Anyone have questions about HOCD? Im a survivor

Hi everyone, I’m Andrea and I am a member of the Intake Team here at NOCD. In junior high, I was known as the “aneurysm girl” because I was convinced any small headache meant I was dying. At just 12 years old, I read something that triggered my OCD, and from that moment on, my brain latched onto catastrophic health fears. Any strange sensation in my body felt like proof that something was seriously wrong. I constantly sought reassurance, avoided being alone, and felt trapped in an endless cycle of fear. Over time, my OCD shifted themes, but health anxiety was always there, lurking in the background. I turned to drinking to numb my mind, trying to escape the fear that never let up. Then, in 2016, everything spiraled. I was sitting at work, feeling completely fine, when suddenly my vision felt strange—something was “off.” My mind convinced me I was having a stroke. I called an ambulance, launching myself into one of the darkest periods of my life. I visited doctors multiple times a week, terrified I was dying, yet every test came back normal. The fear never loosened its grip. For years, I cycled in and out of therapy, desperately trying to find answers, but no one recognized what was really happening. I was always told I had anxiety or depression, but OCD was never mentioned. I was suicidal, believing I would never escape the torment of my mind. It wasn’t until 2022—after years of struggling, hitting rock bottom, and finally seeking specialized OCD treatment—that I got the right diagnosis. ERP therapy at NOCD was the hardest thing I’ve ever done, but it saved my life. Today, I’m 34, sober, and living a life I never thought was possible. Do I still have hard days? Absolutely. But I am no longer a prisoner to my fears. The thoughts still come, but they don’t control me anymore. They don’t dictate my every move. Life isn’t perfect, but it no longer knocks me off my feet. If you’re struggling with health OCD or somatic OCD, I see you. I know how terrifying and isolating it can be. But I also know that it can get better. If you have any questions about health & somatic OCD, ERP, and breaking the OCD cycle, I’d love to tell you what I’ve learned first hand. Drop your questions below, and I’ll answer all of them!

I need too know that I'm not insane, really. I am 16 and for the past two weeks, this has been completely ruining my health and happiness. I only recently came out as a lesbian like 3 months ago after a lot of confusion about my attraction since I used to think I liked men. At first, I felt so sure that I liked women, but lately, I've been having these unwanted thoughts about the possibility of liking men. I never used to feel this way, but now, every time I look at a man, my brain obsessively fixates on it. It forces me to imagine kissing him, loving him, things I don’t want, and then tries to convince me that I do. It’s painful. The thought of this fills me with fear and anxiety, leading to panic attacks and breakdowns. I don’t want these thoughts. I hate them with every fiber of my being, but I’m terrified that one day I’ll act on them and somehow like it. I used to think I liked men, but back then, I was in a very unhealthy space in a time of escapism and something deeply parasocial. I’ve only ever liked the attention and validation a man could give me, but these experiences are somehow treated as further proof that I’m "bisexual." I’ve never been in a real relationship with anyone, which makes my brain constantly challenge me—telling me, “You don’t even know what love feels like.” It won’t shut up. It keeps obsessively trying to make me prove that I’m a lesbian, testing my reactions and questioning my certainty. Is this normal?

trigger warning!!!!!! I’m really scared right now. I’ve been reading Elle Warren’s articles about her experience with HOCD/SO-OCD, and it feels so similar to mine. She went through the same fears of being a lesbian, felt distressed by her attraction to women, and spent hours ruminating, Googling, and analyzing her feelings. She even experienced groinal responses and revisited old memories, just like I do. Eventually, she had a moment of realization in college when she flirted with a girl, and everything clicked. She now identifies as a lesbian. I’m terrified that the same thing will happen to me. I thought the OCD fears were supposed to never be true and that HOCD thoughts are usually just compulsions that don’t end up being real. But reading her story, it’s like I’m seeing my own experience mirrored. What if it clicks for me, just like it did for her? What if I realize that I am a lesbian? Elle’s story makes me so scared. I thought my feelings of attraction to women were just OCD-driven, and now I’m questioning everything. I thought I was straight, but now, reading her journey, I’m wondering: could my OCD fears actually be real? Elle’s experience was very similar to mine: • She got distressed when she thought she might like women, not relieved. • She spent a lot of time ruminating, Googling, analyzing, and comparing. • Her attraction to women only became intense when her OCD flared up. • She said things like, “I feel peace when I believe I’m straight.” • She had already been diagnosed with OCD and had a history of this pattern. After years of fear and distress, Elle had a moment of calm and realized that it was true. I’m scared that this could happen to me too. Will I have a similar moment of acceptance, where everything clicks and I realize I’m gay? Or will I come to accept that this is all OCD, and that I’m straight, with the possibility that I’m not? I also keep thinking back to when my OCD lessened the first time. Did I go back to men because I wasn’t actually attracted to women, or was it just because the grip of the OCD had loosened? Elle also talked about the shame associated with non-heterosexuality. She mentioned that, like many of us, she had internalized stigma around being gay, and that it made her fear the possibility of being non-heterosexual. I can relate to this so much—growing up, I never saw it as an option to be anything other than straight, and now it’s hard to shake that fear and shame. Elle mentioned that she found reassurance in seeing other people with HOCD who worried that their fears would come true, but eventually realized they were just OCD thoughts. That idea is comforting, but also a little scary, because what if that moment of realization happens for me too? What if I finally accept that I am a lesbian? Or, what if I’m just struggling with OCD and eventually realize I’m straight? I just don’t know. The scariest part is that, just like Elle, I feel like I don’t have any obvious signs. She had no idea she was a lesbian until one day, everything clicked. She was 21, just like me when my OCD fears really flared up, and she had a breakthrough moment in Denver when she made friends with lesbians. That hasn’t happened for me yet, and it’s terrifying to think that it could happen in the future. I don’t know what’s going to happen, but I’m really scared about where this will lead.