A long sentimental postā¦
October is OCD Awareness Month, and honestly, I never thought I would ever be writing something like this.
Surveillance & Privacy OCD has been a part of my life for much longer than I understood. I was still really young when I first started experiencing symptoms, but I didnāt know what they were. I didnāt know what intrusive thoughts were. I didnāt know what compulsions were. I didnāt know that the constant fear, overthinking, checking, analyzing, avoidance, guilt and need for certainty could all be part of OCD.
For a long time, I genuinely thought something else had to be terribly wrong with me. At one point, before I understood OCD at all, I even convinced myself that I had paranoid schizophrenia because I was so frightened by what was happening inside my own head. Looking back now, it hurts to think about how scared and confused that younger version of me was.
The last couple of years have been some of the hardest years of my life. Around summer 2023, a lot changed for me emotionally. I went through experiences that left me feeling isolated, overwhelmed and deeply affected, and looking back, I think that period may have played a role in how my OCD developed and intensified. I canāt say that it was the definite cause, but I know that something changed in me during that time.
Then OCD kept finding new ways to scare me.
It made me question things that should have been completely ordinary. It made me afraid of being watched or monitored. It made me scared of losing things. It made me check, avoid, seek reassurance, analyze thoughts, replay situations and try desperately to reach a level of certainty that never seemed to be enough.
And the cruelest part was that the themes could change.
Just when I thought I had figured one fear out, OCD could attach itself to something completely different. It wasnāt really about the specific object, situation or thought. It was about the feeling of uncertainty and the desperate need to make it disappear.
Eventually, I learned that recovery wasnāt about proving every fear wrong.
It was about learning that I donāt have to answer every thought.
Iāve been learning about ERP, response prevention, compulsions, reassurance seeking and CBT. Iāve been practicing sitting with uncertainty instead of immediately trying to fix it. Iāve had days where I felt incredibly strong and days where OCD screamed so loudly that getting out of bed felt impossible.
Iāve also learned something incredibly important: progress doesnāt always look dramatic.
Sometimes progress is wearing something OCD told me not to wear.
Sometimes itās leaving somewhere without checking again.
Sometimes itās allowing a thought to exist without researching it.
Sometimes itās going to school even when my brain is telling me something terrible might happen.
Sometimes itās downloading an app Iāve avoided for years and allowing myself to feel anxious without immediately escaping.
And sometimes progress is simply having a day where I forget about OCD completely because Iām too busy laughing with a friend.
Yesterday was one of those days for me.
I spent hours with a friend at the park. We walked around, did TikTok dances, took photos and memory videos, got on swings, sat on a bench, went to the store, bought snacks and makeup remover, and just had fun. OCD didnāt get to take the day from me.
And today, Iām going to the countryside with my parents, and Iām going to keep living my life even if OCD decides to scream again!
Thatās something I never thought I would be able to say a few years ago.
Iām still recovering. Iām still learning. I still have difficult days. I still have intrusive thoughts. I still get scared.
But I am not the same person who was terrified by her own mind and had no idea what was happening.
Now I know what OCD is, for the past two years, I studied, I learned,I documented.
And more importantly, Iām learning that I am allowed to live anyway.
To everyone else on this app who is struggling: please donāt measure your recovery by whether you had intrusive thoughts today. A thought returning doesnāt erase your progress. A bad day doesnāt erase your progress. Anxiety doesnāt erase your progress. Recover isnāt linear, it has ups and downs!
You are so much more than the thoughts your OCD throws at you.
And to the younger version of me who was so scared and confused: I wish you had known sooner that you werenāt broken. You were struggling with something you didnāt understand yet.
Iām incredibly grateful that I finally understand.
One more thing I really want to share about my recovery is that, although I was professionally diagnosed with OCD, I havenāt had a therapist guiding me through my day-to-day recovery.
Iāve been learning and practicing a lot on my own. Iāve spent so much time educating myself about OCD, understanding its different themes, recognizing my compulsions, learning about CBT and ERP, and trying to apply those principles to my everyday life.
Iāve had to become my own little student of recovery. Iāve written reminders for myself, tracked my progress, identified patterns, practiced response prevention, faced situations I had avoided for a long time, and learned to sit with uncertainty instead of constantly trying to make it disappear.
And no, it hasnāt been easy. Iāve made mistakes, had setbacks, experienced overwhelming anxiety and sometimes felt like I was starting all over again. But Iāve also experienced moments that remind me why I keep going.
Iām not sharing this to brag, to suggest that professional treatment isnāt necessary, or to tell anyone that they should have to do everything alone. Professional guidance can be incredibly valuable, especially when OCD is severe or interfering with everyday life. I simply want people who currently cannot access therapy to know that they can still learn about their condition, take small steps, practice healthier responses and make meaningful progress.
You donāt have to wait until everything is perfect to begin working toward recovery.
And please remember that recovery isnāt a competition. Someone elseās progress doesnāt make yours less meaningful. Some people have therapists, some have support groups, some are still searching for the right help, and some are taking small steps with the resources currently available to them.
Wherever you are in your journey, I hope you give yourself credit for trying.
Iām still learning, still practicing and still recovering. I donāt have everything figured out, but I finally feel like Iām building a life that isnāt entirely controlled by OCD.
If sharing my experience makes even one person feel a little less alone, then Iām glad I wrote this.
We deserve lives bigger than our OCD. And weāre allowed to keep moving toward them.
There is one part of this journey I almost forgot to talk about, and that is loneliness.
OCD wasnāt the only thing I was fighting. For a long time, I felt incredibly alone while fighting it.
There were so many thoughts and fears happening inside my head that I didnāt know how to explain to anyone. Sometimes I didnāt even understand them myself. I could be surrounded by people and still feel completely isolated because nobody could see what was happening in my mind.
There were days when I didnāt want to talk to anyone because I was exhausted from pretending I was okay. There were moments when I wished someone could just understand without me having to explain every single thought, fear or compulsion.
And loneliness can make OCD feel even louder.
When youāre alone with your thoughts, itās so easy to start analyzing them, searching for answers, checking, overthinking and getting trapped inside your own head. Sometimes you donāt even realize how much time has passed because youāre fighting a battle nobody else can see.
Thatās one reason finding people who understand OCD has meant so much to me.
Talking to people on NOCD, reading other peopleās experiences and realizing that someone else has had thoughts that felt just as strange, frightening or impossible to explain made me feel less like an alien in my own mind.
And lately, something else has changed too.
Iāve been making friends again.
Iāve been going out after school, hanging out at parks, malls and cafĆ©s, laughing, taking photos, making memories, talking about random things, and actually feeling like a teenager instead of someone whose entire life revolves around managing anxiety & panic attacks.
That doesnāt mean the loneliness magically disappeared or that OCD disappeared either.
It means my world is getting bigger.
And I think thatās one of the most beautiful parts of recovery.
Recovery isnāt only about having fewer intrusive thoughts. Itās also about getting pieces of your life back.
Friendships. School. Hobbies. Laughing until your stomach hurts. Going somewhere without spending the whole time analyzing your thoughts. Making plans for the weekend. Having people you can text. Being excited about something again.
If youāre reading this and youāre incredibly lonely right now, I want you to know that loneliness is not proof that youāll always be alone.
You donāt have to suddenly become surrounded by dozens of people. One person is enough to start. One conversation. One little connection. One place where you feel understood.
And if youāre struggling with OCD while feeling lonely, please remember that the thoughts arenāt a reflection of who you are. You are still a whole person outside of them.
Iām still recovering. Iām still learning. Iām still having difficult days.
But Iām also making memories now.
And thatās something my younger self desperately needed to know was possible.
Happy OCD Awareness Month.
To everyone fighting this quietly: I see you. Youāre not strange, youāre not weak, and youāre not alone in the way OCD makes you feel alone.
Keep going. Your life can become bigger than the thoughts that once filled it.