Has anybody had much luck with somatic ocd? I feel like that's a pretty tough nut to crack.

Hi everyone, I’m Andrea and I am a member of the Intake Team here at NOCD. In junior high, I was known as the “aneurysm girl” because I was convinced any small headache meant I was dying. At just 12 years old, I read something that triggered my OCD, and from that moment on, my brain latched onto catastrophic health fears. Any strange sensation in my body felt like proof that something was seriously wrong. I constantly sought reassurance, avoided being alone, and felt trapped in an endless cycle of fear. Over time, my OCD shifted themes, but health anxiety was always there, lurking in the background. I turned to drinking to numb my mind, trying to escape the fear that never let up. Then, in 2016, everything spiraled. I was sitting at work, feeling completely fine, when suddenly my vision felt strange—something was “off.” My mind convinced me I was having a stroke. I called an ambulance, launching myself into one of the darkest periods of my life. I visited doctors multiple times a week, terrified I was dying, yet every test came back normal. The fear never loosened its grip. For years, I cycled in and out of therapy, desperately trying to find answers, but no one recognized what was really happening. I was always told I had anxiety or depression, but OCD was never mentioned. I was suicidal, believing I would never escape the torment of my mind. It wasn’t until 2022—after years of struggling, hitting rock bottom, and finally seeking specialized OCD treatment—that I got the right diagnosis. ERP therapy at NOCD was the hardest thing I’ve ever done, but it saved my life. Today, I’m 34, sober, and living a life I never thought was possible. Do I still have hard days? Absolutely. But I am no longer a prisoner to my fears. The thoughts still come, but they don’t control me anymore. They don’t dictate my every move. Life isn’t perfect, but it no longer knocks me off my feet. If you’re struggling with health OCD or somatic OCD, I see you. I know how terrifying and isolating it can be. But I also know that it can get better. If you have any questions about health & somatic OCD, ERP, and breaking the OCD cycle, I’d love to tell you what I’ve learned first hand. Drop your questions below, and I’ll answer all of them!

So I’m 16 years old, currently going through my sophomore year of highschool. I’ve recently quit nicotine and weed after chronic use for about 4 years (has affected my development extremely). I quit because I wanted a better life for myself because I knew that I was using nicotine and weed for short term happiness and long term made me very depressed about this life. I was also experiencing trouble concentrating on simple tasks and what I wanted to do currently in my life. Which was learning about life and having more knowledge about life in general so i could feel more comfortable and happy in the future. So I quit nicotine I thought I was going to be able to overcome it and be more comfortable with myself knowing that I’m not in a constant loop of short term happiness, long term making me less happy overall. Although I have quit nicotine and haven’t touched it in about 3 weeks I expected to have some major withdrawals because I’m still in adolescence and used nicotine about everyday for 4 years. Sorry I’m rambling about this but through those years of always suppressing my anxiety with nicotine when anything came up that triggered it. I started noticing that on vacation in very stressful moments like at the airport and there were people around me when using the bathroom I felt as though it was nearly impossible to go but after sometime I eventually went and shrugged it off. Now that I’ve quit though I’m my 4th week it’s almost like my brain really latched onto that fear of not being able to go around people publicly (paruresis shy bladder syndrome) and that’s also what addiction does to you I’ve acknowledged. But when I started coming home from school I started thinking about not being able to pee more and more to the point i haven’t been able to stop thinking about it since which now every time i feel a slight trigger of having to use the bathroom i start obsessing over it like everything I would try and do that i usually do my brain would draw me away from it and go back to the fear of not being able to go which created a lot of anxiety and thoughts like “would if im not able to stop going” which made me think about it more and more I would just wake up with that thought in my head each day to the point where i was really thinking about killing my self because I thought i would have such a better life without nicotine and weed but ultimately made me feel like i was going crazy and I really wanted to go back to vaping and weed but i knew that this was the cycle of addiction and that i may have a more underlying problem here i need to overcome somatic ocd. I haven’t been diagnosed with it yet and I know a lot of people go through a cycle of self diagnosing. But as I’ve slowly started to mentally figure out ways to get through this obsession over peeing and fight it, it’s like my brain is now trying to look for a new bodily sensation to obsess over. My breathing. I noticed this as well while using that sometimes I would think about my breathing a little bit to much for example saying to myself am I breathing right should I breath this certain way would if I can’t stop thinking about it. But as I was thinking about that I just hit my vape talked to my brother about it and just slept it off. Now that I don’t have a vape I’ve had to go through these expierences but with it feeling more real and not really having something to run to, to suppress like my vape. I’m writing this today as I feel better to myself talking about it and opening up about it as I’m trying to not respond to this fear with anxiety and go throughout my days ignoring these obsessive thoughts leading to extreme anxiety that I don’t have anything to suppress it with anymore besides my own mental. Maybe someone here will have some more knowledge about it than I do and can give me some advice to try to keep me more motivated to deal with this ocd I feel as though I’m having so I don’t end up in a dark place. Thank you.

Anyone else struggle with somatic OCD and any pain/feeling slightly different is so noticeable and you feel like you’re just going to collapse or something? Like my ocd always convinces me that any sort of pain is related to some kind of illness that can cause a bad outcome or even death. If so, please share your tips of how to improve with this type of ocd 😭