First Post

Hey all! I just joined this app and wanted to ask for your thoughts and encouragement on something I’ve been experiencing lately. (*long post ahead*) I’ve had an OCD diagnosis for about 2 years now, along with generalized anxiety, depersonalization symptoms, and depression diagnoses since my teens (I’m 24). Been lucky to have great family and healthcare that have helped me get out of some very dark places. I’m currently on a very high dose of Prozac, a smaller dose of Wellbutrin, and have been in therapy pretty consistently since my late teens. Life is pretty good....I’m in grad school and am doing well socially and academically. I am moving out to another part of the country to do an internship for 10 weeks, starting this Friday. But with all of this great and wonderful stuff in life, I have definitely noticed my OCD getting worse, despite my meds and self care. I’ve been having more obsessive fears and doing the rituals and compulsions to soothe those fears. It’s taking up much more of my mental space than it had for the past 2 years or so. I think part of it is the big change of moving to a new place temporarily, finishing my first year of grad school, and going from being insanely busy to having a month of downtime that is just now wrapping up. I’m getting scared that things are going to get really bad again — so far I’ve been managing with mindfulness and acceptance, and reading up on tactics for managing intrusive thoughts and accompanying compulsions. But I am so afraid that things will get to be into the dark and horrible place they were in 2 years ago. My OCD has been really mild the past few years, since I started the meds, and to feel it flare up again is really REALLY distressing. It makes me scared that the meds aren’t working, or that all the thoughts and fears are real. I know this isn’t the truth, logically, but my OCD and anxiety are running with it. I’m just wondering if anyone else has experienced this (change-related flare ups and the fears accompanied by them) and has tools to manage relapse or flare ups. Thanks in advance :) :)

Hey everyone. This is my first post here and it’s probably going to be a long one because I guess I feel comfortable enough to be open here. I need help. When I first got diagnosed with OCD, I figured it only impacted a small part of my life. I thought I was only affected with compulsions and obsessions that dealt with contamination, tangible perfectionism and the obvious intrusive thoughts and that’s it. Well, I’ve come to realize that most of my thinking has been impacted by OCD. At this point the only way to describe how it feels to me is a forest of thorny vines growing in place of my mind or maybe through and around my brain constantly growing every-time I give into this type of thinking (which is basically all the time because I wasn’t aware this was OCD). I’ve definitely felt it more recently, but I know it’s always been there from what I recall from past memories. I got diagnosed not so long ago with OCD and I was happy to because it explained this thing I knew was wrong with me but I didn’t know how much it will and has impacted me in the past. So, I think I’ve created a matrix in my mind or strengthened the OCD thought patterns because now I feel like my OCD impacts everything I do. And I guess I’m saying I need help here because maybe you guys will be able to see it, maybe validate me and point me where I can get help. I’ve been telling the people around me, I think my thinking is disordered and I need help but I don’t think they really understand the amount it’s affecting me or grasp what I meant when I say “I Need Help”. I did have a therapist before but because of a insurance change, she can’t work with me anymore and I’m not sure when I’ll get another (just to clarify). Back to the matter, the past couple of months I’ve been in my head just thinking and thinking. About everything. To the point where my head starts to hurt or until I feel sick of thinking about it but I can’t. I find that’s my obsessions and compulsions (other than the need for order [which can also be mental]) are very mentally based and I find myself ashamed of them so I hide them so maybe that’s why the people around me don’t feel my need for getting help as much as I do. Anyways, examples of this have been, -constantly thinking about what’s the purpose of all of life and the hidden messages in life -feeling like if I don’t do everything perfectly then what the point or being very mad at myself -being obsessed with how I present to the rest of the world sometimes even in close relationships -having calculated movements and actions (having to move my body a certain way or it doesn’t feel right) -obsessing over an absolute truth -questioning friendships and other relationships - obsessing over achievements or failures -obsessing over people -obsessing over decisions and outcomes because I want to make the perfect decisions I could go on and on but basically it’s just a lot of thinking and ruminating and obsessing to the point where people tell me I look like I’m some where else all the time. And I’ve started to feel like I find comfort in it now. I’m also diagnosed with depression and anxiety and I feel like it’s all just OCD. And same goes for my dissociation. I feel like they all root from my OCD. I’m so tired of feeling like this all the time and without my therapist I feel like I’m stuck here. I can’t make decisions, I’m never present, I can’t make or keep friendships/ relationships, everything impacts me deeply because I create a emotional obsession to it, I can’t just be without questioning everything and I’m constantly in my head. I’ve also started getting high all the time because I feel like it’s the only way to escape my brain but I’ve felt like it’s getting out of hand. I’m starting to lose in any type of hope of getting better. Does anyone have an advice for working on OCD by yourself or identifying when it’s OCD (especially mental obsessions and compulsions) so I can start to chip at this boulder that’s weighing down my life and energy?

Hello. This is my first post and it’s going to be a confession of sorts… I was recently diagnosed with OCD and it has been really clarifying, scary, and confusing to navigate alone. I am also going through a lot of changes in my personal life. I recently graduated college and I am currently healing from a very difficult break up with my partner of 4 years. I don’t handle uncertainty or change very well so this period of my life has been super stressful and uncomfortable. My recent diagnosis and break up have taught me a lot about myself. I first realized I might have OCD because my mental health and— what I now know to be compulsions— became so destructive to my physical and emotional wellbeing that I actually began googling questions about repetitive self mutilation. The first result was something about the link between OCD and self harm. There were some examples of what compulsive self mutilation can look like, and it strongly resembled the things I have struggled with my entire life. For me, self mutilation is the compulsion I struggle with most. At times it has been incredibly debilitating. From there, I became obsessed with reading into OCD (I find this pretty ironic and funny). The more I research about it the more it resembles the things I have struggled with for as long as I can remember. I realized that the overwhelming guilt, shame, and anxiety I feel constantly are not the consequences of being a bad person, but rather the symptoms of OCD. It feels super validating to learn that the inner turmoil I’ve struggled with my entire life is something other people experience and is actually treatable. I started working with a psychiatrist who specializes in OCD and ended up getting formally diagnosed with moderate to severe OCD. Since learning this, I am beginning to understand myself in an entirely new light. It has in no way been easy. I hit rock bottom and— just when I thought it couldn’t possibly get any worse — I hit an even lower rock bottom. I’m not saying this out of self pity or to try to fish for sympathy, I’m just hoping that I can make someone struggling with a recent diagnosis feel less alone. I have felt very alone in this journey even as I learn that many people struggle with similar things. I still have a lot of learning and growing to do, but I am actively seeking treatment and I’m doing what I can to manage my OCD. I’m really grateful for this platform and I am relieved to know that things can actually get better. I think the next step for me is to start ERP therapy, but right now that sounds really scary and exhausting. Even so, I’m quickly warming up to this form of treatment as I research about its effectiveness. Everyday I discover more ways my life has been impacted by OCD. It’s very painful to realize that the overwhelming shame I feel about my obsessions and compulsions has actually been the reason I’ve lived the first 23 years of my life undiagnosed. My diagnosis has also shed new light on my past relationship and has helped me sort through some of my emotions in this healing process. … To anybody who actually read this whole thing: thank you. If nobody read it then at least I got this off my chest. I would really appreciate any advice on navigating a recent diagnosis and seeking treatment.