with the idea of therapy but felt I had a good handle on life and told myself I could get myself through most issues, but lately I’ve even stressed and overwhelmed so I finally decided to make an appointment. In my therapy research I began doing more OCD research as well and realized that a lot of my life centers around OCD. I always thought it was just anxiety or feeling unsure about myself but after doing this research I’m starting to think my OCD is a lot worse than I thought it was. Sometimes I write an email at work and read it over several times to make sure I didn’t make a mistake, every night before bed I check several times that the stove/oven are off and that the doors are locked because I’m afraid my family and I will die overnight, I’ve come to learn that the counting makes me comfortable and that my cleaning and organizational preferences aren’t just “quirky”, I’ve learned that avoidance is a symptom of OCD which has also affected my work, when my loved ones are sleeping I always check to see that they’re still breathing, I reread directions several times to make sure I don’t miss anything or make a mistake, I press the lock button on my car several times even if I’ve already heard the beep, unread notifications on my phone make me anxious because I’m worried someone is trying to tell me bad news or someone is threatening me. The list goes on. I’m definitely interested in seeking more treatment and learning coping skills but I’m afraid it will change me as a person. I like who I am, what if I manage my organization skills and then I become too messy or I stop checking directions or things I wrote and I make too many mistakes, etc. I think I have to keep reminding myself that treatment will make me more comfortable in my own body and mind and that it is definitely a good choice and a step in the right direction. I really didn’t expect this post to be this long 😅 but getting all of this off my chest feels good! I’m open to any advice and/or words of encouragement. Thank you for your time