A long sentimental post…
October is OCD Awareness Month, and honestly, I never thought I would ever be writing something like this.
Surveillance & Privacy OCD has been a part of my life for much longer than I understood. I was still really young when I first started experiencing symptoms, but I didn’t know what they were. I didn’t know what intrusive thoughts were. I didn’t know what compulsions were. I didn’t know that the constant fear, overthinking, checking, analyzing, avoidance, guilt and need for certainty could all be part of OCD.
For a long time, I genuinely thought something else had to be terribly wrong with me. At one point, before I understood OCD at all, I even convinced myself that I had paranoid schizophrenia because I was so frightened by what was happening inside my own head. Looking back now, it hurts to think about how scared and confused that younger version of me was.
The last couple of years have been some of the hardest years of my life. Around summer 2023, a lot changed for me emotionally. I went through experiences that left me feeling isolated, overwhelmed and deeply affected, and looking back, I think that period may have played a role in how my OCD developed and intensified. I can’t say that it was the definite cause, but I know that something changed in me during that time.
Then OCD kept finding new ways to scare me.
It made me question things that should have been completely ordinary. It made me afraid of being watched or monitored. It made me scared of losing things. It made me check, avoid, seek reassurance, analyze thoughts, replay situations and try desperately to reach a level of certainty that never seemed to be enough.
And the cruelest part was that the themes could change.
Just when I thought I had figured one fear out, OCD could attach itself to something completely different. It wasn’t really about the specific object, situation or thought. It was about the feeling of uncertainty and the desperate need to make it disappear.
Eventually, I learned that recovery wasn’t about proving every fear wrong.
It was about learning that I don’t have to answer every thought.
I’ve been learning about ERP, response prevention, compulsions, reassurance seeking and CBT. I’ve been practicing sitting with uncertainty instead of immediately trying to fix it. I’ve had days where I felt incredibly strong and days where OCD screamed so loudly that getting out of bed felt impossible.
I’ve also learned something incredibly important: progress doesn’t always look dramatic.
Sometimes progress is wearing something OCD told me not to wear.
Sometimes it’s leaving somewhere without checking again.
Sometimes it’s allowing a thought to exist without researching it.
Sometimes it’s going to school even when my brain is telling me something terrible might happen.
Sometimes it’s downloading an app I’ve avoided for years and allowing myself to feel anxious without immediately escaping.
And sometimes progress is simply having a day where I forget about OCD completely because I’m too busy laughing with a friend.
Yesterday was one of those days for me.
I spent hours with a friend at the park. We walked around, did TikTok dances, took photos and memory videos, got on swings, sat on a bench, went to the store, bought snacks and makeup remover, and just had fun. OCD didn’t get to take the day from me.
And today, I’m going to the countryside with my parents, and I’m going to keep living my life even if OCD decides to scream again!
That’s something I never thought I would be able to say a few years ago.
I’m still recovering. I’m still learning. I still have difficult days. I still have intrusive thoughts. I still get scared.
But I am not the same person who was terrified by her own mind and had no idea what was happening.
Now I know what OCD is, for the past two years, I studied, I learned,I documented.
And more importantly, I’m learning that I am allowed to live anyway.
To everyone else on this app who is struggling: please don’t measure your recovery by whether you had intrusive thoughts today. A thought returning doesn’t erase your progress. A bad day doesn’t erase your progress. Anxiety doesn’t erase your progress. Recover isn’t linear, it has ups and downs!
You are so much more than the thoughts your OCD throws at you.
And to the younger version of me who was so scared and confused: I wish you had known sooner that you weren’t broken. You were struggling with something you didn’t understand yet.
I’m incredibly grateful that I finally understand.
One more thing I really want to share about my recovery is that, although I was professionally diagnosed with OCD, I haven’t had a therapist guiding me through my day-to-day recovery.
I’ve been learning and practicing a lot on my own. I’ve spent so much time educating myself about OCD, understanding its different themes, recognizing my compulsions, learning about CBT and ERP, and trying to apply those principles to my everyday life.
I’ve had to become my own little student of recovery. I’ve written reminders for myself, tracked my progress, identified patterns, practiced response prevention, faced situations I had avoided for a long time, and learned to sit with uncertainty instead of constantly trying to make it disappear.
And no, it hasn’t been easy. I’ve made mistakes, had setbacks, experienced overwhelming anxiety and sometimes felt like I was starting all over again. But I’ve also experienced moments that remind me why I keep going.
I’m not sharing this to brag, to suggest that professional treatment isn’t necessary, or to tell anyone that they should have to do everything alone. Professional guidance can be incredibly valuable, especially when OCD is severe or interfering with everyday life. I simply want people who currently cannot access therapy to know that they can still learn about their condition, take small steps, practice healthier responses and make meaningful progress.
You don’t have to wait until everything is perfect to begin working toward recovery.
And please remember that recovery isn’t a competition. Someone else’s progress doesn’t make yours less meaningful. Some people have therapists, some have support groups, some are still searching for the right help, and some are taking small steps with the resources currently available to them.
Wherever you are in your journey, I hope you give yourself credit for trying.
I’m still learning, still practicing and still recovering. I don’t have everything figured out, but I finally feel like I’m building a life that isn’t entirely controlled by OCD.
If sharing my experience makes even one person feel a little less alone, then I’m glad I wrote this.
We deserve lives bigger than our OCD. And we’re allowed to keep moving toward them.
There is one part of this journey I almost forgot to talk about, and that is loneliness.
OCD wasn’t the only thing I was fighting. For a long time, I felt incredibly alone while fighting it.
There were so many thoughts and fears happening inside my head that I didn’t know how to explain to anyone. Sometimes I didn’t even understand them myself. I could be surrounded by people and still feel completely isolated because nobody could see what was happening in my mind.
There were days when I didn’t want to talk to anyone because I was exhausted from pretending I was okay. There were moments when I wished someone could just understand without me having to explain every single thought, fear or compulsion.
And loneliness can make OCD feel even louder.
When you’re alone with your thoughts, it’s so easy to start analyzing them, searching for answers, checking, overthinking and getting trapped inside your own head. Sometimes you don’t even realize how much time has passed because you’re fighting a battle nobody else can see.
That’s one reason finding people who understand OCD has meant so much to me.
Talking to people on NOCD, reading other people’s experiences and realizing that someone else has had thoughts that felt just as strange, frightening or impossible to explain made me feel less like an alien in my own mind.
And lately, something else has changed too.
I’ve been making friends again.
I’ve been going out after school, hanging out at parks, malls and cafés, laughing, taking photos, making memories, talking about random things, and actually feeling like a teenager instead of someone whose entire life revolves around managing anxiety & panic attacks.
That doesn’t mean the loneliness magically disappeared or that OCD disappeared either.
It means my world is getting bigger.
And I think that’s one of the most beautiful parts of recovery.
Recovery isn’t only about having fewer intrusive thoughts. It’s also about getting pieces of your life back.
Friendships. School. Hobbies. Laughing until your stomach hurts. Going somewhere without spending the whole time analyzing your thoughts. Making plans for the weekend. Having people you can text. Being excited about something again.
If you’re reading this and you’re incredibly lonely right now, I want you to know that loneliness is not proof that you’ll always be alone.
You don’t have to suddenly become surrounded by dozens of people. One person is enough to start. One conversation. One little connection. One place where you feel understood.
And if you’re struggling with OCD while feeling lonely, please remember that the thoughts aren’t a reflection of who you are. You are still a whole person outside of them.
I’m still recovering. I’m still learning. I’m still having difficult days.
But I’m also making memories now.
And that’s something my younger self desperately needed to know was possible.
Happy OCD Awareness Month.
To everyone fighting this quietly: I see you. You’re not strange, you’re not weak, and you’re not alone in the way OCD makes you feel alone.
Keep going. Your life can become bigger than the thoughts that once filled it.