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the fact that we are all real scares the shit out of me, idk if this is existential ocd anymore

Hey guys I have officially been in NOCD for a month and the ERP is going well. However, I have been feeling a lot of hopelessness when it comes to my existence. I have also been questioning my purpose in life. I have also been scared of dying because it’s so inevitable and I don’t know when it’s going to happen. I have also been feeling a lot of guilt because I am a content creator and putting on a fake smile and pretending to be happy is the hardest. Has anyone ever felt that way? Does anyone have any advice?

I’m really struggling right now. I felt like I was doing really good today, and have been since I started Seroquel. All of a sudden, I start having an intense feeling of existentialism….it’s like I suddenly realized I was alive. And it feels a step beyond derealization/depersonalization….i understand what that it. But this felt like spouts, and if I focused on it - I was such an intense feeling of being “alive” and then it goes away….i can’t keep a hold of it enough to exam in it. It’s so scary, I haven’t had this feeling in so long….and it scares the crap out of time. The best I can explain it is that I suddenly realize I’m living but It’s like I’m in my own body and no one else is real - I DONT KNOW!!!! It’s truly impossible to explain and I’m freaking out! I just hope someone can somewhat relate or explain it better.

hey:) My name is mai, i‘m 18 years old. I think I‘ve been struggling with OCD almost all my life - eventhough i‘ve only realized it lately, thanks to a friend that made me aware of the fact that the horrifying thoughts and impulses i sometimes experience, are not „just a little stress and insecurity“. When i was a little kid i had very long hair. People always commented on it, sometimes they said things that triggered an unproportional huge amount of anxiety in me. I Never wanted to cut my hair. Someday my sister and a friend told me that if i wasn‘t going to cut it soon, they’d come at night and do it for me when i sleep. I was always a sensible and fragile person that thinks too much and doesn‘t know where to put these thoughts. At that time i didn‘t realize how much these words and fears affected me, but unconsciously i started controlling if my hair was still there every 40-60 seconds. I could not sleep if my hair was not hanging over my right shoulder where i could see and feel it. I always wore it on the right, and checked it - constantly, until one day a doctor told me that my neck was suffering due to the weight and the tense position that my head was always in. Then i decided to end this fear and cut it, so that the pain and fears would stop, reminding myself that i could always regrow it. The fear disappeared, and for some years, in which i struggled with other disorders, the OCD symptoms seemed to be somewhere in the back of my mind. I just finished school, and now i‘m preparing for the TMS (a test in Germany that increases your chances of getting into med school). Since the structure and safety of going to school regularly is missing, and since i don‘t know if I’ll be accepted for one of the subjects i‘d like to study, i feel very much out of control. I feel helpless, at the mercy of strangers and i‘m so afraid of failing the expectations i have for myself. Since this phase of „being out of control and safety“ has started, i suddenly experienced a lot of different anxieties, some of them causing panic attacks on a regular basis. I obsess about my health, i find new symptoms and proofs I could be dead or very Sick in the next few days - every week. I‘ve been to my doctor so often i think he‘s really annoyed because of my ideas. Sometimes i also have psychological fears, like what if i‘m losing my mind.? What if i‘m having a psychosis? What if nothing is even real and everything is just an illusion? Thinking about life and existence frightens me a lot. I can‘t drink alcohol of caffeine anymore because i‘m convinced it will change my perception of reality in a way i couldn‘t handle. Some days i wake up and think that the colour of the socks i choose to wear will determine what kind of day This will become. I often worry that i bother people too much, that i‘m annoying and Just hopeless and that eventually people will realize how exhausting i am, and leave. It’s especially bad in romantic relationships, and it makes everything hard to enjoy. I have now chosen to work on myself, on my real fears - that lay beneath the things i think to fear. I want to educate myself on this disease and get my life back. I‘ll make a list of things that i used to love, and am now too afraid to do. I want my life back from my anxiety and OCD.

For the past week I’ve been throwing up or at least having the feelings of throwing up because of just anxiety and stress. I can’t even eat anything because I feel sick all the time! I’m not even hungry. I really don’t know what to do because I thought I was getting better but every time I eat I just feel sick and when that goes away something happens that makes me anxious or even stressed and I just feel it coming. I’ve never done or had this before but it’s really unpleasant. My mind is constantly racing with thoughts and images that I can’t seem to calm myself down so my body is rejecting food, even when I have no food in my body it’s rejecting whatever it can. The other day I ate one packet of nuts, that was it all day. Because I just feel so sick with all these thoughts

Before I was diagnosed with OCD I was certain I was loosing my mind. I convinced myself that I was schizoprenic or going slipping into pyschosis at any moment. It all started one day at work after having a few drinks the night before and chugging one of the most amazing tasting coffees of my life. I had my first panic attack. The best way I can describe it felt like my soul was leaving my body (I became really, really light headed). It was horrifying. This spiraled out of control with more and more panic attacks. I started having intrusive thoughts/what seemed like an intrusive urge to do ridiculous stuff. For example, I remember being in a spiritual development class one day and I had this intrusive urge/thought to smash all of the beautiful crystals. Something i'd never do obviously but the thought horrified me. Since, my OCD theme has jumped around a bit to so many ridiculous things. I had harm OCD for a while where I would see images in my head of stabbing someone or pouring boiling water on them. As ridiculous and silly as it sounds to an outsider, I can not even began to describe the grief and horror this created in my soul. I then had repetitive intrusive thoughts "schizophrenic" and "demon" over and over again gosh probably thousands of times a day. Again, certain I was crazy. I tried CBT which actually made it worse. I was terrified to speak to anyone about what was TRULY going on with me because I was certain i'd end up bakeracted and as a single parent I knew that couldn't happen. Plus I knew at heart I was not schizophrenic it just spiraled into this massive fear. It plagued my life every day for years until I FINALLY talked to another person that has OCD & send me an article about OCD where I began my research into leading to an eventual diagnosis. My compulsions were more mental acts like searching mental illness on Google for hours, avoiding triggers, and saying internal prayers or asking the universe to give me signs i'm not losing it in addition to nervous movements like fixing my hair or putting my hands near my face. I am still healing from OCD and the terror that its' caused in my past but i've learned to love myself and know that I am worth it (having mental health issues has always made me feel like it's my biggest flaw) and it's so beyond my control & despite my issues, i'm still pretty awesome! WE ARE ALL A LITTLE INSANE ANYHOW ARENT WE? Lol. Seriously, it's been an absolute game changer. I still have intrusive thoughts from time to time that create some anxiety but it's decreased so drastically. Most of the time I don't pay them any mind or it's tolerable. I am so beyond grateful for NOCD and understanding everything I can about OCD. My life will never be the same since that day but its still pretty damn good! I just want to add a couple other symptoms I experienced was dreaded fear I was going to start hallucinating at any moment. I'd question if I was really seeing/hearing things or if I was hallucinating, and constantly checking my mental state. Too happy? OMG I'm manic and that's going to cause pyshcosis. Too sad? Vice versa.. I hope this helps! Do the triggers, accept the uncertainly, accept your fear and get your life back.

Hello all, does anyone else understand this. I can be reading something on social media or news source and hear about a woman who killed herself and it becomes a huge trigger for me. I get so upset I try to know more info about the how and why of the story thinking omg what if I did that or became like that person. It gets my mind going whenever I come across these articles and I have to convince myself I’m ok and this isn’t my life but I get so upset and sends me spiraling.. Can anyone relate to this? How do you cope with it? I know I’m okay and wouldn’t do that but the what if aspect scares me 😢

I’m being haunted by something that happened in my relationship about 2 years ago. It’s worse than any event I’ve read here, so I understand if I cause disgust in this community by contributing some of my obsessing about this event to my OCD. Basically, I went through some struggles with alcohol a little while back, and this started as a result of me struggling to cope with a different horrible event that I caused. I was drinking excessively and often in secret. I’m not sure how much of a factor the alcohol plays in this event, so maybe it’s not even worth mentioning. Around the same time, my girlfriend came to me and told me that she thought that she might be transgender (MTF). When she initially came to me about this, she wasn’t really certain, and although I was a bit shocked I was very supportive of her. She started therapy to work out these feelings, and while I went through my own struggles and worries about this new information, we were actually doing pretty well. Until one night when she had therapy. I had been drinking that day, but I don’t remember the amount or how intoxicated I actually was. I would usually wear headphones when she was in her sessions (they were telehealth), but for some reason this time I made one of the worst mistakes of my entire life. I listened in on parts of her session from the other side of the door. I think I even stopped and came back to hear more. I don’t remember exactly how this came about. I think I passed by and heard her talking about me and my curiosity/lack of morals got the best of me. I heard her talking about me for a bit, but I also heard her say that she was now very sure she was trans. I didn’t know this (nor did I have any right to know this), and in my selfish, intoxicated, and mentally ill state, I went to the couch and had a bit of a breakdown. I don’t remember how long I eavesdropped on her. It could have been anywhere from 4-15 minutes. Any amount of time is too much. I am horrified by what I did to this day, and every time I think about it it sends me into a total spiral. When she was done with her session, I asked her leading questions about how sure she was that she was trans (so not only did I betray her trust, but I had the gall to question her about a part of what I had heard). She told me that she was absolutely sure. I went into a state of bargaining and disbelief, trying to be accepting and kind while also panicking about this change and what it meant for our relationship. I kept asking if she was sure, almost hoping that I could get her to think about it more before deciding. Horrible. Then out of guilt and horror over my actions, I quickly confessed to her that I had eavesdropped on a portion of her session. I think I minimized how long I had listened at first, but I corrected myself on that as well (I don’t remember how quickly though). She was understandably upset and disappointed, but not nearly as much as she had the right to be. She should have screamed at me and probably left my ass. But she still remained kind to me and we talked about the importance of me respecting her privacy during her future sessions. She went to take a bath, and I was so overcome with shame and self hatred for what I’d done that I ended up self-harming. I didn’t mean for this to be manipulative, but it was yet another horrible choice made based on my impulsivity. I ended up confessing this to her as well, not for her to take care of me, but because it was a bit more severe than I intended and I felt so guilty for having the audacity to hurt myself after everything I’d done. And that’s about where the event ends. It’s been about 2 years, and I still can’t believe that I have done something so horrifically disrespectful. We’ve talked about it so many times, and somehow she forgives me and it no longer bothers her. I have put myself in her shoes, and I would be so upset if someone did to me what I did to her. I ruminate over the details, google similar events and read peoples feelings about what I’ve done, try to remember exactly how long I eavesdropped for, what I heard, if I downplayed anything else when I confessed, and try to remember how intoxicated I was (which doesn’t matter at all). I always feel the need to confess more and to repeatedly bring this event up and apologize/ask how she feels about it (or if there’s anything I can do to help her heal). I take so many precautions now to make sure that my girlfriend feels 100% safe and secure in therapy. I have never done this again, I’ve discussed my actions in my own therapy, and I always leave the house for the entire duration of her sessions (even though she says she trusts me to wear headphones). I initiate conversations about what I did, how it made her feel, and if there is anything else I can do to show how sorry I am and guarantee her emotional safety. I consider what I did emotional abuse even though she doesn’t. She thinks that the event was bad, but my OCD is exaggerating my guilt and shame. I disagree. What I did was truly monstrous and how I feel as a result is the only way any sane person would feel after doing something like that. What I’m struggling with is accepting her forgiveness, kindness, and her desire for me to try and move on. I’ve read that what I did is a dealbreaker, and I can’t disagree. How are you supposed to accept such incredible kindness and acceptance from someone you have betrayed so severely? How am I supposed to feel like it’s ok for me to accept her love and continue our relationship despite what I’ve done?Especially when you have a pattern of horrible, disrespectful behavior? For some reason she still loves and wants me, and I don’t want to take away any more of her agency to make her own decisions about her life. I love her more than anything. She feels unheard when I talk about how I’m worried she shouldn’t forgive me, that I’m an abuser and she deserves someone who would never think of doing such a thing to her. I feel like it doesn’t matter how much therapy I get or how much work I do to change. My life feels like one long series of irredeemable actions. I’m sorry for the long post. I needed to get this off my chest. I understand that this is unacceptable and probably not even OCD related. I understand that most people would hate me for this (trust me, I hate myself a lot) and that I don’t deserve to still have such a loving relationship with this person. I just need help figuring out how to live with myself. Thank you for reading, and I’m so sorry to anyone who’s suffered because of pieces of shit like me.

I changed my baby’s name amidst a postpartum panic attack and ocd episode. We immediately changed it back (she’s a month old now), but now her birth certificate will say it was amended. I am so happy we changed it back bc we love her name. I didn’t want her to have a name we didn’t love and picked in a low moment for me. But now, I am really worried about the repercussions this will have on her as she goes to get a job, married, apply for a license, etc. So even though I feel we made the right choice to give her the original name she was born with, I’m down a rabbit hole of the ramifications of that. How do we avoid going down this rabbit hole? I don’t want to live like this forever and think about it all the time as she grows up; fearing for the worst.

Hey guys I’m really scared of loosing touch with the reality.. I’m scared that everything around me is not real or objects that’s something else than what it really is.. can anyone relate?

Just don’t even want to get out of bed I’m trying to stay positive and be grateful for my life and realise how lucky I am to be here and alive but sometimes I just feel like I can’t get out of bed and get on with my day alone. It’s 12:38 and I need to get breakfast but I’m just feeling so guilty and scared of my own brain and feeling like I don’t even know who I am anymore Feel like I’m gonna relapse. Why is it so hard to fight these thoughts I don’t fucking want them!!!!! Leave me alone how am I meant to know what’s me and what’s my ocd Just feel so angry and fed up

TW: Discussion of receiving a real physical health diagnosis after worrying about it for years It's been a while since I was on this app. I was diagnosed back in 2020 (since one of my main themes is contamination, you can imagine that that was just PERFECT timing, insert eyeroll here) and I did some ERP way back then to try to start working on managing my symptoms. ERP didn't really seem to work for me back then, but maybe that's because we were going through a pandemic at the time. I've done a lot of other therapy since then that has been effective at treating some underlying trauma and other issues I was dealing with in my life, in addition to helping me figure out that a deep fear of death underlies all of my obsessions (and compulsions). I've still been symptomatic in terms of struggling with contamination and health concern obsessions (and others) for the past few years. Everything got shaken up recently, though, when I got diagnosed with thyroid cancer. It's super treatable, I have a family history, and I/my doctors have known I have thyroid issues for about a year now, but regardless, the diagnosis absolutely shocked me to my core. It felt like everything I'd worried about with my health for my whole life came true in that moment. It felt like that one phonecall from my doctor validated all of my fears in that moment. I know that my treatment plan is proven effective, but I'm left with the constant "What Ifs". I'm sure that most people that get diagnosed with cancer, if not all, struggle with these what ifs, but they feel so much more intensified for me right now because I feel like the thing I was worrying about for my whole life actually came true. TLDR: Does anyone have any tips for managing fears, obsessions, and compulsions when the worst really does happen? How do we help the fear-processing, non-logical parts of the brain cope with the idea that the worry about the thing and the thing itself were not connected? How can I come to believe that I didn't worry this into existence? How do I manage the what ifs (what if after treatment it's not actually gone? What if it comes back or spread somewhere else?) without doing silly compulsions to "make up for it"? I know that was a lot, so any tiny tidbits of advice would be much appreciated, especially if you've gone through similar things yourself (e.g., had health obsessions and then actually developed a health issue). ♡

I’ve been going through what I suspect is depersonalisation for the past 6 months (triggered by a bad ocd episode) It’s been a really bad period and after this much time I feel like my depersonalisation (if that’s what I have) has gotten so complex that I’ve started to really forget who I am, how I used to act, what I believe in, I feel like I’ve completely lost my own identity. Thinking about past memories hurts, thinking about people I love hurts, I am not sure what to do anymore. I have been told to try and get on with my life by many people online and the depersonalisation will go away by itself, unfortunately that is not the case as whenever I try to get on with my life it gets worse and I feel even more disconnected. I feel like the only time I feel like I’m getting somewhere is when I sit and try to think back of the ocd episode that triggered all this, almost like I have unprocessed emotions from that episode that needs solving in order for my depersonalisation (if that’s indeed what I have) to go Please, if you’ve been through something similar let me know, have you ever felt like on ocd episode is holding you back from your life and is making you feel disconnected from yourself until you go back and process it? As if it was some sort of traumatic memory that needs processing? Don’t hesitate to leave a comment and thank you in advance :)

People who weren’t diagnosed and/or didn’t even realize they had OCD until they were older. Are there any stories or memories you look back from when you were younger and now see the OCD gremlin laughing in the background? For me I just recalled the other day how starting in elementary/middle school, and lasting for years, that I refused to allow myself to fall asleep on my back because I was afraid of my tongue falling loose and choking on it while I slept. I even just recently learned how obsessive thoughts about death are common for people with OCD, and I can recall times from when I was even younger of just thinking and ruminating about the afterlife. Not that these are necessarily 100% OCD related but…

How do I forgive myself? Last night I spent 3 hours searching online how Jesus is true or not. I finally gave in to compulsion big time, and even then I feel I need to do more. Cause I stopped searching cause I felt so tired. How can I go back to before? I felt I lost my progress that I have been working on for the past 2 1/2 years. I’m in despair right now.

Hey y’all, does anyone else fear that the world is a simulation / nothing and no one is real? When my OCD flares up, I feel like I am being controlled / watched, like I’m on the Truman Show, and that everyone around me is a robot / simulation? It can be incredibly distressing and I’ve spent HOURS performing compulsions. At school, work, when trying to fall asleep.

I’m starting to feel like I need to grieve the idea of being a mom. With this disorder (especially the theme I have) I feel like there’s no way I could move past this; put it behind me and have a happy life with a partner and kids. Even though that’s all I’ve ever wanted. I don’t want to mess up my kids by not being able to be present and don’t feel like I would ever find a person to fall in love with who would put up with this part of me. And I wonder if maybe I’ve made marriage and kids an idol in my life and maybe I just need to lay it down at Gods feet and accept that it may never happen for me. I guess that’s part of accepting uncertainty huh. It’s so hard bc that’s all I’ve ever dreamed of my whole life, but these past few months have shattered my idea of what my life would be like.

I am interested to know has anyone here decided not to have children because of the risk of severe OCD resulting in a terrible life? How has that experience been for you? I am going through this myself at the moment but of course my OCD makes me doubt every decision I ever make. One minute I want something, the next minute I don’t!

does anyone else struggle with this? the last year has been awful. i feel like im the only one that deals with this, and its so scary and isolating. i feel like i dont recognize myself or other people anymore, and i find myself obsessing over the what ifs & i spiral into a panic attack almost everyday. i’m so exhausted.

I was completely under control of my ocd with medication. I always doubt whether I will commit something wrong that was my ocd but I understand that I need to do it by myself if something bad want to happen. Because of my anxiety when I have obsessive thoughts and that only remain as thoughts. But now a new type of thought occurred for first time which I try to eliminate by using logic but I can't. If someone can help me it would be helpful. The thought is when I move my body any parts for eg. Hand I consciously move it with giving force but the real physiology behind this movement is brain send signals to spinal cord then to muscles to carry out movement .then doubting thought arise .so is my brain controlling the movement . Then AM I not fully controlling my voluntary action.can my obession thought take place into action harm obession if I am not fully controlling my body rather brain control it .kindly give me a reply