I’m on vacation and just called someone out for stereotyping OCD at the mall. She said she didn’t want to buy these boots because they would “drive her OCD crazy.” I asked her if she had diagnosed OCD and she said “No, the boots just bother me.” So I said, “Well, I do. I’ve had it a long time, and as an advocate I just want to point out that it is a very debilitating condition and you never know who could hear you make comments like that, and for some sufferers it could be offensive.” She said, “I understand,” and I thanked her for hearing me out. I was super nervous to do it, but kept my cool and even if she just dismissed me as some crazy person, I’m glad I stood up for myself and the rest of the OCD community.

Lately I’ve seen way too many comments under posts about OCD, especially the harm, POCD, and relationship themes that are incredibly misinformed and honestly harmful. People saying things like “these thoughts are unnatural,”or “you need to go get real help” and encouraging confession ***compulsions*** when they clearly have no understanding of how OCD actually works. Let me be clear: OCD involves distressing and unwanted thoughts, images, or urges. That doesn’t make someone dangerous. It makes them someone with a mental illness who is terrified of their own brain. Saying these people are “unnatural” or implying they’re broken only reinforces shame, and shame is the opposite of what helps anyone heal. If you’re commenting under OCD-related posts on an OCD ***app*** without understanding what intrusive thoughts are, or what compulsions can look like, or **how OCD can attach itself to the things we fear most** then please, stop. You are not helping. You’re reinforcing stigma and pushing people further into silence. OCD is already isolating. We don’t need more people moralizing or projecting trauma theory onto something they haven’t experienced or don’t understand. If you really care, go learn. Read about intrusive thoughts. Learn about ERP therapy. Or maybe just listen. Because some of us are barely hanging on, and comments like those don’t just miss the point, they can do real damage. I’m sorry if I come off too angry, it just really upsets me to see people speak on something they clearly don’t understand. End of rant. Thank you for reading 🤍

I finally found the courage to seek a psychiatrist last week, when I got there I was nervous for obvious reasons and felt a bit guilty. I met the doctor and don’t get me wrong he was very nice and knowledgeable in the bigger scope of mental health. Asked me questions of depression, anxiety, if I see things others don’t etc.. However, while we went through the assessment I did not receive a formal “diagnosis” and seemed as though he came to the determination what I have is general anxiety disorder. I don’t disagree, I know I have anxiety! However, when it came to the point where we were wrapping it up I had a “BUT WAIT” moment. I explained I was a part of an OCD community where I had previously been doing therapy to manage OCD. He asked “well why OCD?” I replied, “I have constant thoughts very repetitive thoughts that follow a theme and they are extremely persistent.” It was then I knew I couldn’t let down the walls and go into depth, as I knew he wouldn’t understand. To validate what I already knew, I said “I have constant fears and worries about my children, myself, and religion. I think about these things all day long. In order to free myself from the feeling I have to say a specific phrase or word in my head.” He said “well yea that’s normal to have worries and fears about your family, your religion” and so forth. The feeling of disappointment is an under statement, this is more than just “anxiety” this is something that I struggle with daily and to have a professional discredit my daily fight was off putting. Not his fault, it demonstrates the lack of knowledge for OCD and treatment many of us have to face. Sorry for the rant, sometimes we just have to advocate for ourselves.. 🌸

If you are anything like me (and most of you are, because let’s face it, we are all on this chat), you have OCD. Real OCD, not the organisation, matching colours everyone thinks it is. Real OCD. I’ve always known I was different, known that my brain does some waking things and deep down, I’ve always known I’ve had OCD. But there is just something that changes when you finally get the diagnosis. It makes more sense, you have an explanation for your behaviours. So naturally I told my friends. When they ask why I had to stop and step four times on a tile I said ‘oh, I have OCD’. I finally had a word, a tangible concept that I could explain to people. But nobody warned me about the massive misconceptions about OCD. Instead of support or acceptance, my friends seemed to question the diagnosis saying ‘that’s not ocd, don’t you just like things organised?’. And no matter how much I explain it they don’t seem to get it. And that’s the part that feels so cruel. I go through hell in my head and it can all be reduced to a phrase of ‘oh, aren’t you organised’. So please be careful out there you guys, and if someone try’s to downplay your experience, know that you are valid and that what you are going through is probably something that they could never handle. It’s a lesson that took me time to learn, but it’s important because our experience matters. Our real experience.